The Gerry Marinucci Update Blog

2011-09-01T19:30:00.000-07:00

http://verymarinuccichristmas08.blogspot.com/

Christmas Time Again!

2009-12-24T08:58:00.001-08:00

Christmas time again! Yikes I’m not ready. Anessa is clamoring for a letter to insert into the blog she created while murmuring “usually you’re more organized!” Yet the Marinucci’s have managed yet another move over the holidays! So, I’m squeezing in a quick update now…all be it late.

As you’ll recall, the end of the first year of Ger’s accident 5 years ago, while he was still in the hospital in Bakersfield, we moved out to the country in Aguanga the day after Christmas. That move was a blur to my memory. I recall others packing us up and tons of people assisting, as I was absorbed in Ger’s medical care. His release was eminent and he was having terrible orientation problems.
We knew something had to be done when on a short term visit home we had the episode of him escaping the house at 2:00 a.m and wandering on the busy road to be stopped by the police. At that point he didn’t recall his name let alone his address. My brother-in-law purchased the Aguanga property and we lived there rent-free for those years allowing me to stay home. It was unfamiliar territory, both physically and emotionally. I knew the fenced in yard would help but the anticipation of what life was going to be still was uncertain. Thus began a “good run” in the country.

There we witnessed with amazement Ger’s slow but steady improvement. The girls had chickens, dogs, rabbits, horses and a cat that looked like a cougar and hunted like one too. They had room to roam, a small pool, the lake, a neighbors’ horse arena, good neighbors and a great 4H program. We were settled, content and blessed!

However, with the recent financial situation, my brother-in-law, being in the mortgage business, could no longer afford to have a “non-paying” customer. This precipitated our move back into town. I began looking for rentals and determined in this market, rentals where just as high or higher than a mortgage. Mom graciously stepped in and agreed to help. At first we were looking to purchase a home where we could reside together. Then we found this home in the Vintage Hills Tract right around the corner from mom. She decided to stay in her own home for now, with the possibility of moving in later when she is ready. It is far beyond what I could think or ask! My mom is awesome and had generously stepped in when needed. When so many are suffering, we who have nothing to offer are blessed abundantly! God’s economy is so unique. Once again with lots of help from loving friends and family we moved again over the holidays. We are all settled in now and turning our attention to celebrating our Lord’s incarnation.

Earnestly praying for awhile for the “next step” for Gerry this move seems to be an answer to prayer. Ger has progressed to the point where safely he can safely stay home alone, he enjoys watching TV (too much) but resists our outings of shopping and school activities. For being a “social guy” the country was becoming very isolating. Yet any effort to involve him was a trip down the hill and time away from schooling—a tug for me between the “you know the good to do, do it” dilemma. Now, there is a retirement center behind our home and Ger says “I’m gonna find me a lonely old man who likes to play chess!” My assignment after Christmas is to see what opportunities God opens up for him. The Department of Rehab closed the door on possible “re-employment” but certainly, there is something meaningful for him. Please pray! There is a trolley that goes about town and his orientation has improved such that I think he can ride it to the library, mall, Barnes and Nobel, etc. He enjoys chatting with strangers. May God use this desire for His glory.

Anessa age 17, is counting down to her high school graduation in June, YIKES! All home educating mothers gulp “but I didn’t get to….” Having successfully completed two Junior College courses, she is wondering when the “light Senior year load” kicks in. She is hoping to take a photography class this Spring, but has a very late registration date and many of the classes are already full. A responsible and capable girl, she is a huge help to me, often running errands, managing the house and helpful in so many ways. She is currently the 4H President and has done a wonderful job of organizing and training up a much younger club. She is currently exploring a mission opportunity to the Chez Republic this summer. Uncertain of her future plans, but we have learned to live with uncertainty only to gaze in amazement how God opens doors.

Polina age 15, had to give up her beloved Buddy in this move. While difficult, he went back to the 4H horse leader and she can go and ride him at her ranch. She is my horse girl and amazes me with the facts she knows. She is the reporter for the 4H group and for only speaking English for a few years has done a remarkable job submitting articles into the local paper; ala her Auntie Carla. Academically, she is doing double duty. She is a freshman in high school so I require all of those subjects such as Biology, yet I don’t want her to miss out on the fun co-op clubs so she also participates in the Science Club studying Flying Creatures and Sea Creatures. She is the type that can easily handle the challenge.

Both she and Tanya participate in Keepers Club- like a Girl Scouts group, where they do craft-type projects and earn badges. Polina’s artistic abilities are evident as she enjoys the crafts of Keepers.

Tataina, soon to be 13, will make 3 teen girls under one roof! Her job in 4H is Communications Officer which appeared so charming to her when her sisters had the position—they got to chat on the telephone to all the club members reminding them of meetings, etc. Now that the club has tripled in size and it takes her hours to get through the list, she is not so enamored with the job. She is my little baker and cleaner, ala her Auntie Gina. You will find her rewriting recipes and often asking to bake some goodie.
Tanya is hoping to meet and befriend some of the children she sees playing on the block.

We have been fellowshipping at Providence OPC in Temecula, now literally a mile away. Personally, this has been a good year of growth; basking in good preaching, enjoying fellowship and friends for which I am most grateful. The transition in churches is not without heartache, yet I’m still very close to many at Grace. Being so close to church, I’m hoping to have opportunity to extend fellowship. I will be working a few hours a week helping at the Church, which will help me make the mortgage payment while allowing me to continue to stay home and educate the girls.

Okay Anessa, I’ve finished! Reflecting on this past year and our blessings reorients me to celebrate afresh what a Great God we have who would take on humanity for my sake!

A Very Marinucci Christmas 2008

2009-05-26T20:47:00.000-07:00

A Very Marinucci Christmas 2008
For the very latest update on Gerry, Lori and the kids (who aren't so small anymore), click the link above.

Update -- Feb. 27, 2008

2008-02-27T09:25:00.000-08:00

Here is an update on Gerry's current progress.

Since September Gerry has been attending a few classes at Mt. San Jaquinto Junior College in Menifee. There is a neighbor, who is also a student, that drives him to and from classes. He is taking classes in conjunction with the Department of Rehab as they continue to evaluate whether or not he is "employable." This campus does not have much of a Disabled Student Services program that can benefit him. It was determined to let Gerry attend, without any assistance on my part, and see what happened. The Fall Semester met with mixed results. He far exceeded our expectations regarding his independence and the need to be closely monitored. He surprised us in his ability to navigate the campus, interact with other students, wait patiently for rides, coordinate via cell phone times and locations for pick-up, purchase lunches in the cafeteria, locate and attend classes. His stamina improved as he put in two full days on campus. While completing some of the course assignments, he missed/didn't understand instructions on due dates but basically didn't do much of the homework assigned. He passed one course but failed the other. While he can articulate why he is attending classes and that he has had an accident, there is still some disconnect as to why he has to do this again since he has already attended college. He doesn't always recognize his disability and deal with reality. Motivation is a factor.

This semester he is taking two courses and is even more eager to attend and to get up and catch his ride. It was decided, along with the Dept of Rehab, to offer him assistance with calendaring and reminder-type issues. I regularly go over his course syllabus and he has been diligent doing his reading assignments, computer tests, writing papers without fighting me. I have seen tremendous progress in his ability to articulate, compose on the computer, and his reading and comprehension are vast improved. However, often I will find that he has not turned in the assignment that he has completed in his binder. When questioned about it, he was not sure when or how to turn it in or "I forgot." He misses the ques. For example one day his class was to meet in the library for a particular assignment. I reminded him that morning, but by time he got to school he had forgotten. He came home and reported that one of his classes didn't meet, I asked him what he did during that time and he stated he went to the library, but never connected with his class and missed the assignment to be completed in class. Often in his writing he states over and over that "what used to be easy is now very difficult" and this is discouraging. But the next sentence will be "but I will deal with what I have been given." While academically I'm not sure how he is going to do, it is really more about him improving through the process. I am pleased with his determination and motivation this semester.

Weekly he has been taking a taxi to his speech therapy appointment. The process of taking the taxi, interacting with strangers, navigation, etc. is just as important. His speech therapy now consists mostly of learning memory strategies. I have an appointment with the physician to determine if it can continue. There is still a lot of coordination on my part, and involvement with his assignments but he is much more independent now.

The Dept of Rehab would like to place him in a job at a nursing home-type facility. They recognize his people/ listening skills and think he would be a great encourager. Gerry is very happy about this potential avenue of employment and considers it a ministry. So far they have not been successful in having someone take a risk on him. We have a friend from church that has agreed to take Gerry to a skilled nursing facility to play hymns and visit. We are hoping and praying that once they meet and get to know him, they will be willing to allow him to do this on a regular basis. He would take joy in ministering to others.

Socially, Gerry still enjoys outings of all kinds. He looks forward to church and will now get up and mingle instead of waiting for others to come to him. He seems to know his limitations better and will retreat to a quiet place or go lay down when he has had too much stimulation, thus lessening the "blow-ups." He can now stay home by himself for several hours, and get himself something to eat. (He doesn't attempt the stove!) This is a huge benefit that has allowed the girls more opportunities in their activities. Though much improved, we still have occasional emotional outbursts. Besides his words, he gets aggressive in his stance and posture and it is very intimidating to someone who doesn't understand. My girls have gotten used to it, but it doesn't make it good. I'm still praying for better communication skills in this area.

Thank you for your continued interest. This is a very long road but I'm grateful for Gerry's continued improvement and progress which would not be possible without the support and kindness of many. Thanks again.

Lori for all

Update: Christmas 2006

2007-01-16T17:46:00.000-08:00

Marinucci Christmas 2006

An update from Laura

They said we would get into a "rhythm of living" but I really didn't believe the professionals. The past few years my myopic mindset has been so narrowly focused on Gerry's immediate needs that regular routines were non-existent. No longer does Gerry's injury control our every moment. Life feels fresh and new and even old drudgery chores, obligations and errands are welcome. Gratitude permeates me when I peer over my shoulder to where we have traveled. The reminder that I could still be standing bedside, in a hospital room, watching Gerry clinging to life is not far from my memory and provides perspective to each day. As a family, we have passed through a valley, having seen first hand God's care, His miracles, His peace, and His Church in action. I'm finding contentment with this new life.

Gerry continues to amaze. Well past the infamous 2 year "time of plateau", he continues to improve. Mondays find us traveling to San Diego for the TBI program. You may recall I was reluctant to continue this program, evaluating the benefit verses drive time. However, this past semester a new course was developed, wherein he and a selective group of students participate in the formation of a school newspaper. This was a perfect match! Old skills are coming back and with Gerry's improvement, new frustrations of how easy things used to be and how they are not so easy any more, are surfacing. In a way, the better he gets the tougher it is on a different level, as his awareness and emotions kick in.

Frankly, Gerry is getting a little bored and restless simply doing his homework at Belinda's while we school the girls together. This fall, Gerry qualified for Medical, which entitled him to participate in a new HMO for seniors. This plan allows for 30 one-way doctor visit rides a year, so a taxi has actually been driving out to Aguanga, picking him up, taking him to physical therapy and then returning him home. Initially, this was a little nerve-wracking as I, the "mother bird," wondered if my fledgling would wonder off, become confused if the taxi didn't pick him up timely, get frustrated filling out the paperwork etc. The goal was more about the entire experience of his independence than the physical therapy itself. Gerry has so enjoyed his independence and has done wonderfully without incident! He completes his therapy at the end of the month by exceeding all his goals. He especially enjoys chatting with the drivers and comes home with a new story each week. With transportation temporarily resolved, it solve my tug of attention between taking the time to drive him to additional therapy away from the girls schooling. Gerry is entitled to 15 new round-trip rides in the year 2007 year and I pray for wisdom and guidance.

Also through this HMO, for a nominal fee, a caregiver comes to the house 3 times per month. So on Wednesdays Gerry stays home with Lilia and does therapy, plays games, takes walks, speaks Spanish, plays instruments, and keeps the sprinkler moving about the yard. His Christmas gift is piano lessons where the instructor comes out to our home. She heard him play by ear and declared, "I could learn from you." However, it became apparent that Gerry requires assistance reading sheet music so they will work on that goal. Music therapy is a great form of cognition therapy and he needs a little push. He is rather critical of himself these days and reluctant to play since his quality is not up to pre-accident standards. Already he is practicing without prompting.

Gerry talks about his aspiration for something meaningful to do in life. Accordingly, this coming year we plan to explore vocational rehab again to see if he is ready or perhaps check into a non-profit food pantry where he might be able to volunteer. Pray for the best activity that will profit him most. Especially pray for the transportation predicament. If I'm driving, I'm not schooling and vise-versa.

We're entering into a new stage. Gerry looks and speaks fairly normal these days such that a stranger might not know of his injury. It remains difficult for him to admit his deficits, but sometimes in conversation something comes out a little awkward, he is gruff or he gives an abrupt response that begs an explanation. His memory and perception have extremely improved this past year. I'm always encouraged when someone who has not seen him in awhile testifies to the measurable progress he has made.

I had a reality check in August when Gerry appeared to be regressing dramatically; I wondered if he was having undetectable strokes or seizures. Physically nothing was unusual but his behavior was horrid. I harkened back to "those days" again. I was just about to take him to the doctor when the heat wave snapped. Yes, that same heat wave that made us all so uncomfortable was the culprit. It put him over the edge. As soon as there was relief from the heat, he was instantaneously improved. This was a dramatic reminder of the struggles with outside stressors that he encounters daily. He is always working diligently to control himself.

Immediately following the heat wave debacle, Mom offered us the use of her timeshare, so together we traveled to the Reno area. Hesitating if it was wise to go, we went anyway. Vacation suits Gerry. He traveled well, was patient, cheerful, excited about what the day's events would hold and even with no set schedule. Not exactly the profile for brain injury! I came home thinking we should be on permanent vacation, so pleasant was the experience! My girls were thrilled with "running water." Being from the deserts of Southern California, they had not yet experienced flowing creeks and streams. We spent much time, wading, exploring and floating the gorgeous creeks and rivers. Our visits with old friends and relatives were delightful. Gerry's sister Carla gifted us with the opportunity to stay at Camp Curry in Yosemite so we meandered home via the historic 49'er trail and stayed 2 days and a night marveling at God's creation.

As a family, we are enjoying TIME to be together. Home schooling accentuates the opportunities to knit us together. This past year brings wonderful memories. We culminated our unit study of the Middle Ages with a wonderful Medieval Feast with our support group. My girls enjoyed preparing wears for the marketplace, the ceremonial feast, dancing, archery, and performing the play "St. George and the Dragon." We continue on our Geography "trip around the world" having completed our unit on Africa concentrating on Missions and the persecuted Christian church. I taught a beginning basics cooking class for our support group and the girls have been cooking up a storm… I'm no dummy!

Together we've been more involved in church activities, have had opportunity for field trips and fun. The girls are still horse crazy! The horse suits my goals of not fracturing my family with activities that scatter us apart. This is something they can do from home and they often spend time on trail rides or in the arena practicing. Anessa and Paula working together have enhanced the closeness of their relationship.

Anessa (age 14) demonstrates maturity in the care of Sonny and never complains about feeding even when it snows. She is a good big sister and teaches Polina what she has learned about horses. Recently her braces came off reminding me of another stage towards maturity. She is now singing in our church's choir and is the treasurer and communications officer for our 4H club.

Polina (age 12) is horse crazy too! She and Anessa do chores for a neighbor in exchange for riding her horse, so the girls can ride together. Polina is proud of the Presidential Physical Fitness award she earned and is excited to try again this coming year. Unfortunately, she has lost her Russian, so as part of our schooling we are studying Russian together. Ugh! It's not easy and as I struggle along, I appreciate of how hard it is for Gerry to re-learn.

Tatiana (age almost 10) has her own 4H project with her rabbit Snickers. She hopes to participate in her first rabbit show in February. Eagerly, at every opportunity, she dresses in her 4H uniform. She would sleep in it if she could! Proudly she recites the Pledge of Allegiance to the flag to commence the 4H meeting. She has been planning her birthday for the past 360 days and shortly it will be time to celebrate! She enjoys writing and being creative.

We covet your prayers and are thankful for your giving. We are mindful that without your care and support our current rhythm of living would be very, very different. I attempt to be conscientious to redeem the time as my girls are maturing into young women. I'm resting in God's care for our family, appreciative of the gift of TIME to be together as a family. Thank you.

Now I have a better understanding of the passage to "Count it all joy when you face various trials…" Trials force one to re-evaluate what's important in life! Pray along with me that the "big things" in life will stay big; that I can focus on what really matters in this world. I pray the lessons learned will not be drowned out by the busy routines of life and that our new "rhythm of living" will be a different lifestyle; one filled with praise, thankfulness and contentment in all things.

Wishing you the gift of faith increased, the blessing of hope renewed, and the peace of His love this Christmas and always!

Love the Marinuccis

Update 3/11/06

2006-03-13T21:43:00.000-08:00

Dear Family & Friends,

Passing on an important update on Gerry and how their family is doing (already coming up on 2 years post-accident). Lori continues to carry their family through each day with God's help, and her strength and faith continue to inspire me and everyone who knows them. Thank you for continuing to keep them in your prayers.

Gina Gronlund

(The picture was taken last Thanksgiving. Clockwise from top: Gerry, Tatania, Anessa, Polina, and, center, Lori.)

Dear Family and Friends,

I never got around to getting Christmas cards sent out this past year. I am touched by the warm response from many, many who sent cards or called to inquire what was going on with our family. Many others have requested I provide an update. This is my attempt to provide a recap of what’s currently going on two years post-accident.

Gerard is attending a free Brain Injury Program in San Diego through the Continuing Education Department of the Mesa College District. We commute twice a week to south San Diego. Gerry is highly motivated and eager to attend. This is proving to be the best rehabilitation he has encountered. Basically, he has two instructors: a speech therapist and a neuro-physiologist. Linda the speech therapist has taken a special interest in Gerard and offers to meet with him privately for a ½ hour prior to his class. She states that in all of her 15+ years she has never seen anyone improve at this rate, at this stage of recovery. Gerard began last September very confused, disoriented with severe aphasia (word finding difficulties). I have been told that aphasia patients may improve but rarely fully recover. Praise God that at the end of the quarter Gerard has been transferred out of all of his aphasia classes. She is constantly re-testing and evaluating him because “he is going so fast.” God has shown Himself gracious in this aspect. Gerard’s speech is rather smooth, and his voice tone is better (still not exactly the same, but not the gravely sounds that elicits stares). Linda encourages, “whatever you are doing at home, keep it up because it is obviously working.”

Gerard has begun vision therapy in San Diego once a week. He is calmer, better able to control his anger (there are still some outbursts, but better). Mostly, his reasoning and memory ability is improving. He now begins to anticipate, plan, express his desires and is concerned for others. Next, we need to work on self-initiation, scheduling, reasonableness, and time management. He is finally off all medications and we noticed a big step upwards, as if the fog lifted. Many have commented that Ger seems more peaceful. Gerard still requires supervision: he is not necessarily a threat of danger any longer, but he doesn’t self initiate and will sit the entire time I am gone. I believe Ger is still healing and will continue to improve with this needed therapy.

Additionally, Dr. Ron Higuera, a friend at church, who conducts ATC therapy which stretches the muscles, is working with Ger and has lessened the constant pain Ger experiences in his neck and left foot. These are the same problems that we spent days in the hospital attempting to resolve with no success. Ron affirms that Ger is still in an awful lot of physical pain, which certainly affects his disposition. Ger rarely complains, however, stating “you just have to suck it up; it is what it is.” Ron has always been willing to help but initially Ger wouldn’t allow Ron to touch him because the stretching itself hurts, causing a lot of pain to bound muscles and tendons. Pray that Ger will continue to put himself through these painful stretches in order to experience permanent relief.

We have been surviving off of unemployment, savings and occasional gifts. To date this has allowed me to stay home. Daily, we all go to Belinda’s home and school together. Surprisingly, home schooling has proved beneficial to Gerry. He sits and does school right along with the children; when they do math drills, he does math drills. Sometimes he just listens, but this is a form of indirect therapy where he is not “on” all the time. He especially enjoys Bible class, (Machen’s commentary on the Catechism), Worldview and Spanish classes. He often interjects appropriately and is good about correcting our mispronunciations in Spanish. It seems as if his brain is loading back up.

My desire is to educate my girls and witness God’s hand in healing Gerard. I have been preparing for and teaching several classes and I am enjoying every minute. Working alongside Belinda has been my therapy. I’m grateful that she allows me to sneak away 2 days a week to take Ger to therapy/TBI school. I couldn’t do it without her. Pray that God would continue to bless her and her efforts! She does a wonderful job, is exceedingly patient, and is constantly faithful. What a godly example of self-sacrificing friendship! We have noticed a calmness the past several months and the girls are all doing quite well at school, benefiting from the structure and extra attention.

Finally, almost 2 years after the accident (3/17), our family is experiencing a full but more peaceful schedule. I’m realizing how much the girls need my attention “after the storm” and desire this season of “normalcy”. As most Moms know, I am working harder than ever. I have a passion to redeem the time and feel a sense of urgency because I don’t know for how long this season of staying home will last. Partly because of what has transpired in our lives, it is of utmost importance to me to instruct my children in good Biblical doctrine to ensure they have a firm foundation. Apart from God, nothing makes sense. Knowing God is central. It has been everything to me. My zeal is purposely to provide for them the same foundation so that they can understand what has transpired from “God’s perspective.” Knowing Him truly is our only hope.

Yet as we look to the future, our financial situation needs to be addressed. This month the unemployment benefits terminate and we have to evaluate how far our limited savings will take us. Please pray. Publicly, I must give God praise for random anonymous gifts that just “appear in the mail” and checks here and there from distant friends. This, along with savings, has been carrying us along farther than I ever dreamed possible. God has been good to our family and when people question me, “How are you making it?” I can truly state, “It doesn’t add up, but it is GOD’s economy.”

One alternative would be to seek part time employment again. However, it is difficult to see how I could continue to devote as much time to the care of Gerry and the girls as I have been doing over the past months, and I am reluctant to return to the turmoil that such a change would entail. My elders have encouraged me therefore to inquire if there be those who would be able and willing to assist us with monthly support for a limited season, perhaps the next two years. While I am not technically a widow, they believe that I fall under the category of “widows and orphans” and deem this a true diaconal need. I confess that I struggle with this option mostly because it is difficult to ask for help. Yet I am reminded of the Scripture, “You have not because you ask not.” So humbly I appeal to those whom God has gifted to determine if this be God’s will for this season in our family. The shortfall every month is $1,300. It is not anticipated that this will come from one source but rather any combination of sources: from church’s diaconal funds, a one-time gifts or individual monthly donations, whether large or small. You can send donations directly to us or, if you wish a tax deduction, you can send gifts to Grace Presbyterian Church Fallbrook, PO Box 1749, Fallbrook, CA 92088, designated for the diaconal needs of the Marinuccis.

Update No. 75 ...from Lori

2005-03-25T22:20:00.000-08:00

Sent: Wednesday, March 23, 2005 1:07 PM

Marinucci No. 75 March 23, 2005

Hi.

Gerry has made a very good transition home. He often states how he
enjoys his new home and how good it is to be back with family. I have been
"running him" fairly hard, going to many school outings, doctors visits,
church, walking almost 1/2 mile to the club house, various home therapies, setting
the table, devotions, playing instruments, house work, having people to dinner,
etc. He is exhausted by 7:00 PM! The good news is that he is sleeping
through the night (10+ hours) which is great... I don't do well with sleep
deprivation. I am trusting that his stamina will increase. I am also
learning his pace, when to allow him a few minutes respite during the day so he won't
blow in frustration.

Surprisingly, he is very aware of his surroundings and is protective of his
family making certain all doors, windows, gates are locked and secured. He
also wants us to wait outside when we get home to ensure that "it's safe"
before we enter. I believe he has had an increase in clarity since he has come
home. When the children are out of his sight, he is questioning where they
are and what they are doing and eager to pick them up from school at Belinda's.
His continued stated desire is that the children would respect him "even though
he doesn't have a brain" -- this emotional desire is so strong that it
flows through a lot of his conversation. Please pray in this regard. The girls
"chattering" especially when they are pretending, is still bothersome, and
I'm working on getting a playhouse/shed set up outside to help with this
problem.

We had one day that Gerry refused to shower, shave, etc. and no amount of
coaxing would change matters. The "power struggle" was on. Although
frustrating, remember that I've been counseled to keep to a regular
schedule, and set expectations, stand your ground and don't give in... I was rather surprised
by his coherent reasoning and justification for not doing so. He wanted a
down day just to be a little grubby and didn't want to be evaluated every day. I
am learning too. I gave in and he went to town a little rumpled, oh well.
Emotionally, I think it is more respectful and important for him to have a
say in his schedule. The profanity and hollering in an aggressive manner still
happen at times, but eruptions are decreasing. I sense a calmness coming over
him. I believe the aggression will decrease once we learn his tolerance level. Pacing
seems to be the key so far and its an uncertain balance of when to push and when
to rest.

To answer your questions, I'm continually fighting the insurance company
which is exhausting, and Gerry doesn't like me on the telephone! There are no
therapies set up yet, even though Aetna promised to step in once Hemet failed. We
were hoping Hemet would do the right thing, but felt pretty confident they would keep
on the same path of no services, this despite their own responsibility for
contracted services. I believe Aetna has failed as well, since they could
have allowed Gerry to stay at CNS until 4/1 knowing the difficulty with Hemet.
Aetna opted for early discharge knowing the prior problems with Hemet but assured
me his care would not be compromised. Aetna said they were on to Hemet’s ways and would
step in immediately. Unfortunately, they have not and have failed to give Gerry
the continuous care he is due. Pray specifically that therapies will be
established soon as my employer will be changing insurance carriers to Blue
Cross as of 4/1. It is always easier to transition if you have a "level of care and
treatment established" rather than undergo the re-evaluation process. Also
I am hoping to be assigned a case manager with Blue Cross. This is not
typical unless you are an inpatient or facing a surgery. Gerry doesn't fit
this criterion, but he still needs many evaluations such as: an
endocrinologist, neuro-opthomologist, neurological testing, audiologist, etc.
I desire someone to help manage me though the maze.

I have taken some time off work for this transition. Until I can get his
needed therapies established (to me this is the priority), I can't figure
out what "care" I need in terms of "supervision" for Gerry while I work. Thank
you to those who have indicated a willingness to help in this regard... I have
not forgotten you. I'm just waiting for things to fall into place. Also I
have an appointment to meet with the State Vocational Rehabilitation Department
soon to see if Gerry qualifies for any retraining and/or assistance in
finding him employment. There is also a community college in Orange County that has
a 2 year program specifically for brain injury that I am exploring. It
seems more prudent to pay for someone to drive him to Orange County for a program
with a goal than to pay for someone to "babysit/daycare". Please pray for
God's guidance in the next step. He has brought us this far... I am more
confident than ever that God will provide.

Thanks for your continued prayers and letters.

Love Lori

Update 3/6/05 from Gina -- Gerry's going home

2005-03-06T22:25:00.000-08:00

Dear Friends & Family,

The insurance has set Gerry’s final discharge date for this Tuesday, the 8th. Lori will be going to Bakersfield on Sunday with her Mom to take Gerry to church and to thank the wonderful people there for welcoming Gerry into their congregation during his stay at CNS. On Monday, Gerry’s final day at the clinic, Lori will receive more training on how to keep up with Gerry’s therapies at home. There will also be a conference call with Aetna before discharge. Tuesday morning, they will head for home! Lori says the benefit to having Gerry discharged a month early is that he will still have a reserve of benefits if needed after he returns home. God’s timing is always perfect!

Gerry is so excited about coming home, it can’t happen soon enough! When Lori asked him what kind of things he was looking forward to doing when he came home, he said “driving the car, and swimming in Freda’s pool!” She reminded him, with humor, that he can’t drive because his eyesight is not good enough, and he said “Yeah, you’re right.” As summer approaches, he may want to jump in the deep end of the pool and swim just like he always did! Please pray for Gerry to accept his limitations due to his injury. Lori said that Mike, his neuropsychologist, said that is very common with brain injury patients, that when they leave CNS, they think they’re leaving their brain injury behind too. We pray for Gerry’s acceptance of his new reality. Life will not return to the way it was, but it can be meaningful and filled with God’s purpose.

Lori is going to take two to three weeks off of work. She’ll be trying to establish the routine and structure so important to brain injury patients. She’ll be working on Gerry’s therapies at home, and also working on getting outpatient therapy set up for when she goes back to work. Please pray that she can get insurance approval for ‘Rehab Without Walls’, an outpatient therapy program that comes to the patient’s home. Also, as of 4/1/05, Lori’s company is changing insurance companies altogether to Blue Cross. Please pray for a smooth transition, for no problems with coverage, and guidance as to whether to choose an HMO or PPO, etc. After a couple of weeks at home, and hopefully some of the questions are answered as to therapy schedules, etc., Lori will then have a better idea of her needs for help with Gerry. She does ask for your prayers for a smooth adjustment at home in regards to Gerry’s agitation, and prayers for her and the girls as they adapt to their dad’s new life at home. Also, prayers for Anessa, as she broke her shoulder last week when she fell off a horse while training for an upcoming horse show. This has been a wonderful outlet for her, and she will have to put her horse back riding on hold for several weeks while her shoulder heals.

Thank you all for your prayers and support! We are so thankful, and we look forward to seeing how God will work as he brings Gerry back home!

Blessings,
Gina

Update 2/15/05 from Lori

2005-02-15T14:02:00.000-08:00

This update really got to me....steve

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Passing on from Lori....

What a wonderful testimony she has!

Gina

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Sent: Monday, February 14, 2005 7:41 PM
Subject: Marinucci No. 73 Valentine letter

Friends,
At first I didn't think it necessary for those who were receiving
regular e-mail updates to get this letter. However, I have been asked by
many to send it via e-mail as they have people and groups that have
been praying. I didn’t realized how far and wide Gerry's story
has traveled. So here it is. Thanks.

February 2, 2005

Greetings from the Marinucci’s!
My well intentioned Christmas letter has now turned
into a “we’ve moved” and “we love you” Valentines Day note. Oh what a year!
This time last year we were making a peaceful transition and settling into
our new routine with our two newly adopted daughters from Russia. We were
playing the “guessing game– do you mean this?” and we were amazed at how
quickly the English language was being acquired by these two little girls.
Then for those of you who don’t know, yes I believe there are several that
haven’t heard the news... On March 17th our little world hit our own
“Tsunami.” While Gerry was taking his early morning bike ride, an
uninsured, unlicensed driver hit him from behind and fled the scene,
dragging Ger’s bike almost 2 miles. (Yes, to answer the questions everyone
asks: Gerry was in the bike lane and was wearing his helmet and the driver
is now serving 3 years in prison) Gerry sustained a traumatic brain injury
which left him in a coma for 3 months. It left me dazed.

I can never begin to understand Gerry’s reality. However, I quickly realized my
own dilemma. When my belief in a good and loving God and the somber reality
of the aftermath of my own tragic disaster COLLIDE, I asked myself: What do
I believe? Yes, I talk about sin and the effects of sin on this world, and
the importance of a Savior to redeem us from this sin. I talk about and
sympathized with those encountering trials in this world as Jesus promised.
But, now it’s time for me. Do I believe that God, my God and Gerry’s God,
the Author and Sustainer of this world, allowed this to happen to Gerry?
Can I have eyes to see that God, who didn’t cause the evil, but it was He
who allowed this tragedy for His own purpose and my good. The “why me”
question didn’t seem important. I know that Gerry’s position in Christ is
secure. He is still God’s faithful servant. Much like Job. Who was I to
question our Sovereign God? This was His plan for our lives! What a
disaster, what a disconnect! It doesn’t make logical sense.

Yet over 2000 years ago, an even more powerful disconnect occurred. God sent
His perfect and holy Son into this world. He was rejected, despised and
murdered due to no fault of his own. God knows the pain of losing His own
Son to death on a cross, He knows and understands my loss and grief. Jesus
himself, while on the cross questioned... but came to the conclusion, “Not
my will, but Thine be done!” How can I come to any other conclusion? As
Gerry has said, “this is where the rubber meets the road- I am not in
control of my own life, I’m in need of a Savior from my sin - this is the
basic gospel, Christ died for me.” I am grateful for all the years of
faithful teaching of God’s word that I have received. It put my head and
my heart in the right place for encountering a trial such as this. My
friend Robin, whose husband Tim had undergone liver transplant surgery, often
said during her trial, “God has a plan for me, and I’m going with it.” This
became my motto too.

In the ER I recall praying for Gerry to die as he teetered on the edge of
death. Not wanting to lose my friend and partner
yet the deep, deep desire for him to “run for home and finish the race
safely into Jesus’ arms.” I confess I was cheering him on as he seemed so
close to heaven. I couldn’t imagine the road ahead should he survive. The
days blurred into weeks. [Gerry had] “TBI”, traumatic brain injury to his right frontal
lobe, I was told. Even the doctors couldn’t tell me what it meant...
perhaps death, vegetable state forever, paralysis, perhaps loss of language,
loss of understanding. All I knew was that I was not in control and no one
had answers about the future, but God.

Gerry has always aspired to full time ministry, but God had not opened that path.
As most of you know,
Gerry has always been the evangelist-type, eager to engage anyone in
conversation about God. He was a real lover of people. Here he was flat on
his back, motionless, silent and in a coma. Yet God was using him. The ER
staff was a buzz. They encounter on a daily basis life’s tragedies, but
this one was different it was reported to me. They couldn’t get over “the
peace” they experienced while nursing and caring for Gerry. The family
support, the continued interest over days and weeks, elders faithfully
coming to the hospital to pray, visitors from afar, the rotation of friends
and family who sat and supported me did not go unnoticed. Who is this guy?
they began to ask. There were several Christian doctors and nurses who were
eager to answer their colleagues questions and proclaim that Gerard was a
Christian and explain his beliefs. God is in the business of using
ordinary people.

I believe in answer to Anessa’s prayers that her daddy
would “wake up before her birthday”, Gerry began to emerge from the coma on
May 29th. I realize now my preconceived TV-like version of coming out of a
coma was a myth. It is a long, slow process... first his foot twitched,
days later his eyes opened, he then began tracking with his eyes. As
Christians we believe in a spiritual re-birth, but Gerard has almost
encountered another physical re-birth. He has had to learn everything
again, physically going through similar stages of infancy, through
toddler hood, etc. His memory and speech were largely damaged. It was with
great joy we rejoiced over every step and progression in Gerard’s healing
such as walking, eating, feeding himself, daily care activities.

The next several months found us at several area rehabilitation hospitals, lots
of daily battles with the medical group regarding premature discharge with
no workable plan. Every day seemed like a heated chess match with the
tyranny of the urgent... action/reaction. I never enjoyed chess... one must
calculate out too many moves in the future to be any good... I’m more a “one
move at a time concrete person.” I would pray “why can’t this be easier?
God you can control all things including these stubborn insurance people, I
can’t see where they are going!” Now in hindsight, and because of all the
problems, Aetna stepped in and superceded the medical group’s directives.
Precisely because of the “problems” God orchestrated to make it possible,
on HMO insurance $, to attend the best possible treatment. Gerard’s current
placement is at the leading brain injury facility in the Western US, Center
for Neuro Skills in Bakersfield. (Note, less than 2% of patients are there
on insurance coverage and the cost is upwards of $50K a month... this truly
is a miracle.)

At CNS, Gerry has progressed well. Physically he is
getting stronger with some range of motion problems in his shoulders. He
now has specialty glasses with prisms, but his vision is still poor and he
can’t read. His endocrine systems is off and needs evaluation. He can
hold conversations, play the guitar and piano, recognize his family (though
names are still difficult). He has deficits in word finding, understanding,
and initiating the next step. Now with daddy, we were playing the same
“guessing game– do you mean this?” that we were doing with the girls earlier
in the year. To the amazement of staff he has not shown signs of depression
and stays rather positive.

I’m getting the crash course about brain injury.
Often brain injured patients can’t take a lot of over stimulation
and because of frustration they “simmer” just below the boiling
point... and can erupt in anger. Continue to pray about behavioral issues
and anger due to the injury. It can take several years for the brain to
heal. The repetitive cognitive therapy continues to work on building new
pathways or re-connecting old ones. The pain, the daily struggle and the
uncertainty of how far he will get before he plateaus is a constant concern.

The Gerard before the accident, is not exactly the same Ger as today.
Our marriage vows were “for better or for worse.” Of course there is
mourning over the “death of the old Ger” and anticipation in learning to
love and committing to love the new Ger.... and yet the real Ger is still
in there. I have always been grateful that Ger’s heart has been stayed on
Jesus. At the core of his being he remains the same. He prays the most
eloquent prayers and enjoys the preaching of God’s word. I expect there to
be times of better and bumps in the road as we travel our new life together.
I am often amazed and saddened by the “quality of life” argument that is out
there today. They tell me 97% of brain injury patients end up in divorce.
How easily we as a society have been fooled into believing our own pleasure
is all that matters. I anticipate that Gerry will be discharged to home
within the next few months. We are on a 10 day re-evaluation process.
There are a lot of unknowns. Pray for this transition, his adjustment, the
girls adjustment, the practical plan of who is going to supervise Gerry
while I’m at work, for financial matters if I can’t work and to get into a
peaceful rhythm of living. I am trusting He will reveal His plan in His
time.

The blessings I have seen this past year are too many to
enumerate. His faithfulness in all the details of the past give me
confidence that He will work out the future. The Body of Christ has been a
fantastic witness to a watching world. “They will know the love of God by
the love you have for each other.”

In those first few weeks I cried out,“I need prayer Lord, I don’t know how
to pray.” Then without my real understanding at the time God brought those
willing to send e-mails on my behalf to literally around the
world and prayer warriors were called to duty. God has lead me every step,
through every dilemma. “I home-school Lord! Gerry taught
the girls for half of the day... now what?” The Watkins
family stepped in and lovingly engulfed my girls into their family. My
girls lived with and schooled with them. It was such a blessing for them to
have a safe, calm, warm-hearted, country environment amidst the storm. Who
would put their own lives on “permanent disrupt” to come to my rescue? I
still marvel at the love displayed to me. “Lord, I needed to work to keep
things afloat” and my home school friends and neighbors opened their homes
for Saturday play days and kept my lawns trimmed. My church family
faithfully provided meals for many, many months, well past the obligatory...
let’s help out phase. “Lord, my house is so small it’s hard for people to
come and help me... and there is nowhere for the girls or Gerry to retreat
for quiet times.” Then Gerry’s sister Gina and her husband Steve, helped us
purchase a house in Aguanga, 25 miles east of Temecula. The first idea came
about at Thanksgiving and then 2 days after Christmas we were moved into the
new house. The moving crew.... family and friends, came at 7:00 a.m. and we
had so much help that by noon everything was off the truck. It was the
smoothest move ever! The new house is ideal. It is a single story in the
country on 3 fenced in acres with room for the girls to roam. The Watkins
are adding a bedroom for the girls; and energetically tackled painting and
trim projects to make it a comfortable home.

Anessa is enjoying 4H Horse Club and “shared” Avery Watkins’ horse Sonny to ride in her first
horse show. Polina loves dolls, computerized stuff and is becoming a good
reader. Tatiana still has a song in her heart, is learning to read and is a
good cuddler. We have a new golden lab puppy “Duke” which is adored by
all.

I didn’t intend to be so long winded. Much has happened! We
thank all who have helped us this past year. Please keep in touch. Know
that silence from me doesn’t mean that I don’t think about you!

We love you,
Lori, Gerry, Anessa, Polina & Tatiana

Update 2/12/05

2005-02-12T22:22:00.000-08:00

2/12/05

Dear Friends & Family,

Lori and her Mom and my Mom and I just returned today from Bakersfield, and I’m sending a much needed update!

The insurance company has set the next review for Friday, February 25th. So, we thank you for your continued prayers that Gerry would be able to remain at CNS through the promised 100 days (that would be until April 10th) as long as he continues to improve, which he has. At the last review on 2/8, the therapists reported good progress in all areas including cognitive, although in that area, the progress is slower. We also learned that Gerry’s endocrine system (which affects hormones, behavior, etc.) has been greatly affected from his injury, and he will be seeing an endocrinologist for further tests and treatment. We pray that Gerry would be helped by this testing and treatment.

We had some great conversations with Gerry this weekend, and all of us noticed that Gerry is much more aware of his situation and where he is at in his recovery. He talked of the difficulty of having to comply when you don’t always trust your caregivers (the young RA’s). Lori told Gerry how proud she was of him for not having any outbursts this week, and exhibiting self-control. Gerry was grateful that she had noticed, and said “Yeah, it takes “salvation down to my ankles” to do it!” We really laughed at that one! He also said he wants Lori to continue to hear that he’s not having any more outbursts, and that even though it’s so hard, he’s really trying to persevere. We are so proud of him! He also showed much more initiative in things. For example, he pumped the gas for the car. He also was more aware of others, like holding the door for us, and helping my mom with her suitcases, etc. He did really well when we took him out to dinner, and went shopping in several shops…he had no problems, even with all the noise and the large Friday night crowds! He talked about coming home, and we could see he is almost ready. Praise God for his goodness and faithfulness!

During our visit this weekend, we received some great training to help us better understand how to deal with the brain injured person. We learned how to handle specific situations that will arise and how important structure will be in Gerry’s daily life. With traumatic brain injury, the person often can no longer reason well, has difficulty making decisions, and often cannot think through the basic tasks that we all take for granted every day. We learned so much…and in just a couple of hours!

We know at this time, Gerry must always have someone with him for safety reasons. We continue to pray (and ask for your prayers) that the Lord will bring Gerry past this point, but Lori must now plan for Gerry’s 24-hour supervision because he could come home at any time. Financially it is not an option for Lori to hire someone to watch Gerry. She also knows that Gerry is well aware that he does not want to be baby-sat, and our hopes are to find a solution where he will feel increasingly independent and find some fulfilling activities/volunteer work for him. Initially, Lori’s thoughts are to change her schedule to work four 8-hour days, Mon-Thurs. She hopes to take Gerry in to work with her (he used to work there, thus, he will feel that he is helping out in the office) and have him work in the mornings in one of the empty offices. Gerry would have someone with him to do office tasks (filling envelopes, filing, etc.), and doing simple cognitive therapy with him. My mom, Lori’s mom, Freda, and I will be helping in this area. Lori’s great ongoing need will be to have additional help in any area or time slot that people are able. Of course, this is for friends and family that live in the area. In the afternoons, Lori hopes that people will be available to take Gerry along for things that they already have planned and/or scheduled, and wouldn’t mind taking him along…here are some ideas:

*Out to lunch
*To a movie
*To an art class
*To a short outing
*Grocery shopping
*To the park
*To a retirement home for him to play his guitar, sing and entertain the residents (which he used to do, and can still do!)

We are open to any other ideas! If you know of an organization or company that is willing to have Gerry do some volunteer work while providing someone to “shadow” him, please let us know! We understand that we have had almost a year to learn about brain injury. We understand there can be an unknowing fear about what to expect, and we are wholeheartedly prepared to share our knowledge (the condensed version, of course!) so that those who are willing and able to help will feel entirely comfortable being with Gerry and/or taking him places. Gerry loves outings, and he does extremely well! As he always has, he loves people, and he is still the same Gerry, only with a new disability. We have been so touched by the help, prayers and encouragement of our friends, and we now ask prayerfully that God would open the doors for the help that the Marinucci family needs so badly now and in the future. As always, we thank you for your prayers and for any suggestions or help that you may be able to offer.

God Bless you all!
Gina

Update 12/20/04 from Gina and Lori

2004-12-21T23:14:00.000-08:00

12/20/04

Dear Friends & Family,

I'm passing on an update Lori sent last week, and just want to add a note to say that our weekend visit with Gerry for Christmas went very well. Lori and the girls, myself, my parents, my sister Carla, nephew Tony and brother Steve were all there, so it was great to be all together. Sunday Lori and the girls, myself and my parents arrived early to take Gerry to church, and the service was excellent! It was also wonderful to meet the good people of this church who have so welcomed Gerry, Lori and the girls.

Sunday was a very full day for Gerry, complete with the whole Marinucci clan...noise and all! After church, we took him out to lunch, and then went back to his apartment where we met the rest of the clan. Gerry opened up several of his presents for Christmas, and he played his guitar while we sang Christmas carols. At this point we realized Gerry had much too much stimulation, and needed a break. We are learning that we can enjoy times together like old times, but we need to allow breaks inbetween for Gerry. Today Gerry was very alert, and Lori reported that he went to pick out his new glasses which will greatly help his vision. When we left, Gerry was quite emotional while saying goodbye, especially to Dad & Mom. It's good that he is aware of his feelings, and able to express them. Please keep him in your prayers over the holidays while he is away from family, as we will not be able to visit him until after the 1st.

Lori met with Gerry's case manager who said that they would not be able to fully evaluate Gerry's prognosis until sometime in January, however, at this time Gerry does still require one-on-one supervision (not for medical needs, but for safety reasons and to be cued for basic tasks and self care). She strongly recommended that Lori start to look now for someone to supervise Gerry after he returns home...to prepare for the worst case scenario. We ask for your prayers specifically that in the next few months as Gerry continues his treatment at CNS that he would surpass expectations and not need constant supervision. I know this is a great concern because the ramifications are great. However, we trust that God is in control, and that His will be done.

Your prayers are also appreciated for Lori and the girls as they move to Aguanga the week after Christmas. I will be sending out our holiday greeting after New Years, so I want to say now that we wish you all a Blessed holiday with your family! You are all in our hearts this Christmas season as we celebrate Jesus birth!

Love,
Gina

----- Original Message -----
From: Jonathan Hoos
To: Marinucci -Lori's email list
Sent: Tuesday, December 14, 2004 10:15 PM
Subject: Marinucci No. 69

Dec 14, 2004

I had my monthly conference with CNS and the insurance company today and I
thought I'd pass along some of the good news. As a result of his visit with
the neuro-ophthalmologist, Gerry has been prescribed glasses with a prism to
assist with the double vision. Continue to pray that Aetna would reconsider
their position of "experimental treatment" and agree to pay for further necessary
treatment.

Ger's meds have been adjusted and he is sleeping better, but more
importantly, he has not had any incidents of hearing auditory voices. Gerry
has expressed to me "it is good to be back in the land of the living" and seems
more coherent. He saw a ENT physician who confirmed no damage to his vocal cords
or ear drums. Gerry's voice is still hypo-nasal and he doesn't sound like his old
self which bothers him a lot. I'm told they will work with his soft pallet,
breathing and relaxation exercises during speech therapy. Pray that his
memory will allow him to get the most of this treatment. Gerry seems enthusiastic
about working on his voice and is very cooperative, especially when they sing.

He continues to have orientation problems and confusion, but we are seeing
progress in this area. As he begins to verbalize his adjustment to his
disability and has more understanding, it is difficult to accept. He is
very concerned about how he is perceived by others and they are working with him to admit his deficits and accept help. The counselors don't see Gerry evidencing the
normal expected depression as they tend to see in others during this stage.
His counselor attributes this to Gerry's faith. Gerry has told him, "it is God
who gives me my lot, so you get what you get, I'm going to deal with it in
grace." When asked if this trial is a challenge to his faith, he responds
"no, no, it has made it stronger." I am grateful for this fact! May God
continue to encourage him in his position in Christ.

Gerry's physical and verbal aggression has increased, however this is to be
expected because they are "challenging" him in his deficits. He has had a
few outbursts, and twice refused to board the bus from the clinic to return home. He has thankfully calmed down rather quickly. They consider these outbursts relatively minor with 94% compliance. The goal is no outbursts at all.

At the apartments he is making cold meals, beginning to cook on the stovetop
with verbal instruction and prompts. While friendly, he is not initiating
interaction with other clients. He does initiate a lot of his self-care but
needs to work on planning ahead and expecting what activity will come next.
Because of his vision problems, the check list system is not working well.
We are hoping the glasses will assist him in following a written schedule. He
enjoys receiving e-mail, which are read to him and he orally responds while his
aides type out his messages. He is playing his guitar and electric piano
and can pick-out a song when requested to do so. He generally is eager to go on
outings and has only refused a few activities.

On another note, Gerry's primary care physician terminated his care of
Gerry. I sought to select another physician within the same group, who I was
informed had room in his practice, and now I'm being told his practice is
closed. I will attempt to get a physician within the same group to accept him as I
want his current treatment plan to continue as promised. If I were to go with
another group, I would need to re-qualify his current placement at CNS all
over again. Please pray that Gerry will not be "blackballed." I realize the Hemet
Group wants Gerry off their dime, however, they are obligated to provide him
a physician. With everything going on, I would rather not fight this battle
right now.

Gina, Carla, Ger's parents, the girls and I intend to visit Gerry this weekend
for our Christmas celebration. Lord willing we will be able to go to church
together Sunday morning. I must get home for a midweek work commitment,
then Christmas and then we are planning on moving the Monday following Christmas.
It will be a whirlwind! I'm thankful for all of those who are helping to make
this move happen. I couldn't do it without loving friends and family.

Merry Christmas to all my family and friends! May Christ be glorified in
all things.

Love, Lori

Update 12/5/04

2004-12-05T22:29:00.000-08:00

12/5/04 9:32pm

Dear Family & Friends,

Passing on an update from Lori. I just spoke with her to see how the weekend visit went with Gerry, and she gave good reports. She said the CNS notes showed that Gerry has been getting a bit feisty at times...probably tired of being constantly watched & told what to do. We thank you for your continued prayers for his spirit, as he likely has several more months there (God willing, with his continued improvement).

Lori also said he did wonderfully when they took him out to dinner, even when he had another episode of his jaw locking open. He did not get agitated, and after some time was able to fix it himself. On Sunday, they took him to church, and Lori said once again the pastor's teaching was phenomenal, and their new church friends very kind and welcoming. What a blessing to have Gerry able to receive such wonderful teaching when he needs it the most. She said he was so jubilated by the sermon, listening very intently and commenting appropriately. Lori spoke of how incredibly encouraging this sermon was, and afterwards she asked Gerry what he thought about the pastor's teaching, and he said "He smoked' it!", and "It was so good for my soul!" Praise God! As always, we thank you for your prayers!

Love,
Gina

--------------

Subject: Marinucci No. 68

Dec. 3, 2004

Gerard is making slow, but steady progress in his therapies. I have been
somewhat removed from the day to day events because of the distance and also
because there is no need to "micro-manage" every detail! It has been
refreshing to have Gerard in a facility that knows brain injury and this time has been a respite for me.

He has been participating in all the events at the apartments and it is
reported that he is very "social" (surprise, surprise!) Four-five times a week he goes out on evening activities such as the movies, hockey games, library, church, etc. He seems to enjoy these events and travels well. He has had a few "flare ups."
Monday, after a good day of therapy, when he went to board the bus, he
stated, "The bus is not safe, I'm not going on it." He was agitated when the RA
attempted to direct him, but stayed on the bus.

I plan to take the girls, along with my brothers' family for a visit this weekend.
I am thankful for the PCA church and those, new friends (friends of friends) that I have met in Bakersfield that have offered to come and pray, read scripture and sing
hymns with Gerard. God's family truly is loving!

On another note, Gina & Steve have offered to co-purchase a home in Aguanga
(30 min east of Temecula) out in the country. It is twice the size of my
current home, on 3 1/2 acres, in a gated community, with a completely fenced
yard, nearby fire station with a 24 hour paramedic, and a community pool. God's
timing is always surprising! (Should you know someone who is looking to purchase
a two bedroom home in Murrieta, let me know!)

I have consulted with family, my elders, Gerry and the counselors at CNS, and
they all believe this would be a good move for us. I am trusting God for
his guidance and covet your prayers for all the details a move requires, with
Christmas and visiting Gerry, it seems overwhelming. But what I have
learned this past year is - one day at a time and step back and watch God work in the
seemingly impossible.

Please pray I will keep my eyes fixed on Jesus and not miss the opportunity
for my girls to understand the beauty of His incarnation and the peace for today
as He still dwells with us by His Spirit.

Love, Lori

11/8/04 update from Lori

2004-11-08T22:41:00.000-08:00

11/8/04
Dear Family & Friends,

Passing on an important update from Lori. As always, thank you for your continued prayers & support!

Blessings,
Gina

------------------------------------

Thanks for your prayers and concerns. Last week was a whirlwind... fighting
the insurance company and then an immediate turnaround. God is faithful.
I got word of the insurance company's approval about 3:00 Wed that they wanted
Gerard midmorning on Thursday.

Gerry traveled well to Bakersfield and the transition went smoothly. He
expressed concerns about being an embarrassment and being sent away; pray
for his understanding and fortitude for his own rehabilitation. He is disoriented
and doesn't realize he is in Bakersfield, far from home. He continues to
"wait" for us to "swing by for a visit when we get a minute or to take him to
church." He refused to get in the van to take him to church Sunday because
"his wife was coming to get him any minute." Pray for his orientation.

Centre for Neuro Skills has a different concept than any hospital or rehab
program that I have experienced. They believe in the concept of a "rhythm
of living" where therapy programs and residential care closely simulate
real-life situations Gerry will face on discharge. The goals stress independence,
self-reliance, and social control. The founder's brother and our case
manager have family that experienced brain injury.

Gerry will reside at the apartments, about 30 minutes away from the clinic.
This is a regular apartment complex that the Centre owns and is not a
locked-in facility. However, they have a security system similar to stores
with someone monitoring a bank of cameras and staff with walkie-talkies that are
continually monitoring the grounds.

At the apartments, there is a very detailed program on a point basis that
breaks down all the tasks of daily living to multiple steps. Gerry will be
graded on his initiation of task, and proper completion, of each step. He
has an RA who stays with him at all times, recording all behaviors, providing first
a verbal cue if necessary, physical/verbal cue or doing the step for them if
he can't complete same. This information will be input into a computer program
to prepare his own individualized treatment program. The RA also helps with
continuous and immediate feedback. His deficits will also be incorporated
into treatment tasks at the clinic.

Gerry is given a certain amount of money weekly for groceries and
activities. He is expected to prepare his own meals, plan a menu, shop for groceries,
budget monies, do his laundry, self care, cleaning, time management, etc.
Gerry packs his own lunch and takes a Centre bus and "commutes to work" at the
clinic. At the clinic he has 4 therapy sessions and one hour of counseling a
day. He then commutes back "home", has an hour of rest/recreation of his choice
and then preps his evening meal, does laundry, chores and then several times
a week goes out for a community outing, i.e. movie, hockey game, haircuts,
bowling, church.

Gerry will not have a lot of down-time, however, daily he is to check his
mail box and e-mail. It is always more encouraging when there is mail in the
box.

Please e-mail him. Include in your note,
how you know Gerry and pictures are also welcome. They recommended a few weeks
of transition before he can accept telephone calls from friends.

I am also encouraged that they strongly consider family participation
important and strive to keep the family educated in the treatment program,
working with expectations, fears, etc. We can all participate in counseling and
perhaps even have family sessions via video-teleconferencing. Pray that we will all
get the help we need to make the long term transition to Gerry's disability.

Pray that the children and I can adjust and have peace during this "new"
stage with Gerry so far from home as we entrust Gerry to this program for
the next 4 months. I am further encouraged that a follow-up survey with all CNS
clients, 6 months after discharge, showed 94% of clients maintained or
improved discharge levels. Continued long-term discharge services are also available
to us.

Lori

"Peace I leave with you, my peace I give unto you; not as the world giveth,
give I unto you. Let not your heart be troubled, neither let it be afraid."
John 14:27.

Update 11/3 from Gina

2004-11-03T22:20:00.000-08:00

Dear Family & Friends,

We are so happy to pass on this incredible praise report, and thank you for praying with us!

God Bless,
Gina
----- Original Message -----
From: AGA News
To: AGA Group 04-05
Sent: Wednesday, November 03, 2004 9:09 PM
Subject: Marinucci No. 64

Nov 3, 2004

Lori has great, Great, GREAT news!
Gerry has been approved by Aetna insurance to go to Bakersfield for additional rehabilitation for the next four months. Lori praises God for this development. Lori is very happy with this outcome and gives the glory to God. Thank you for your prayers and thank God for His kindness in this situation.

Gerry will be transferred tomorrow, Thursday, and Lori and Gina will be driving. Her prayer request is for traveling mercies and the transition. Please pray that Gerry will adjust well to his new surroundings and understand that this is for his benefit immediately and for the family in the long run.

Lori is grateful for all of you that visited Gerry in Escondido and as of early Thursday morning there is no longer any need for you to stop by.

Lori and the family thank you for all your care and all your prayers.

---------------------------

A note from Steve: I talked with Gina and Lori recently and both were really hoping that Gerry would be sent here because the evaluation the facility did with him showed he'd gain much from being treated there. So this is very good news.

Update from Gina 11/1/04

2004-11-01T23:04:00.000-08:00

11/1/04

Dear Family & Friends,

Last week Gerry came home again for the weekend from Escondido. The Bakersfield Centre for Neuro Skills came out to evaluate Gerry for their renowned program. The evaluation was close to 4 hours, and Gerry stayed alert and focused for the whole thing. We learned more in this one evaluation than we have in the last 8 months! We believe that the Centre for Neuro Skills is where Gerry will get the treatment that he needs with the professionals who specialize in brain injury. Their recommendation is for Gerry to stay inpatient at the Centre for 4-6 months. They stated that Gerry is an ideal candidate for the treatment they provide, and they are hopeful that upon completion, Gerry could stay by himself, and possibly handle the tasks & responsibility of employment.

This weekend was again a difficult one with unfounded agitation, aggression and outbursts. The girls were hardly at home, and Gerry still lacked patience and understanding about his inappropriate reactions. This weekend was an experiment in our minds to see if his behavior from last week would be repeated.
The fact that it was confirms without a doubt that Gerry is not ready to be in his home environment until he receives the treatment he needs. Also, Gerry has been talking about hearing voices, and we ask for your prayer as we don't know if this is from his brain injury, or a psychotic result from his new medication. We pray for answers and the right treatment, and for Gerry's peace as he struggles through this difficulty.

God is working through these difficulties...a higher-up supervisor at the insurance company verbalized to Lori that they have not handled Gerry's claim properly, and have given verbal assurance to see what they could do to convert the 'skilled nursing home benefit' to pay for therapy for Gerry. Lori has gotten verbal assurances before that have not gone through. Bakersfield is submitting their evaluation to Aetna, and said that Aetna seems to be trying to work with them. Bakersfield also noticed that Lori and Gerry's insurance possibly allows for 60 days of treatment per calendar year, which means if Aetna approves Gerry to go to Bakersfield asap, Gerry can benefit from close to 60 days of treatment before the end of the year, and hopefully get another 60 days of treatment in 2005. Again, we see God working greatly as the insurance previously would not even consider Bakersfield, and your prayers for this miracle are much needed and so appreciated.

Lori stated tonight that she believes it was necessary to go through the many difficulties to get to this point where the insurance realizes this treatment in Bakersfield is necessary for Gerry. We know God has used all the circumstances for His purpose and pray for His continuing provision. We ask you to pray along with us for the door to open for this treatment as soon as possible (hopefully this week), as the outcome would dramatically change for the better the future for this family.

Thank you to all for your prayers, to those who have graciously committed to visiting Gerry in Escondido, to all of you for your endless support and encouragement.

God Bless you all!

Gina

A new news story on Gerry (with picture)

2004-10-31T11:07:00.000-08:00

The Riverside News-Enterprise ran a follow-up story on Gerry Saturday. Gina tells me they came out and interviewed him and Lori and they took many pics of Gerry, one of which is online. It's a very dark, moody picture, but he looks quite good in it. The story can be found here. (You may need to register to read it, but registration is free.)

Update from Gina 10/24/04

2004-10-24T22:56:00.000-07:00

Dear Family & Friends,

As Gerry's week at home progressed, the difficulties increased, and the Marinucci family is in urgent need of prayer.

First let me say that Gerry did so well for the first half of the week or so. He has been so alert at times, and we have been amazed at how well he sometimes communicates with his unique sense of humor. He truly has come such a long way, but we realize that sometimes setbacks do occur.

I mentioned in my last update that he was not taking the rest periods that he now needs due to his injury. This lack of rest only increased his agitation in several ways as the days went on. Any suggestions or direction from his wife to rest or relax, no matter how gentle, were not received well. The same resulted when Lori or the girls made a gentle mention of "lunch will be ready in a few minutes" in order to get him to wait because he has the most unusual ravenous appetite. (We don't know if this is a side effect from a prescription or a problem discerning real hunger because of his brain injury). This week and a half at home has confirmed our beliefs that Gerry needs much more therapy, more advanced than he has had thus far.

Last night, Gerry even refused to go to bed at night and stayed on the recliner in the living room. Lori checked on him several times, but he still would not come to bed. She waited in the bedroom with the T.V. on to keep herself awake so that she could check on him again. But she was so exhausted, she fell asleep. At two o'clock in the morning, the doorbell rang, and it was the police with Gerry. He had walked probably a half mile in his pajama bottoms and t-shirt and bare feet. He was disoriented, and only knew his and Lori's first names, and thought he lived in Santa Clara. If it weren't for a teenage neighbor coming home who spotted Gerry on the side of the road with the policeman, who knows what would have happened to him. After the policeman left, and Lori asked Gerry what he was doing, he said he was going to work on his bicycle. The next morning when she questioned him again, he said he just wanted to go for a walk to watch the traffic. (Lori said when Anessa was little, he used to take her for walks and they would count the different color cars) He did not understand the unappropriateness of leaving the house in the middle of the night and not telling anyone, or the fact that he is not safe by himself yet. This experience has been very scary for Lori and the girls, and probably for Gerry, too.

Today we took Gerry to his new rehab living center, which is in Escondido. The plan was to have Gerry stay from Sunday dinner time through Wednesday early evening. This way, Lori could work her 3 ten hour days while the girls are also graciously cared for and homeschooled by dear friends of theirs. Then the girls and Gerry would be home from Wednesday evening through Sunday evening.

May we ask you to join us in prayer to lift up this dear family for the following needs:

***Lori's greatest need and request is for those of you who know Gerry and live in the area to please help out by visiting Gerry. This is the only way she will be able to concentrate on getting her hours in at work, so that we the family can be fully available to be there for her and Gerry and the girls on the weekends. We hope and pray that maybe a rotating visiting schedule can be set up for visitors (Sunday eve , Monday, Tuesday & Wednesday afternoon.) so that hopefully visitors can go once a month or once every two months. Mon,Tues, & Wed. are the most important days.

***Please lift Lori up in prayer for strength and wisdom as she faces so much. She will be on the phone all week battling with the insurance company to get the right treatment for Gerry. The insurance co. discharged Gerry without a further plan for treatment, which almost turned out to be disastrous this week. Lori is paying for Learning Services in-patient care herself at this time because the insurance will not. We believe Gerry needs to see a Neuropsychologist, and pray that we will be able to arrange that this week before he is set to come home Wednesday so that we can have some important answers. Are Gerry's episodes of disorientation simply due to exhaustion (because he did not have this experience before)? Or maybe he needs to have another CT-Scan to see if there are any changes in the brain? And how can Gerry's agitation be dealt with? Through therapy, medication, etc.? We also know that we will need to get their home alarmed this week before he comes home again. The answers to these questions, and much more needs to be considered before we can continue with the plan to bring him back home for the weekend, or we may have to realize that he is not ready to be home yet. If that is the case, then we will need to arrange for full-time in-patient care without the help of insurance.

We believe that with the right answers from the right professionals, we can set up the treatment plan that Gerry needs to work through these very common symptoms of traumatic brain injury (TBI). We know that we are very blessed, as we've heard that agitation from TBI can be much worse than what Gerry has exhibited this week. We see how Gerry's fighting spirit has brought him back to us this far, and we'll keep pursuing the right help for him so that he can come home to his family for good. I know this was a long message, and thank you for your time and willingness to pray for Gerry, Lori and the girls. Your faithful prayers mean so much to us and we are so very grateful.

God Bless,

Gina

A new newspaper story about Gerry

2004-10-21T22:46:00.000-07:00

It's a touching column by North County Times/Riverside Californian columnist John Hunneman that ran in Tuesday's paper. You can find the story at this link. (Note: Registration may be required. Thanks to Gina for letting us know about the article.)

Update 10/19/04 from Gina

2004-10-19T22:07:00.000-07:00

Dear Friends & Family,

As I told you in our last update, Gerry was discharged from Ballard Rehab last Thursday. He was so thrilled to come home! He has been very alert, and basically doing very well, enjoying every moment of "freedom", and certainly enjoying "freedom" in the kitchen...the taste of real food! Lori has been trying to limit his "grazing" to keep him from gaining back the weight he has lost. We know gaining more weight would inhibit his mobility even more. Who can blame him after 6+ months of hospital food...God love him! I think after getting used to being at home, he will realize the need for moderation. Also, before his accident, he never was one to rest or nap. He was always "going" then, too. Well, things haven't changed! Gerry constantly wants to be on the go. But the challenge is that his body now NEEDS to rest here and there in order to keep functioning. Especially by the early afternoon, he gets quite tired. If he keeps going and refuses to rest (which is a daily struggle), he then gets grumpy and agitated, and can unnecessarily lash out at family members.

I also think that he probably feels that he has missed out on life these past months, and doesn't want a moment to pass him by. But we pray that he will soon understand that he will function better and enjoy life more if he allows himself the short rests that he needs. He still struggles to find the right words and in his communication. We pray that in time, and through the right therapy, that God will increase his abilities in this area.

Lori has also been allowing Gerry to do what he can for himself to see what he can do while also giving him the dignity of doing his own self-care. He is doing so much better with things like showering, etc.
Of course, Lori carefully watches him because he still struggles with his balance at times. He has that Italian stubborn streak in him, and won't accept help with his shaving. Once again, Lori graciously allows him the dignity to do it himself even though the job is not done evenly. Her loving support, patience, and advocation for Gerry to the insurance companies has been a tremendous example of selflessness and true commitment in marriage. What an inspiration she and Gerry are as they work together in the true meaning of teamwork!

Gerry's sense of humor is strongly in tact, as he jokes around in Italian or Spanish, with the perfect accents! He comes up with the funniest one-liners at times. Driving over to our house, he noticed the brand new Krispy Kreme Donut Shop, as he said "Oh, a new donut shop...I think I feel an addiction coming on!" Or, one day as he was struggling with his thoughts, he said something like "Oh, this brain of mine, I don't know apples from oranges!". I could go on and on with these....I told Lori she should keep a notepad with her and write a book someday!

Friends, the insurance company is still pulling last minute delays. We discharged Gerry last Thursday with no clear plan for his further treatment. Friday Lori took him to his local doctor, where we heard some positive news that Aetna wanted to recommend a two week trial for therapy only at Learning Services at Escondido. They had to work it out with the medical group and would let us know by today. Well, today, they got back to Lori and they are somehow conviced that Learning Services is "unsafe". We have no idea what they mean by this.

Lori has scheduled an evaluation tomorrow afternoon with 'Rehab without Walls', and will also be having the Centre for Neuro Skills of Bakersfield evaluate Gerry also. She only has this week off of work, and no set plan yet for Gerry's therapy because of the insurance rigamorole. Please continue in urgent prayer for God's clear provision and direction in this area. We know that the answer will be made clear at the right time, and trust in His plan.

Also pray for the remainder of Gerry's week at home with his family. He is so much enjoying his time with his family, and we want to carefully and prayerfully make decisions for his next step while getting him the treatment that he needs.

God Bless you all for your love and support, and for your faithful prayers!!!

Love,
Gina

Marinucci No. 59, urgent prayer

2004-10-14T07:08:00.000-07:00

Tuesday Oct. 12, 2004

Crunch time!

The insurance denied the referral to Escondido Learning Services at the last
minute. I have made a 72 hour appeal of their decision and await an answer
on Wed pm. Gerry is set to be discharge from Ballard on Thursday. His nurses
report "he is climbing the walls." Gerry is becoming more agitated as the
days go on as he verbalizes his desire to go home. He is trying to break out and
I receive regular calls from him as to when I am coming to take him home?
Pray his stay will not be prolonged as this will not help him.

I have modified the request for Escondido Learning Services, and now seek
treatment for physical, speech (cognitive), occupational therapy and
nero-phsyc appointments only. These are all benefited services to which Gerry is
entitled. The HMO requires the services be done within the network.
(Learning Services is out of network.) However, the current discharge plan is not
acceptable in that the two facilities they recommend in their network, don't take
outpatients and don't deal with brain injury patients respectively. Pray
they will reconsider and make a referral for out-of-network services to provide
for a workable plan to meet Gerry's needs.

Praise God that Aetna's subrogation department verbally indicated they will
not pursue the monies I received on my own un-insured's auto policy which
leaves me some money in order to private pay for in-care treatment at
Learning Services. Continue to pray I will in fact receive this decision in writing
soon from their legal department so I can be certain I can utilize these monies.

My desire is to have Aetna pay for the therapies and I would pay for the day
and overnight care at Escondido. Gerry would stay Sunday pm until Thursday
for his treatment and then come home for the weekends. Hopefully this time
at home will motivate him.

Please continue with me before the throne! May God be Praised. Love, Lori

Update (10/8/04) from Gina

2004-10-09T22:18:00.000-07:00

Alayna and Mom, Lori, the girls and I went to see Gerry yesterday (Thursday), and had a great visit. On a whim, we decided to ask the nurses if we could take Gerr out for dinner. It was fine, so it was a nice surprise for Gerr and all of us. We asked him what he wanted to eat, and he said PIZZA! We asked one of the nurses to recommend a good pizza place. Good recommendation....we went to Alfredo's Pizza & Pasta, and it was equipped with the checked tableclothes, the fake grapes all over the place, and gum stuck to the bottom of the tables & chairs! We were cracking up.

The funny thing was, that as we were joking around, Gerry started joking around in his Italian accent, and it was great! Things like this are coming back to him as sure as day, and he sounded like a true Italian! He loved the pizza, it was really great! O.k., it was not a great night for the diet, but we really had a great time with him. He is truly ready to move on, because when he's out of the hospital, he is in rare form, as happy as a clam, and it is great to see. Anyway, the whole way back to the hospital, he talked in combination of Italian and Spanish with the Italian accent! We couldn't always figure out what he was saying, but like Lori said, a couple of weeks ago, she asked Gerry to say a few words in Spanish, and he couldn't say any. So, it was great!

Of course, when we got back to the hospital, he didn't wanna go back in, and took a few minutes to sit in the van while Lori talked to him. He finally came back in. Lori told him we wouldn't be able to see him Fri. or Sat. (because we're all going on a two night camping weekend down near San Diego...I don't think she told him that, though), but that she'd be up to see him on Sunday. He was kind of down at that point and told her "You're never coming back to see me." He's just ready to be out of there. We all reassured him, and told him he'll be out of there next week.

Update (10/5/04) from Gina

2004-10-06T07:07:00.000-07:00

10/5/04

Dear Family & Friends,

Just a quick update to let you know that Gerry's weekend at home was a resounding success! Gerry did wonderfully at home on Saturday, and was able to go to church with his family on Sunday. Lori said he so much enjoyed greeting everyone, and enjoying the sermon and service at their church. Afterward, we met for lunch, which we all enjoyed...especially Gerry! By that time, Gerry was getting tired, so he and Lori were able to enjoy some time back at their house before we had to take him back to Ballard. He gave us no problems whatsoever in returning to the hospital, and his mood was so elevated from his time at home that even the hospital staff noticed his uplifted mood on Monday.

Lori confirmed that Learning Services from Escondido came to evaluate Gerry today, and he definitely qualifies for their program. They reported that Gerry was able to answer certain questions about his background, which was encouraging. They will be contacting Aetna to see what, if anything, can be worked out. There is still no official denial from Aetna, which we were told to expect weeks ago, and Lori's phone calls are not being returned. Ballard has tentatively set Gerry's discharge date for next Thursday, so we ask for your urgent prayers for God to provide answers and clear direction on what to do next. With no decision from the insurance company, Gerry will either come home with no plan for further treatment, or we may have to work something out with Learning Services without any assistance from insurance. Needless to say, these upcoming decisions are overwhelming for Lori, and we pray for clear direction and guidance.

We have seen God's provision in so many ways, and trust in His perfect plan! Thank you all for your faithful prayers!

God Bless,
Gina

A phone call from Gerry (10/3/04) from steve

2004-10-04T22:46:00.000-07:00

As Gina reported in her last update, Gerry was allowed to go home for a day Sunday. Lori told me he attended church, was introduced to the congregation (something I would have loved to see!!) and sang hymns during the service.

A little later in the day, Gerry called me after taking a nap. I'd been told that he'd been making more progress and sounded even better than he did when we saw him in August. When he came on the phone, I was surprised and amazed how much of the old Gerry was on the other end. He's still not all the way back yet, but his progress continues. We talked for a few minutes and he asked me how I was doing. He told me he loved going to church again. I told him he sounded great, better than he did when we'd seen him. It'll be a while before we visit him again, but it was great to talk to him even for a few minutes. I'm pulling for ya, Gerry.

Update on Gerry 9/29/04

2004-09-30T22:29:00.000-07:00

Dear Family & Friends,

I'm happy to be sending an update with quite a bit of news to report. We see God's hand at work in many ways, and we are so grateful for your faithful prayers.

On Monday we took Gerry back to Riverside County Regional Medical Center, where he was first admitted after his accident, to finally remove the braces from his teeth. As Lori mentioned in her last update, we went a couple of weeks before, but Gerry had an incident of low blood pressure and collapse. So, we were very happy that this time it was "Mission Accomplished"! The braces were removed, and although it was a very painful procedure for Gerry, and a long day, he did remarkably well.

Because of the low blood pressure incident, the doctor removed Gerry from all medications that can cause low blood pressure. So far, he has not had any further problems. Gerry has been having periods of frustration or agitation, which is a result of his brain injury. The hospital was putting him on a strong prescription, Adavan, when they felt it was necessary. We noticed that this medication made Gerry very "loopy". It would bring him up, and then later he would drop way down, with his coherency being greatly affected, and even his physical balance and stamina.
We talked about it and both agreed that Gerry is not going to be able to learn to deal with those feelings and cope if he is just medicated through those episodes. This will be especially important once he returns home and is out and about. Lori talked to the medical team, and this week they agreed to take him off of the Adavan. They will now use other measures to help him cope, like getting Lori on the phone, or putting on the music that he loves, or watching a family or church video that we have at the hospital for him. Gerry was thrilled to hear that they will not be giving him the Adavan anymore!

Another praise report is that Lori felt Gerry was ready for an overnight pass, and she was able to arrange that for this Saturday night. She will pick him up in he afternoon, and bring him back by Sunday evening. Lord willing, Gerry will be able to worship with his family at their own church on Sunday! When Lori told Gerry he was coming home for one night, he was overjoyed! This may be a lot of stimulation for Gerry, so for those of you at their church, the only thing we want to mention is to keep conversations with Gerry short. We pray for a successful, enjoyable home and church visit for Gerry and pray that he will return to Ballard willingly. Lori has been talking to him about his remaining time in the hospital as "his job" to learn the skills he needs to come home soon.

These past couple of weeks we are seeing an increase in Gerry's understanding, and also his emotions, which is all good! He has been able to communicate his feelings. At times, he has confided to Lori about how difficult things have been. He has explained his frustration, and when she questioned him further about how he feels, he said, "I feel like a black in the South". Lori said, "How does that make you feel?" And Gerry replied, "It's hard because people think I'm stupid." It is so good that he is able to communicate these feelings! In our family visits, as we joke back and forth with Gerry, we often see great clarity and alertness. He loves to lead in prayer, and we see great clarity there as well. He is now communicating that he wants to come home. He calls Lori on the phone and says "When are you coming, at 2 or 3?" or "When are you coming to take me home?" Another time on the phone he said to her "Hi Doll, love ya', babe!" When we were at his appointment, he went up to the desk and asked why they hadn't called his name yet. Seeing these totally appropriate responses has been very encouraging to us. When we take him out for any reason, like out for the appointment this week, or for ice cream on other occasions, etc., he doesn't want to get out of the van when returning to Ballard. We do believe that his level of understanding is greater than he is able to articulate with words. We know that he is there, and we pray that in time, through therapy, or after returning to his normal surroundings at home, that he will be able to communicate better with words. At times, you can clearly understand his words (generally shorter statements). Other times, he can babble on and you will not be able to understand, partially because of the sound of his voice, and also because his of his inability to find the right words. He may not look quite normal or act quite like the old Gerry, but he is in there, and for those of you that will be able to see him, we know that you will treat him normally and embrace him with joy for the miracle that he is!

Gerry can also receive phone calls now, and he really enjoys hearing from family & friends.

He has improved at Ballard in many ways, and believe he is now ready for the next step. We are still on target for release in mid-October. There is still no official written denial from the insurance co. for further treatment at a transitional living center, and we are not sure why. The Escondido Learning Services where we would like him to go next is coming out on Tuesday to evaluate Gerry. Please pray for this and for acceptance into this program. If acceptance is denied, and our appeals are also denied, we pray that some creative financing can be arranged so that we can get Gerry the further treatment he needs. If all doors close for a transitional living center, then Gerry will likely be coming home, so we ask your prayers for the many upcoming decisions. Lori asks for prayer as she questions short term vs. long term decisions regarding Gerry's care, financial issues, job issues, and all the possibilities of Gerry's inpatient and/or outpatient care, their home life, and for God's continued miracle of healing for Gerry.

God's faithfulness is great! We have been amazed and encouraged by your faithful prayers!

'The Lord also will be a stronghold for the oppressed, a stronghold in times of trouble, And those who know Thy name will put thy trust in Thee; For Thou, O Lord, has not forsaken those who seek Thee.' Psalm 9:9-10

God bless you all!

Gina

Subject: Marinucci No. 56 (from Lori)

2004-09-16T21:47:00.000-07:00

Subject: Marinucci No. 56

Just a minute for a quick update. The Team/Family Conference went well.
The Ballard Team made presentation that Gerry is progressing well. They are
optimistic that he can improve with continued existing therapy and requested
a 1 month extension until Oct 14th which most likely will be approved.

There is still much negotiation, research and clarification needed for the
"next step" by all parties to determine if the insurance company is
responsible. Ballard will recommend the facility in Escondido, whereby I expect Hemet to do a formal denial and then I will start the appeals process. We will see
who pays for the next step-- insurance, Victims of Crime or private pay.

Today (Wed, 9/15/04) we took Gerard to his facial maxial surgeon appointment at
9:00 a.m. in anticipation of removing his braces. The surgeon was located in the
basement of the hospital where Gerry was in intensive care for 6+ weeks and
we're were excited about the prospect of him walking in to thank his devoted
doctors and nurses. We had some glitches regarding the referral
process, lack of payment by insurance so they were reluctant to do
further work, etc. Finally they were able to get us in and just prior
to any treatment, Gerry either had a seizure or an episode of very
low blood pressure and a spasm. At either rate, he ended up in the
Emergency Room. He resolved and following blood work, CT Scans
and IV's he was released. We were then able to go upstairs to say "Hi" to
the IC staff and then transported him back to Ballard about 5:00 p.m. I need
to make another appointment for the teeth/face for another day.

God is answering prayer in an interesting fashion according to my
perspective, but who am I the "pot" to question the "Potter"?
Continue to pray God's Will! So let it be.

Love, Lori

Update: Marinucci No. 55 from Lori

2004-09-13T09:39:00.000-07:00

This is an important week for prayer. I am grateful for my elders and family who have given good counsel and support. Specifically pray for:

1) The insurance company has given me a verbal denial for the next step of rehabilitation. It is Hemet Community Medical Group's intent to release Gerry home with limited outpatient therapy here in Temecula. However, when I telephoned the outpatient facility Hemet recommends, they don't handle speech/cognition and more importantly, don't even accept my insurance!!!! I will need to
file an appeal once I receive the written denial.

2) Interestingly, his treating doctors don't agree with the Hemet. Ballard believes Gerry should continue at an inpatient rehabilitation facility and one with an emphasis on cognition. They have recommended, and we have toured a facility in Escondido (30 miles south) that seems favorable.

3) Tuesday at 3:30 p.m. the Case Manager for Hemet is coming to Ballard for the team/family meeting with the purpose of encouraging them to educate/train me to have Gerry home right away. Ballard on the other hand intends to educate Hemet regarding brain injury and that further rehabilitation treatment is needed. Clarity and direction as a result of this meeting.

4) Gerry finally has an appointment with the facial surgeon on Wed morning. I am hoping they remove the braces but more importantly, for wisdom regarding the "lock jaw" episodes and a final determination, if further treatment is necessary.

5) Hemet Medical Group (making the denial) believes they can't convert the nursing home benefit in my contract to services for rehab because Aetna won't allow it. While Aetna (who only exists in a supervising capacity because of the contract they have with Hemet) claims Hemet has full authority to make such a compromise provision should they desire to do so. That Hemet will
reconsider, once the appeal is filed.

6) Guidance for whenever Gerry does come home. Should I continue to attempt to work, do rehab myself, bring in help, seek adult day care, take a leave from work, file for medical and/or other government programs etc.? For someone who has an expertise in the legal/financial aspects of spend down for medical benefits.

7) I am advised that both Hemet and Aetna may still have legal requirements they are not fulfilling, such as an ongoing obligation to provide rehabilitation as long as Gerry continues to progress (which Gerry has). Again, Ger's primary injury is his brain. Cognitive training is difficult to get on an outpatient basis. I have several potential contacts with attorneys regarding their
assistance in this regard.

8) If in fact Gerry comes home in the near future, that Gerry's primary care physician will effectively manage Gerry's care. There has been difficulty, tension and significant delays with the referral process between the doctor's office and Hemet. Communication has been a problem. That an acceptable rehab
treatment plan is immediately put in place and no lapse in treatment will occur because of these problems. That I can get an appointment to meet with Gerry's primary doctor prior to the first date available on November 9th.

9) Prayer for the girls and their adjustment to the next phase and for endurance, peace and good judgment for me. May God's will be done!

Thank you for your willingness to be faithful in prayer! Both Gerry and I can testify that our Living and True God hears and answers prayer. He does not turn a deaf ear to the cries of his children. We'll soon see what His great and good plan is for us!

Lovingly, Lori

Mon 9/6/04 from Gina

2004-09-06T20:17:00.000-07:00

Yesterday we took Gerry out to lunch for his birthday, which we all enjoyed very much. He has now been at Ballard Rehabilitation in San Bernardino for about 1 & 1/2 weeks. Lori and Mom met with his new doctor last week, who said that Gerry is doing very well. A few main points they discussed were as follows: What they need to focus on medically for Gerry is his memory and regaining physical strength and balance. The doctor felt that Gerry would benefit from a transitional living center upon leaving Ballard. The insurance company could try to release Gerry from Ballard at any time, but will hopefully keep him there for another 2-3 weeks as he continues to get stronger.

They have removed the "peg tube" from Gerry's stomach. My Mom asked if Gerry's voice will return to normal. The doctor explained that his vocal chords have come apart, which has allowed air to escape between them. This why his voice sounds very nasally and gravelly. In time, this problem could correct itself. If it does not, there is a simple procedure that can be done to correct it. The doctor, of course, cannot give us a prediction of how much better Gerry will get cognitively, stating that it was not good that Gerry remained in a coma for so long. However, he was very encouraged to see how far Gerry has come. In another 6 months or so, we will have a better idea about Gerry's prognosis.

Gerry continues to get agitated at times, which is a result of the brain injury. We seem to notice that he can get agitated when he is overstimulated or understimulated. Lori has noticed a recent increase in his agitation, and we ask for your prayers. She is struggling to decide whether it is time to take him home permanently or continue to push the insurance company to allow Gerry to go to a transitional living center for a couple of months. She is concerned that Gerry has gotten more depressed since his one day visit at home a month or so ago. He did so well that day, and she feels that if she takes a couple months of leave from work to help him re-adjust, this may help him more than his extended stay at rehab would. However, we are concerned about his agitation becoming a problem at times. Specifically, when out and about, he has refused to get back in the van more than once. This could make running necessary errands a problem, and add a great deal of stress to Lori and the family.

Lori went to look at another transitional living center in Escondido last week, and really liked it. Mom and I are going to go check it out tomorrow. We will be asking them what would be the benefits of inpatient care vs. outpatient care, etc. because once Gerry comes home to live, we know we will only have access to outpatient therapy from that point on. We thank you for keeping this in prayer, as Lori will need to be making this important decision right away. In addition, we sincerely hope and pray that after a few months at home, Gerry will be able to not only stay by himself, but also watch the girls. We know there is a possibility that may not be so. If that is the reality, Lori would need to hire a caregiver to help watch Gerry and the girls while she is at work. We are very mindful of all of these important concerns as we pray for God's direction at this critical time. We thank you for praying along with us, as you have so graciously done all along!

Blessings,

Gina

Happy birthday, Gerry! (from Steve)

2004-09-04T23:27:00.000-07:00

Nothing really to report, but we just want to say happy birthday to Gerry. His birthday is Sept. 5. Gina told us plans are to take him out to a restaurant for dinner. Hope it's a great day for you, bro!

A new pic of Gerry

2004-08-30T22:36:00.000-07:00

From Steve:

Here's one I took on our most recent vacation:

8/26: Gerry's move to a new hospital (from Gina)

2004-08-26T23:29:00.000-07:00

As you know, Lori has been working through the insurance company's red-tape to get Gerry accepted to the Transitional Living Center (TLC) at Casa Colina. After much struggle with them these past two weeks, they (Aetna's mgmt. co.) wanted to send Gerry to Ballard Rehab. Hospital in San Bernardino. This was a rehab that was already considered prior to Gerry's move to Casa Colina. We never considered Ballard a valid option because they do not have a separate unit for the cognitive therapy that Gerry needs. Plus, we had heard that it wasn't the place for Gerry from several nurses and therapists. So, when the insurance company again wanted to consider Ballard, we couldn't understand it. However, through this process, we found that Ballard actually seems to be a better option for Gerry at this phase of his recovery.

We went to look at it today, and found that they have a no-restraint policy. We feel that this is very important. At Casa Colina, Gerry gets his three hours of therapy a day, and the rest of the day, he has been restrained into his wheelchair, and we have found him several times in this manner just staring off into space. He was not getting the stimulation that he needs, and he is at the point where he wants to get up and explore or walk, etc. He will not improve if he is not allowed to move. Because of Ballard's no-restraint policy, they will have a "sitter" with Gerry to assist him one-on-one. We also liked the fact that Ballard offers therapeutic recreation in addition to his three hours of daily therapy. This is hobby-time with music or reading, or organized games that they offer for the patients, movie nights, community outings, etc. Just knowing there are things to do to stimulate Gerry's interests in his spare time will make a huge difference to him and us! They do not have a separate TLC like Casa Colina does, but they do have some of the benefits of a TLC. They have a training area with a kitchen, a home-like bathroom and tub, and bedroom area for the patients to familiarize themselves with to make the transition to home easier. And they do have a transitional apartment where the patient stays for a few days before going home.

All-in-all, we were quite impressed with Ballard once we saw it for ourselves, and we all (Lori, myself and my Mom) felt that Gerry would do better here than at Casa Colina for the next 3-4 weeks. During this time, we hope he will get physically stronger and more stable since he will be able to move about, and will then be better prepared for a possible stay at Casa Colina's TLC. We believe that God was not opening the door for Gerry's immediate move to TLC for a reason, and that is that he is not physically stable enough yet. His physical improvement had hit a plateau at Casa, and because of the lengthy restraints, his emotional state was suffering also.

We have been told that the insurance mgmt. company is working out a contract with TLC for Gerry's possible move there when he leaves Ballard. Please continue to pray for God's direction and provision for Gerry to receive the treatment he needs cognitively and physically so that he can return home with confidence to his family.

So, we returned to Casa Colina, and picked Gerry up ourselves, took him out to lunch (which he enjoyed immensely!), and brought him to Ballard. Gerry was absolutely jubilant to leave Casa and he was so lighthearted and happy at lunch and in the car. Although we had told him we were taking him to a new and better hospital, one step closer to home, he still had to adjust and to realize himself that he is not ready to go home yet. He did, and before we left, he was greeting everyone that came his way.

Sun 8/22: Gerry goes home (for a few hours)

2004-08-26T23:27:00.000-07:00

From Gina:

I think it went really well today for Gerry. He did get tired and moody at times, but we've got to expect that. It was a lot of stimulation, and he's just not used to it yet. I brought Mexican food over, which he loved, and then when we brought him back we went out to dinner at Farmer Boys across from Casa Colina. He loved that, too.

Lori and I talked about how just being at home was probably a motivating factor. He didn't want to use the walker at home, but the house is small enough to where he can grab on from thing to thing. Lori let him get up as he pleased to explore or whatever. He looked in the bathroom mirror at his teeth and braces and said "that's ugly". Lori explained we're working on getting insurance to o.k. taking them off. He got very emotional when we left the house, crying a lot, and said "I miss this house". He saw his neighbor for the first time, and recognized him and waved "Hi, Tim", while crying and waving goodbye. On the way back to the hospital, Lori played a gospel CD of Alison Krauss that he really loves, and the songs really touched him as he cried some more. Lori and he were talking back and forth about how he'll probably be able to come home once a week, and it won't be long before he's home for good, and also about how far he's come and that he's not gonna give up and to keep on fightin'.

All this emotion is really good, showing that he remembers his home and understands what he's missing and possibly what has happened to him as well. Lori was encouraged because other than the moments when he got moody, in general he remained very alert until we brought him back, which was after 7pm. It was a long day for him, so to stay that alert was great.

8/16: Another visit with Gerry (from Steve)

2004-08-23T23:36:00.000-07:00

While we were on vacation, we visited with Gerry ... we, meaning myself, my wife Sue and my son Phil. They hadn't seen him since he'd emerged from the coma, so it was something we were all looking forward to. As is the custom, he was introduced to all of us, though he remembered me without prompting and seemed very glad to see me. He recognized Sue and Phil when told who they were, and later remembered (without prompting) that he used to call Sue "Susan". We watched him go through his therapy and later, we moved to a piano where we tried to get him to play so I could sing "Bring It On Home to Me," a song he, I, Carla and Gina would sing whenever we could find an excuse to. It became obvious, though, after a bit, that therapy had worn Gerry out and he was having trouble concentrating. So we moved to another room, talked to him for a bit, then left.

It was obvious that Gerry had indeed progressed since I'd seen him a month earlier. It was a positive note to leave on...

Fri 8/20: Update: More prayers, please!

2004-08-21T18:53:00.000-07:00

Fri. 8/20/04 9:30pm , from Gina:

Dear Friends & Family,

There is still no decision by the
insurance company, so the good news is that there is no denial yet in
regards to Gerry moving over to the TLC at Casa Colina. But the new
management company of the insurance company is truly giving the
run-a-round in many ways, and much prayer is needed. They now
want Ballard Rehab. to come out and evaluate Gerry, even though Ballard was
ruled out before Gerry even went to Casa Colina because Ballard does not
have the cognitive specialization that Gerry needs. They have
also put off a necessary follow-up cat-scan, an evaluation by a
neuro-psychologist, and the removal of the braces Gerry had when
his jaw was wired shut even though all of these things were
requested by Gerry's doctors.

Casa Colina has requested that Lori take Gerry home for a day visit this weekend, yet
would not approve for Lori and the girls to take Gerry out for just a couple of
hours near the hospital (like out to dinner) for a trial run to see how
things went.

We know that God is in control, and that there is a reason for the delays and uncertainties. We ask for your
continued faithful prayers for approval for Gerry to go to TLC this coming
week so that he may receive the treatment that he needs at this time.
We ask for your prayers for Lori and the stress that she is under as she
deals with the insurance/management company to get the best care for
Gerry. Thank you all and God Bless you!

8/9/04 , Update no. 2: Urgent prayer request from Gina

2004-08-09T12:25:00.000-07:00

Mon 8/09/04 11:35 a.m.

Dear Friends & Family,
We ask for your prayer intervention today as Lori is having much difficulty with the insurance company today in trying to get Gerry accepted to the Transitional Living Center at Casa Colina. This benefit is not in her plan, and so the insurance company is taking it a step further and saying that if Gerry is well enough to go to the TLC, that it sounds like he is well enough to go home. Obviously, he is not ready to return home, and cannot be left unsupervised as of yet. There is much work to be done. Gerry needs the treatment that TLC will provide for 60 days to help him to regain his self-care skills, his independence, and his ability to go back home to his family. We ask for your urgent and faithful prayers today for God's intervention, and we thank you with all our hearts!

God Bless you all!
Gina

Marinucci No. 48 ... Aug. 9, 2004...from Lori

2004-08-09T10:13:00.001-07:00

Our meeting with the doctors went well on Friday and they are very encouraged by Gerry’s progress. They anticipate he will continue to improve with therapy. We see evidence that more and more memory and understanding are coming back. The entire team is in agreement that he would benefit from the Transitional Living Center facility at Casa Colina. Gerry would continue with the core 3-types of therapy but therapy is integrated around daily living skills that would benefit his transition to home. Again this is a much more regimented cognitive program involving scheduling and self-care tasks. All of the information has been sent to the insurance company and they are expected to make a decision early next week; PLEASE PRAY! It is a much more expensive program, but exactly what he needs.

His speech is becoming more understandable as he is working on strengthening his tongue muscles to force air through his mouth when he speaks and eliminating the "nasal" tone of his voice. Yes, the tongue is a muscle and must be worked after many months of no usage while in the coma. Memory is steadily coming back as well as emotions and reasoning. He is beginning to understand how many are faithfully praying for him and tears come to his eyes. Physically he is walking well with a walker, good gait and posture, and climbing stairs. He can now walk with family members during our visits. It is hopeful that soon he will not require a walker at all.

I am informed that the rehabilitation insurance benefit is for 2 months and then he would come directly home. Subsequently the out-patient benefit is for 60 consecutive days of out-pat therapy; (including weekends) and not days of treatment. The number of actual treatment days would depend on how many sessions you could arrange in that 2 month time period. I would request prayer that the insurance company re-consider and allow 60 visits for out-patient; not consecutive days. God had been faithful to this point, and again I seek His holy will.

For those who are visiting, he has now been moved to Room 6A. I will let you know if the insurance company agrees to the transfer to TLC located to the back of the campus.

Finally, pray for my coordination of an out-patient appointment with the facial maxial surgeon to remove Gerry’s braces from his teeth (the result of having his jaw wired shut) and the transportation to and from Dr. Tanaka’s office at Loma Linda.

God Bless you all!
Love, Lori

Marinucci No. 47: Gerry moved to a new facility

2004-07-24T21:46:00.000-07:00

From Lori:

I just wanted to update everyone that the move to Casa Colina went well.

On Thursday morning, Gerry had been told he was being transferred and was very
feisty. He was extremely alert, verbally expressive, and a little agitated.
His aggressiveness was a little alarming at first, but also welcome in the
fact it shows his determination and ability to express himself. When told he
couldn't walk, and a struggle to coax him back into the wheel chair, in a
huff, he wheeled his wheel chair right down the corridor and around the
corner all by himself and then fell asleep in the middle of the hallway
exhausted. I think he was trying to break out!

Friday, was his first day of evaluation for therapy at Casa Colina. He was
restless during the night, and the opposite of the day before, very groggy
almost not able to keep his eyes open. He went through his sessions, but it
was not a good indicator of his capabilities. They will re-evaluate next
week. Fortunately, his rehabilitation doctor is also on staff at Casa Colina
and can follow him. The doctors are adjusting his medications and this
might explain some of the drastic mood changes in addition to the stress of
the move itself.

Today Gina and Edie visited and he was very alert, but not aggressive or
agitated. Pray the doctors find the proper balance in medications.

So far, we are impressed by Casa Colina. The staff has been helpful, friendly and
concerned. Although it looks like a hospital, it has the feeling of
boot-camp and getting down to business. The patients are all up every
morning at 7:00 a.m., dressed, cleaned, breakfast (all as much as they can
do by themselves) and then off to various therapy sessions. Gerry's therapy
will most likely be in the mornings so it is best to visit in the afternoon
or early evening hours during the weekdays and anytime on weekends.

Directions to Casa Colina: Hwy 15 North to Hwy 10 West for 11 1/2
miles; Exit Towne Avenue and turn right onto Towne; Left onto Bonita Avenue
which is the 1st light past the rail road tracks; Go 3 blocks to 255 Bonita
Avenue. Casa Colina is on your right; second driveway. He is in the one
story building closest to the street; Room 15A. Visitors are encouraged,
just sign in and get a visitor pass at the front desk.

Gerry will be sitting in the open "day room" near the nurses station while
not in therapy sessions. Visitors are encouraged as the stimulation, while
not in therapy sessions, is good for him. Thanks to all who have been
visiting, his doctors commend you as being a positive factor in why Gerry is
doing so well.

We have been told by several of his doctors that he may soon qualify for the
Transitional Living Center. Please continue to pray for this next important
step and funding by the insurance company. It would require a move to
another building on the same campus. In addition to the three hours of Rehab he
is now receiving, the Transitional Living Center concentrates on a daily
living schedule where he will have much more structure, routine and
retraining in skills with the goal of returning him to home.

I'll keep you posted following the "family meeting" with the rehab team next
week.

Love,
Lori

One more thought... To those that do go to visit, please note that Gerry now has what they call
a "canopy bed" and an alarm on his wheel chair for safety precautions. The
bed has netting on the sides and top and looks somewhat like a cage. I
admit it is rather alarming to see at first, but beats the alternative of
physically restraining his arms and legs while he sleeps. He is not stable
enough yet on his feet and is at high risk for falls.

If you're reading this, add a comment!

2004-07-23T12:31:00.000-07:00

Unlike the email list many of the posts are taken from, we don't know who's reading the blog. If you would be so kind, add a comment so we know who you are....thanks...links are at the bottom of each post.

Update: Marinucci No. 46: From Lori

2004-07-21T23:00:00.000-07:00

Marinucci No. 46

Dear Friends & Family,
Passing on this update from Lori. Just noting that I believe she wrote this Wed. evening, and she mentioned that Gerry could be transferred as early as tomorrow (Fri) afternoon. Any local visitors planning to visit on Friday will want to call Kindred (909) 391-0333 to see if Gerry will still be there. Lori or I will be sure to send another update to confirm Gerry’s move. Thank you all for your faithful prayers.

Gina

----Original Message -----

(A letter from Lori, Thursday, July 22):

God had graciously answered our prayers! The insurance company has consented to write a special contract with Casa Colina which specializes in brain trauma patients. They were not obligated to do so, and once again I am thankful for God’s goodness to us. There is no other explanation for this than God’s intervention.

I will meet Casa Colina’s evaluation nurse tomorrow morning. They are confident Gerard will qualify for their facility based upon the medical records they have reviewed, but they must verify via an evaluation. Once he has officially been accepted, then ambulance transportation will be arranged. He could be at the new facility as early as tomorrow afternoon.

Their objective is to help each patient reach their maximum potential with the goal of returning home. At a later date, Gerry may qualify for their Transitional Living Center (this is still a matter of prayer that the insurance company will pay for this service.) I have heard wonderful things about this aspect of the rehab. There is a new center being built next door and it will be opening sometime this fall. I don’t know yet how this may impact Gerry.

Gerry’s trachea plug is out, he pulled it out himself and his neck healed before the doctor could reinsert it. Gerry is getting feisty. He told me recently, "I can walk, don’t tell me ‘no’, you are frustrating me, I want to walk." This is exactly the attitude he will need during the next phase.

He continues to eat a mechanical soft diet, now 3 meals a day. Soon the feeding tube can be removed. Cognitively, he is having difficulty capturing words and will often use "filler phrases to allow him time to think of the word he is looking for but can’t come up with. His phrase of the week continues to be "it’s just a matter of time." We do see improvement every day.

Specific Prayer Requests:

1) Physically for his shoulders as they are very weak and he has difficulty lifting his hands up past his shoulders
2) Removal of the braces are still on his teeth as these facilities don’t
have a maxo-facial surgeon on staff to remove them. He will either need to be able to go to a surgeons office as an out patient or special visiting privileges must be granted by the hospital for the surgeon to remove them. He is experiencing decay and we need God’s intervention.
3) Smooth transition and open communication with his new physicians and therapists.
4) Wisdom for the doctors the first week as they conduct a detailed
evaluation and prognosis followed by a family meeting.
5) Cognitively, that his memory will improve, he can capture the correct word, begin to process a daily routine schedule and automatically begin to do daily routines without being cued.
5) God will continue to spiritually bless and encourage Gerry. He
continues to enjoy singing the hymns, praying and listening/watching the sermons.

Gerry is the most focused, understandable and coherent when he prays.

Thanks for faithfully praying.
Love, Lori

"Let the people praise Thee, Oh God; let all the people praise Thee. Then
shall the earth yield her increase; and God, even our own God, shall bless
us. God shall bless us; and all the ends of the earth shall fear him. " Psalm 67:5-7

----------------------------

A note from Steve:

I'll confirm Gerry is indeed getting feisty. I saw this myself on Sunday when he kept insisting on getting out of his wheelchair. Lori finally had to firmly tell him no. That -- and the fact he keeps saying, "It's all a matter of time" -- are signs that Gerry wants to progress. Go get 'em, Ger!

P.S. Feel free to click on the comments link and add your own ...

Update No. 45 -- from Lori

2004-07-19T21:53:00.000-07:00

Dear Friends & Family,

I'm passing on the last update from Lori, and apologize for the delay. We were out of town. Thank you all for your continued prayers. We hope and pray you all are doing well. God Bless!

Gina
----- Original Message -----

Sent: Tuesday, July 13, 2004 8:26 AM
Subject: Marinucci No. 45
(Another update from Lori.)

We continue to be amazed that Gerry can sing the hymns, recite scripture and pray (sometimes coherently.) Repeated themes arise and his face lights upwhen he discusses (sometimes rambling) about the importance of the "image of God" and understanding "His name." It appears as if God is strengthening Gerry in his faith for which I am thankful. He told me that "the angels are putting him back together."Ger is physically doing well and is getting stronger everyday. He is beginning to eat lunches, soft diet, by himself and loved the chocolate shake yesterday. His mechanics in walking are getting better. His therapists believe he will continue to get stronger physically. However, he needs to be cued andreminded of the mechanics. He struggles with short term memory. He has some long term memory but must relearn some things. He does not recall the accident and doesn't consistently know where he is or why. It is the specialized cognitive training that he needs. He still has trouble with word finding and his responses consistently trigger on the first option given. As expected, when he tires, his accuracy goes down. The next major step is to acclimate him to self-start daily living tasks and restructure a daily routine with the eventual goal of coming home. God has faithfully brought Gerry this far and it is with anticipation that I await what He will continue to do.

It has been stressy the last few days. The insurance company is getting a management company as of August 1st; their job to oversee the big $ cases (keep costs down). Gerry will need to go to another facility as part of his rehabilitation.The insurance/management company has weighed in that they want Ballard which is in their network. I have not heard great things about Ballard and I am attempting toget more accurate information. At this point I would like Ger to go to Casa Colina. I believe the hospital and doctors will advocate for Casa Colina because it specializes in head trauma and has a transitional living center. While most facilities offer programs for head trauma, stroke and spinal injurycollectively; some have separate programs and are better than others in acertain disciplines. Also, often the insurance companies won't pay for the transitional living phase, but perhaps the victims of crime fund might be willing and then another move would not be required. Many doctors, case managers, etc., are on vacation so timing is important as the rehab facility is selected. Please pray God's will be done.

Love, Lori

Steve (Gerry's brother) visits

2004-07-19T19:57:00.000-07:00

From Steve Marinucci (Gerry's brother):

July 18 was a day I'd been looking forward to for some time. I'd wanted to come down to Southern California and see Gerry since he'd come out of the coma, but it was tough arranging time between work and all my other commitments.

But the weekend of July 18 turned out to be good. It originally was going to be part of a vacation, but the vacation was pushed back. But I'd decided to go to San Diego to be a part of a Beatle convention on that Saturday (I was a speaker), and decided to stay there through the afternoon, then head up north to Temecula and see Gina and Steve, then visit Gerry on Sunday before flying home.

When Sunday afternoon rolled around, I was a bit nervous, but excited. The last time I'd seen Gerry was in April. The only activity I'd seen was some very minimal eye movement. Many of the reports by Lori and Gina made me gasp as I read them. I was astonished he'd come so far so quickly.

Even more amazing was when I was told that Gerry had been informed "Steve" was coming to visit. He said, "My brother?" It was a good sign that he could remember this detail. (For those unaware, Gina's husband is also named Steve.)

The drive to the hospital was almost an hour, but it went quickly. Kindred Hospital is a small facility in Ontario. As we entered, I got more nervous.

Finally, we got to his room. There he was. Yes, he looked different ... thinner and without the beard he'd had for so long, but it was definitely Gerry. Gina walked in and is the custom with patients with brain trauma, he was introduced to all of us, including me. I said hello to him and his look showed he recognized me. We hugged and I felt and a strong feeling between us.

I was glad to see him moving again. His voice wasn't the old Gerry voice. It was gravelly, but it was definitely him. He seemed to be locked into the phrase, "It's only a matter of time," which indicated to me he has hope for the future. During our visit, which lasted about 1 1/2 hours, we talked, he sang hymns (and yes, he does remember the words!), and Lori did some mental exercises with him. In addition to his physical therapy, he has to do mental therapy and re-learn many of the things we take for granted. It's going to be a long road and he's going to need a lot of prayer and positive thoughts headed his way.

My plane would be departing from Ontario Airport in a couple of hours, so we had to leave. But seeing Gerry was quite an experience. I'll be seeing him again in a few weeks with Sue and Phil. I can't wait to see how much he'll have progressed.

And I know he will.

July 5: New link

2004-07-05T06:53:00.000-07:00

We've added a new to a story about Gerry that ran in the North County Times on June 24. See the link at the right.

Update No. 44 -- July 1 -- from Lori

2004-07-01T22:33:00.000-07:00

God is faithfully answering your prayers.

The first thing Gerry said to Sandi Churchill when they put in his talking valve is "I want to see the sermon." He clarified "it is important to me to see and hear." Tonight while watching the video of last Sunday's worship service that Eric taped, Gerry sang the chorus, every word, to "Praise the Lord" and lipped the words to the stanzas. He was smiling at the end. Mom asked if
he enjoyed that and he replied "yes, I am celebrating the depth of the hymns!"

He has offered "it is very humbling." When Sandi Churchill clarified, "to have people come and visit?" He stated "yes, yes." He is truly touched by the out pouring of love by our family and friends. His memory is returning and needs to be refreshed as to the context of how, and when he knows you. Like
a computer, his brain seems to be loading up.

He was being encouraged that he was getting better and soon "he would be able to walk right out of here." Last night on three occasions he sat up in bed, swung his legs over and tried to get up. When the nurses questioned where he was going, he stated "I'm going to walk right out of here."

This week he was able to stand from the wheel chair, walk 100+ feet with the walker and sit back down in the wheel chair. He rode the stationary bike, used the hand bike, took a shower, ate some bites of lasagna and the list goes on.

Praise that my dear, dear friend Julie Hamel could come from Wisconsin and stay for a week with me and my girls. I'm able to catch-up on a little work time and she has generously been tackling my to do list and cleaning,cleaning!

Prayer requests: that the braces be removed, the trachea be removed, continued physical strengthening, the insurance authorizes the best rehabilitation facility, God continues to be glorified in all things.

Please continue to pray!

Love, Lori

June 30 update

2004-07-01T22:28:00.000-07:00

Dear Friends & Family,

I'm passing on this wonderful email from some dear friends of Gerry and Lori. I know that you will be encouraged by their email and to hear some details of his progress from another's view. Thank you for your continued prayers!

God Bless,
Gina
------------------------------

Richard, Kathleen, and I had a very encouraging visit with Gerry last Sunday night. It was one of the most wonderful visits we have had with Gerry so far. He has come a long way. This was the first visit where Gerry was trying hard to have a conversation with us. He can get out about 75% of what he is thinking about and then he loses his ability to find the right words. He gets excited and frustrated with himself. He was making good eye contact with each person in the room. Also, this was the first time that Gerry was using his hands when he speaks. Gerry was always a very dramatic kind of person, so it was so pleasing to see his personality coming back.

Before our visit ended, we reminded Gerry that there are people around the world that are praying for him. With great excitement, Gerry told Richard that he wants a copy of all the e-mails with all the responses. We are going to put together a book which will hold all the e-mails requesting information on Gerry. We are asking that you send us some words of encouragement that you would like to tell Gerry. Describe yourself and your family. Gerry has been so encouraged that so many people he has never met have been continually praying for him since his accident. Thank you for being so faithful in praying for the brethren.

If you are in the area, please stop and visit with Gerry. Read stories that are full of word pictures. Kathleen started reading a book written by Rose Wilder (the daughter of Laura Ingles Wilder author of the "Little House on the Prairie" books). Gerry so enjoyed listening and talking to Kathleen. He kept on saying that Kathleen reminded him of his oldest daughter Annesa. If you can read Spanish, Gerry understands and was correcting Richard with some of his diction when reading the Bible in Spanish. Come pray with him. While you are visiting, turn off the TV. Gerry will tend to focus on the television because it is easier for his mind than trying to follow a conversation. When he gets frustrated because he is having difficulty completing a thought, reassure him that you know that he is working hard and it is OK to rest. Start reading again so that he can see pictures in his mind through language.

Each time we have visited with him, we have been so blessed to see the work God in doing in this dear brother's life. If you have never met Gerry, just tell him that you are one of the many people who have been praying for him. His face will lighten up and he will want to take a good look at you. His vision is coming back but he has difficulty focusing on objects close to him. That is one reason why he is not reading on his own. If your story has a picture, show the picture to him. Gerry will hold the book about an arm's length away and stare while he focus his eyes on the object. Then he will start relating something of his past or start talking about what he remembers about the story. All of these things are so good in healing the brain damage he has suffered. Hope these thoughts will encourage you in how we can continue to minister to the Marinucci family.

In His Joy!

Laurell and Richard Dowling

Email your responses to ......
dowlingmom@earthlink.net

June 24 update...from Gina

2004-06-24T23:49:00.000-07:00

6/24/04

Dear Family & Friends,

This week we have been amazed by Gerry's progress! His stamina improved greatly as he walked 100ft. around the nurses station 3 days in a row without his blood pressure dropping as it previously did. In addition, yesterday he stood in the standing frame for 15 minutes, also with no blood pressure problems. The past couple of days, he did not even need the 'abdominal binder' to keep his BP stable. Yesterday, Lea, his speech therapist also did a swallow test to see if he was ready to begin eating. He did very well in that all of the juices and applesauce they tested him with went into his stomach, and none into his lungs or trach. His swallowing is delayed a few seconds, which they will continue working on with him. He was unable to chew food as of yet, but Lea will be working with him daily now by spending half of her therapy time working on his swallowing, and the other half she will continue to work on his speech, memory and understanding. She said that we could bring him smooth textured puddings or ice creams if we wish and have the nurses put it in the kitchen to be used for her therapy sessions with him.

Lori has been talking to Gerry's doctor, who is very encouraged by his progress also. His doctor and therapists feel that in another month or so Gerry may be strong enough to move to an acute rehab. So, we are continuing to investigate facilities and pray for direction in moving him to the right one with cooperation from the insurance company. The neuro doctor, who sees Gerry weekly, also noted great encouragement by Gerry's progress.

Gerry is talking, sometimes clearly with simple statements or words, and other times he's trying to converse and talk in length, but his voice is quiet and it is difficult to understand his words. This can be frustrating for him, so for those friends who are close by and come to visit, just listen closely as best you can, encourage Gerry to speak louder if he is able, and ask him to repeat if necessary. In the end, if you can't understand him, just let him know and reassure him. A week or so ago, he wasn't even trying to talk in length. This may be an area in which he'll need more therapy to learn to talk and communicate again. But the important thing is that we can see that he has the understanding as we talk and joke with him about recent and past events. The rest can be worked through with therapy. Visitors, remember to introduce yourselves when visiting because with some brain injury patients, these simple reminders are very helpful.

As of last night, Gerry did develop a low-grade fever and increased heart rate. The heart rate has stabilized, and they are doing lab work and cultures to determine if Gerry has an infection. He has been started on antibiotics also. His therapies are on hold until he is better. He was having some irritation and/or pain in his jaw last night when he was talking with us which may or may not be related. They are also watching how he does with his trach this week in the hopes that they can move to the next step, which is putting a red cap on it. We know he is in good care, and the staff is watching him closely in all areas. We pray that he will soon be better, and that this may be just a slight bump in the road, and not a setback. Thank you all for your continued prayers!

The LORD is close to all who call on him, yes, to all who call on him sincerely. Psalm 145:18

God Bless!
Gina

From Lori....June 17 ...Marinucci No. 43

2004-06-20T22:20:00.000-07:00

From Lori:

I have been tardy in updating my faithful prayer warriors. Forgive me. Be assured that your prayers are appreciated.

Gerard is awake and more alert for a longer periods each day. There are documented stages that a traumatic brain injury (tbi) patient goes through. Please pray that Gerry skips the agitation stage, as some do. Recently, we have observed slight grumpiness or what appears as depression, but nothing serious so far. Don't let this alarm you during visits, it is very normal at this
stage.

He has walked with assistance, rather sloppily, 60+ feet. They will work on his form over time. He does well with active movement. When they have him in a static standing position, after 5-10 minutes his blood pressure drops drastically. However, his recovery time following such an incident lessens each time and doesn't wipe him out like it did initially.

The x-ray of his shoulder came back negative. He is guarding his right shoulder and most likely it is because of continued pain from the severe soft tissue injury following the dislocation. This is to be expected. He tends to hold his hands with fingers straight. Those visiting, please encourage him to flex his fingers and straighten his arms along his side. Therapy has been wrapping his hands and putting him in braces for several hours each day.

He has been following commands about 80% of the time. He doesn't verbally recognize us by name yet. He independently reaches out his hand to shake and says "hi" to his doctors when they come in the room. He responds "I'm doing well" or "pretty good" to the question "how are you doing?" He counted to 10 without prompts. Short and long term memory appear to be coming. He has been singing simple songs with prompts. He told Leah today that she didn't sing well and then began laughing. His humor continues to pop out.

They have begun the swallow tests with the hope of eating soon. The pulmanologist is very cautious regarding removal of the trachea but this should not preventing him from eating when the time comes.

We are ambivalent regarding timing to the next facility for rehab. We continue to receive conflicting opinions. Some desire that he stay put and slowly get stronger thereby not impeding his progress with a move. They argue he will be stronger and further along thereby able to benefit more from the next stage of therapy. Some believe there is a "window of opportunity" and
timing is important. This is a real concern and a big decision requiring prayer. We continue to research facilities looking to San Diego next.

Pray that a referral will come through for a dentist to visit the hospital. Gerry appears to have a cavity in his front tooth. Also the braces need to be removed prior to eating.

Pray for his therapists Roslyn, Mitch and Leah. They are wonderful and very patient. I have appreciated their attempts to keep the family posted of his daily progress.

Love, Lori

"If any of you lacks wisdom, let him ask of God, that giveth to all men liberally, and unbraided not; and it shall be given to him." Job 28:12

Marinucci No. 42 6/11/04: Gerry takes his first steps!

2004-06-11T10:28:00.000-07:00

Marinucci No. 42 6/11/04

From Gina:

Dear Friends & Family,

I’m passing on an update from Lori below, and adding some additional details that have happened since her writing.

Gerry has taken his first steps with a walker! With his therapists assisting him under the arms, the first day he walked about 5 feet, and the next day I was there to see him take 5 steps. The staff is so excited by his progress, that they all gather around to cheer him on.

His speech therapist continues to report improvement, and this week said that when she cued Gerry with the days of the week ‘Monday’ and ‘Tuesday’, he continued on with the remaining days! When she touches parts of his body and asks him where she is touching, he responds appropriately with ‘leg’, ‘knee’, etc. When she showed him a large family picture with Gerry, Lori and Anessa and pointed to each one, asking who they were, he appropriately said ‘me’, ‘my wife’, and ‘my daughter’. When she asked him the names of each one, he could not respond. But when she then pointed to each and said “Is this Lori?” “Anessa”, etc., he said yes to each. The therapist said it is especially important when coming to visit Gerry that you tell him your name, like “Hi Gerry, it’s me, Gina”, and tell him again a couple or few times during the visit and when you leave. We are not concerned as to whether it is a memory problem or whether he just needs to retrain his brain in this area. He is doing so well putting the pieces of the puzzle together, and this is an area in which our cues will help him greatly.

Lori has also reported some wonderful visits with friends in which Gerry hummed along while they sang hymns! Family friends continue to bring laughter with each visit, joking about ‘breaking Gerry out’ of the hospital, and Gerry chuckled and said “Get me out of here”. Of course, we all typically joke around with Gerry about food and what types he would like, and he said “chicken”.

Lori brought home videos to show Gerry, and he was especially touched with tears when viewing the video of Polina & Tatiana’s baptism. Lori mentions below that Dad was in the hospital. I’d like to update and say he is now out of the hospital as of Tuesday, and doing much better. We are keeping a close eye on him, and thank you for your concern and prayers.

We are so inspired and awed by Gerry’s daily fighting through this great challenge. Each step and each word takes tremendous effort, and we ask your continued prayers for the strength for his therapy and for God’s continued healing and restoration. Also prayers for x-rays that are to be done on his right hand, wrist and arm, and for the results and the therapy they are doing to help keep the range of motion.

Thank you also for your continued prayers for Lori and the girls. We are so grateful to all of you who are helping them in so many ways through this time, it has been an incredible testimony to all of us!

God Bless!

Gina

From Lori:

From: Jonathan Hoos
To: Marinucci -Lori’s email list
Sent: Thursday, June 10, 2004 7:54 PM
Subject: Marinucci No. 42

Gerard continues to progress on a daily basis. He is more alert every day and is following both simple and more complicated commands. He is receiving
3 hours of therapy a day; speech, physical and occupational. Of course he is responding to music... singing out “merrily, merrily, merrily, merrily” to Row-row-row Your Boat. He can tolerate standing and lifting his feet. They had him on all fours with an exercise ball under his stomach and he said “this is crazy.” He is able to assist in bed to chair transfers with only minor assistance and sits up in a chair, adjusting himself with head up for over
an hour. He gets very tired following therapy and sleeps heavily. We are thrilled by the daily notes the therapists leave for us. He now shakes your hand or says “time for bed” when he has had enough. He more frequently responds to
questions by nodding or shaking his head.

We are told soon they will install the red button on his trachea forcing him to breath through his nose and mouth. They suspect he will tolerate this
well. Soon thereafter, they will begin swallow tests and then dye his food to ensure none goes into his lungs. When this is accomplished, they will close
the trachea. Tonight, I asked him if it hurt to talk, and he nodded “yes.”

They explain that talking will be more natural when the trachea is removed.

Please pray for his left hand, wrist and arm which appear to be tightening up. We see some resistance to moving his left arm and hand as well. We
need those guitar picking fingers to stay nimble!

A few nights ago, the doctor reminded me to speak slow and clear. But I believe Gerry hears everything and responds with facial expressions, laughs
or smirks to my regular chatter, teasing and bantering back and forth with family and friends. The doctor observed his reaction tonight and said “keep doing what your are doing, all this stimulation seems to be what he needs.” A continued thanks to all the visitors! By the way they have moved him to room 108, just next door.

In addition to visiting Gerry, Gina, Edie and I visited two rehab hospitals today. St. Jude’s in Fullerton and Casa Colina in Pomona. They both
appeared to be fine facilities, about equal distance in different directions from home (Fullerton will probably be more traffic, however). It was exciting to see and hear about potential therapy plans. Continue to pray for guidance, timing and insurance cooperation. More research is necessary about potential rehab facilities in San Diego. We don’t know exactly when the transfer will take place but are instructed it is imminent.

Finally, Gerard’s father Frank is in the hospital in Murrieta. His Cumadin mediation he takes for his heart condition was seriously elevated. They
have given him transfusions and are observing him closely. It is a lot for Gina and Edie now to have two patients! Pray for them as well.

“Since I am afflicted and needy, Let the Lord be mindful of me; Thou art my help and my deliverer; Do not delay, O my God.” Ps 40:17

Lori

More progress for Gerry ... June 4th report

2004-06-04T09:55:00.000-07:00

From Lori:

Tonight was a good visit. He was very alert after bugging him for a while. He is experiencing some stiffness to his right shoulder, arm and hands.

When I asked him if his wrist was hurting... I said in a singsong voice,"say yes, say no, say yes, say no or maybe so" and he said immediately in loud
and clear "maybe so" then smiled. What at jokester! I had been trying to get him to say a simple "hi" all night and then he pipes up with that one. We all
laughed. He is definitely there!

Anyway, contrary to what the hospital case manager said to Gina today, Dr. Baushura stated as soon as the trachea is closed, he should be ready to transfer
for more aggressive therapy. He confirmed that the pulmonologist is rather conservative, but it should be in a few days to a few weeks.

Dr. Baushura mentioned St. Jude Rehab in Orange County as being the best. It is difficult to get into, costly and the insurance usually balks... but it is the best. They specifically have a unit for just brain trauma/coma rehab as opposed to stroke and spinal cord injuries. He encouraged us to try to get him there. I did some preliminary research on-line and like the emphasis on family participation and communication as well as their very successful rate of returning patients home in a functioning manner. Please take a look and let me know your impressions. The distance on a map doesn't seem far; but it is the 91 gridlock!! What a pain, but maybe worth considering.

Update from Lori: No. 41 : More good news

2004-05-29T23:42:00.000-07:00

Dear Friends and Family,

I'm passing on Lori's update as she explains the wonderful meeting we had with Gerry's therapy team. What an encouragment to see their excitement over Gerry's progress. We are so blessed to have all of your prayers and support!

Gina

-------------

From Lori:

Gerry's sister Carla came to town today and the family met with the therapy team. It's official, Gerry is out of the coma! He is responding to enough outside stimulus. Now we are looking for increased and more consistent responses. An added blessing is that Anessa had been praying that her dad would wake up before her birthday May 29th and God answered her prayer.

Every day, Gerry does something a little more during therapy. He continues to say "hi" to his therapists, shaking their hands, resisting back and balancing when being pushed while sitting, catching a ball on his lap, going outside in the wheel chair, and best of all for me is he continues to smile at our silly jokes. We still don't know the extent of brain injury as he is
continuing through the healing process. Continue to pray that he will progress and not plateau or have any medical set backs.

He is doing about 2-3 hours a therapy a day and working hard as muscles need to be strengthened because he has been in bed so long without activity. When given a command like raise your head, you can see him struggle to perform, but if you then physically touch his head he responds right away. They are working on the process of understanding and responding just to the verbal command.

Also encouraging is the validation that he can see and is anticipating, like when he moves his legs away before you can tickle his feet. They are also working on his swallowing reflex getting him to the point he can eat.

In the near future when Gerry can tolerate 3-4 hours a therapy a day and is medically stable, he will need to be moved to an acute therapy rehab center. I would prefer one that specializes in brain injury. Pray for wisdom and guidance as to the best location and agreement with the insurance company. We are told of programs in Pomona and Bakersfield that we are looking into and I am still researching San Diego locations. Distance is a factor, but we also would like the best treatment possible.

I marvel when thinking back over the last 2 1/2 months. When Ger first went to the ER, we were told he had less than 20% chance of survival, and then we were told less than 10% chance of emerging from a coma from this type of brain injury. What I know is that God is God over the odds. He is powerful to heal!

The verse Dr. Machado shared has been our comfort:

"Fear not, for I am with you; be not dismayed, for I am your God. I will strengthen you, yes, I will help you, I will uphold you with My righteous right hand." Is. 41:10

I can't wait for Ger to express how the gentleness of God has upheld him during this struggle. God's promises are sweet and sure. God is with Gerry.

Lori

Two encouraging pieces of news from Lori

2004-05-26T23:39:00.000-07:00

Some really encouraging bits of news. Here's the first, dated May 19:

Subject: Marinucci No. 39 Laughing

Laughter truly is the best medicine!

Tonight, Sandi and Eric Churchill met Edie and I at the hospital. Ger was awake when we arrived but rather sluggish in his movements. About 1/2 hour into our visit, followed by tempting him with chocolate brownies, Eric started telling Ger silly jokes and goofing around (uniquely Eric style). Gradually, Ger began to smile, which turned into laughter. He did not laugh out loud because the plug was not in his trach at the time, but he was genuinely laughing. Big grin, squinty eyes, chest heaving, etc. He was really cracking up. Most importantly, he laughed when it was funny and smirked while "saying oh, you can do better than that!" It felt like he was really there, listening and laughing at appropriate times. It was incredible!

Other firsts: the laughing brought on a coughing spell and he would lift his hand to his mouth so as to cover his mouth. He crossed his ankles and legs while in bed and when he reached his hand up, the nurse continued to lift his hand to his face and he scratched his nose.

I know many, many have prayed specifically to hear Ger's boisterous laugh again. I did not audibly hear it, but I experienced it! Praise God for his goodness and mercy in answering prayer.

"A cheerful look brings joy to the heart, and good news gives health to the bones." Proverbs 15:30

Lori

-----

And the second, dated May 20:

Today (Thursday, May 20) during therapy, Gerry said three words through the valve in his trach: "hi, yes and no." The staff was ecstatic and so are we. He has been able to handle the trach plug for more that 8 hours at a time and at this rate he could have the trach out in several weeks. God is so merciful.

Gerry is not "awake" yet and in still considered in a coma, but is definitely in the process of emerging. He is much more alert and we are seeing more consistent and purposeful movement. These are important steps!

At tonight's visit we witnessed him scratching his face, lifting his legs up off the bed and making noise while yawning. Interestingly enough he also smiled when I referenced one of the jokes that Eric told two nights ago... I believe he remembered!

Visitors are still welcome and encouraged. I'm told this is a
very important aspect of his therapy.

Continue to pray on my faithful prayer warriors! God is the great physician and is knitting him back together. God is doing above and beyond what I think or ask! Praise Him.

Lovingly, Lori

Community pitches in to help Lori

2004-05-23T22:33:00.000-07:00

Lori's neighbors in Murietta pitched in this weekend with garage sales to help out Lori and the kids. Here's a link to a story from the Riverside Press-Enterprise (subscription required). The story also has a nice picture of Gerry and an update on his condition.

steve

May 16: Gerry's progress. ... from Gina

2004-05-16T22:17:00.000-07:00

5/16/04

Dear Family & Friends,

This week we were happy that they unwired Gerry's jaw. Speech therapy has begun with the use of a "pmv", a valve that enables us to hear Gerr make sounds, cough, and eventually talk. They begin using the pmv in small increments to get him used to it, as it is a bit more difficult to breath with it on. They will increase the time with the pmv as he is able to tolerate until he can handle it for 8 hours a day for about a week. They will then cap off the trach for 3-5 days to see how he does. It is our understanding that if all continues to go well, within approximately 3 weeks the doctors will be able to remove the trach entirely!
The doctors, nurses and therapists continue to be very hopeful about Gerry's progress, saying that he is trying to break through. Lori met with the neuro for the first time, and was encouraged. The neuro explained that Gerry is responding to some advanced commands, for example, when the nurses ask him to lift his head so they can put a pillow under it, he does! This is very good! He did explain that Gerry is exhibiting what they observe in some stroke patients, which is an effect of his brain injury. This is that when they scratch the bottom of one of his feet, his big toe lifts up. They have put him on the medicine they use for Parkinsons patients to try to stimulate him to emerge from the coma. We are very impressed with the agressive treatment Gerry is receiving from the doctors and therapists, and continue to pray for them as well. We have noticed in the past two days that Gerry has been much less active, and looking very tired. All his vitals are good, etc., but we are wondering if maybe this new regimin of medicines may possibly be making him more lethargic. If it continues, we'll ask the doctors if this is a possibility. Please pray for his continued progress, and for the strength he needs to fight.
We are so grateful for those of you who live locally who have been able to visit Gerry. We've gotten many questions from visitors and also through email about comas and Gerry's condition. I have cut and pasted some very helpful info I got from a wonderful coma recovery website (http://waiting.com) that my sister found online. It is for people who have loved ones in a coma. The info is following, and I hope it is helpful for those of you who are interested to read it. We deeply appreciate all of your interest, concern, prayers and support. And we thank you for your continued prayers that Gerry would emerge from the coma! God Bless!

Gina
O Sovereign LORD! You have made the heavens and earth by your great power. Nothing is too hard for you! Jeremiah 32:17

About Brain Injury:

Understanding Coma

--------------------------------------------------------------------------------

Coma is a prolonged period of unconsciousness. Unconsciousness is the lack of appreciation of (or reaction to) a stimulus. Coma differs from sleep in that one cannot be aroused from a coma.

Coma involves two different concepts:

1.) Reactivity: Reactivity refers to the innate (or inborn) functions of the brain, i.e., the telereceptors (eyes and ears), the nociceptors (responses to pain), the arousal reaction (wakefulness) and the orienting response (turning one's head toward the source of sound or movement). We could also refer to these as reflexive movements.

2.) Perceptivity: Perceptivity refers to the responses of the nervous system to stimuli, which have been learned or acquired, i.e., language, communication skills, individual methods of movement such as gestures, etc. Perceptivity also refers to less complex learned or acquired reactions such as flinching when threatened. We can also think of these as conscious movements.

A person in a coma does not exhibit reactivity or perceptivity. He/she can not be aroused by calling his/her name or in response to pain.

As a person begins to emerge from a coma, they may begin to react to certain stimuli. To regain "consciousness" however, reactivity and perceptivity must both be present. These two elements are necessary for a state of awareness. Often, many of the elements of perceptivity must be relearned, such as speech, self-care, etc.

Many people are surprised that all stages of coma do not resemble what we have been taught to expect; a deep sleep. The person in the coma may exhibit movement, make sounds, and experience agitation. It is important to keep in mind that the coma patient may exhibit reflex activities which mimic conscious activities. Coma patients may be restrained to keep them from removing tubes or dislodging IVs. The progress of coma is measured by the patient's increasing awareness of external stimuli. There are many levels of coma which the patient will pass through as functionality increases.

Sometimes a coma is induced by chemical means to aid in medical treatment and recovery.

It is very important to remember to speak positively to and in the presence of the person in a coma. Some patients remember very distinctly events while they were in a coma. Studies also show that a positive attitude may be beneficial to the recovery of the patient. Conversations about the possible negative outcomes with doctors, nurses, and family should be conducted with discretion.

When will we know the extent of the injury?

When the patient "wakes up."

"But 'waking up' is a slow process of what we call 'emerging.' The first part of the waking up process is when the eyes open and they have wake/sleep cycles, the sleep cycles being the longest. As the wake cycles get longer and longer, movement begins to occur; then speech; then purposeful movement; reaching for things, making things work -- purposeful speech -- asking questions.

Arms and legs are the first things to move; then the head, from side to side. Speech begins with moaning, then moves on to mumbling, and happens more often when lying in bed." ~ Martha

Remember: No two brain injuries are alike.

It should be remembered that sometimes, while a patient is in a coma, they may exhibit behaviors which mimic conscious behaviors. For instance, they may turn their head toward a sound. This may or may not be a purposeful movement.

I can not stress enough that coma is often not what we imagine. No two patients are the same. Some will display movement and sounds throughout the comatose period, some may need to be restrained to prevent injury to themselves or others. It is best to view these behaviors realistically. This is the hard truth about coma; we do not know if or how well any particular patient will recover. But coma is rarely like it is portrayed in movies and on television, where one day the patient opens their eyes, smiles, and is discharged the next day. Recovery from brain injury takes time.

The brain is very complex. Even in the event of a "mild" brain injury, when there is no loss of consciousness, people often experience long term problems with memory, fatigue, concentration, anger, dizziness, etc. These problems may never be resolved and may require lifetime coping strategies.

Even in the event that the patient recovers quickly, it may take years to fully understand the extent of the injuries. If they are able to return to work, they may do an adequate job until faced with a new task. They may have deficits that will not be obvious until faced with a new or different situation or environment. These "subtle" deficits may be harder to find help for than more obvious deficits.

That is why you must be informed about brain injury. And why it is important to develop support systems now. You must be prepared for an injury which is permanent, as hard as that sounds. Information is your best option for dealing with brain injury.

May 13: From Lori

2004-05-14T22:55:00.000-07:00

Today I received exciting news! (Wed, 5/12) About 4:00 a.m. this morning, Gerry lifted
his head, back and raised up on his elbows, attempting to swing his leg
around like he was trying to get up out of bed. The nurses quickly assisted him in
grabbing for the side rails, he held on but didn't continue to pull up.
They consider this purposeful movement! Interestingly, Ger usually awoke every
morning about 4:00 a.m. The nurses will play the CD that acted as his alarm
clock tomorrow morning.

Also, he responded by moving his head in the direction of his name being
called out across the room. This is important because it signals that he is
listening and sorting the various peripheral noises in the unit and
identifying specifically his name. He sat up in the chair for over an hour today and
lifted his hand to touch his face. While sitting, he constantly is working muscles
struggling to stay erect. His chin still drops, but his neck seems to be
getting stronger every day. He is working hard.

A dentist is scheduled to come soon to remove the wired jaw. The speech
therapy department is eager to begin working with him.

My girls are being well loved! Many friends and family have been faithfully
watching them while I'm at work and at the hospital. This Sunday Polina and
Tatiana will be baptized. This is something that we had planned prior to
the accident, and I believe Ger would desire we continue on to do so now, rather
than wait. Today I was blessed by our homeschool youth group who came today
to clean house and do yard work.

Finally, a dear neighbor of mine has asked for prayer for her 22 year old
niece who has a large tumor that has caused a lot of difficulties for her
heart and she has a collapsed lung. This young home schooled, Christian woman's
name is Lydia Rose. May the Lord be as close to her and her family as he has
been to me (and I know Gerry) during our time of need.

Rejoice in the Lord always, again I say Rejoice! Phil 4:4

Love, Lori

May 9: Gerry's progress continued ... from Gina

2004-05-10T15:45:00.000-07:00

Gerry last Thanksgiving
at Big Bear Lake, CA.

5/9/04 9:40 p.m.

Dear Friends & Family,

First of all, Happy Mother's Day! I hope all of you enjoyed a wonderful day!

Our praise reports continue! Gerry continues to get stronger every day! Today we found out that he is officially "off the vent"! He's been breathing entirely on his own for the last two nights and doing great, so they took the vent out of his room. We are praying that he continues to get stronger in all areas. The next step is to remove the trach which will happen when they are entirely sure he can clear his own airway if necessary. And also after he builds up his strength and they feel he is consistently strong in his breathing. This is something they won't rush into, and we are so grateful for the doctor's great care and work to wean Gerr off the vent!

It has been about 5 weeks since Gerry's mouth was wired shut. We were told at Riverside that it would be wired for 4-6 weeks, so Gerry's primary doctor at Kindred is checking to see if we are able to remove those wires yet. We're hoping they will be removed soon which will allow the therapists to move forward with speech therapy. Physical therapy and coma stimulation therapy continue to go well.
Gerry continues to tolerate sitting up for periods of time, and is handling keeping his head up for 10-15 seconds or so at a time. He also continues to react well to smells, turning away from strong scents like ammonia and turning towards more appealing scents like mint. We are so excited to see his periods of alert time increasing and are noticing some increase in facial expressions. He still has much movement in his legs and feet, and also in his arms and hands. He seems hyper-sensitive (like he's really ticklish, which Lori said he never was to that extent) to touch on his feet, and we are told that sensitivity is increased at this stage of his progress. All of this is very exciting as we literally see changes in Gerry almost daily, and certainly weekly. Praise God!

We continue to pray and ask for your prayers that Gerry's progress continues and that he will "break through" and emerge from the coma. Thank you all and God Bless!

Gina

Hit-and-run driver sentenced

2004-05-07T23:24:00.000-07:00

This article dated May 7 in the North County Times in Riverside County, Calif., gives details of the hearing for the sentencing of the person whose vehicle hit Gerry. The article has some quotes from family members on how Gerry is doing.

No. 35, 5/5/04, from Lori

2004-05-05T22:02:00.000-07:00

Passing on the update from Lori...a wonderful praise report!
Thank you for your continued prayers!
Gina

Sent: Wednesday, May 05, 2004 7:47 AM
Subject: Marinucci No. 35

10:45 p.m. Tues 5/4- God is truly answering prayer! I met with the doctor
and he was very impressed by the recent progress and activity.

Gerry is consistently growing stronger and exhibiting more movement every
day! He is increasing in leg movements especially during stimulation,
however, he readily moves his legs now. His eyes are open more often and for a
longer period of time. He opens his eyes when his name is called and is beginning
to track to voices, moving his head toward the voice. He even did this for the
doctor tonight who was marveling at his progress. The doctor believes "his
brain is healing and neurons are beginning to fire" which is a positive step
towards emerging. He thinks Gerry is trying to break through. Please
continue to pray specifically that he will come out of the coma. Many other therapy
options and diagnostic tools are available once he is out of the coma.

He is breathing on his own without the assistance of the ventilator during
the day and has some minor support for a few hours at night in order to rest
his body. He has as strong cough which is important for him to be able to
protect his airway. The pulmanologist stated he just needs to get stronger.

He continues with coma stimulation therapy and was upright in a chair for
almost an hour today. He was able to hold his head at mid-line for 20
seconds. He continues to react to strong smells and is having stronger arm movements
during physical therapy.

Ger had a slight fever and they put him on 3 different antibiotics hoping
to catch whatever bug he might. Please also pray for this concern.

The new routine has not been easy on anyone, but it is finally beginning to
feel like a routine. The girls are staying with and schooling with dear
friends for several days in order for me to work and various families are watching
them on Saturdays on a rotating basis. I am thankful for such willing and
loving support.

My devotion for today: "Thou has made the heavens and the earth by thy
great power and stretched out arm, there is nothing too hard for Thee - Who
delivered us from so great a death; in whom we trust that He will yet
deliver us. Shall not God avenge his own elect, which cry day and night unto him?"

Lori

April 29: Marinucci No. 34 (from Lori and Gina)

2004-04-29T22:19:00.000-07:00

From Lori:

A praise report!

The past several days Gerry has increased in his extremity
movement. Particularly he is moving his legs and bending at the knees.
Instead of his muscles being entirely flaccid, he now has some muscle tone
and is resisting back during physical therapy. His eyes are open more often, and there is some movement of his eyes from side to side, especially when he hears familiar voices. His lips open and it appears he is fighting his wired jaw in an attempt to open his mouth. They have put him on the tilt table (strapped in) but his blood pressure elevates when he gets to about 30 degrees. They will continue to work to get him to a standing/sitting position. Apparently being upright triggers some enzymes in the brain that signal you should be awake. Pray for the therapists and continued progress.

These are all small but hopeful steps towards emerging. His following
doctor intends to consult with the neurologist, but is very encouraged by this
progress. He believes Gerry may be in a "locked out" state. He believes
Ger may be aware of everything going on but simply can't yet respond. The Speech Therapist indicated his most acute reactions have been to smells -- maybe he is smelling you:) People who have emerged from comas report they have had a heightened smell and hearing senses.

During visits, if you are comfortable, feel free to massage his hands, arms
or apply lotion which is in the bed stand. The notes in the book have also
been a tremendous encouragement and have been helpful in recording some of these improvements which have stimulated positive discussions with the staff. The hospital staff is very amazed and encouraged by the continued support Gerry and the family receive. I am eternally grateful.

>From my daily devotional, " I love the Lord, because he has heard my voice
and my supplications. Because he hath inclined his ear to me. Therefore
will I call upon him as long as I live--- I will bless the Lord at all times: his
praise shall continually be in my mouth.. in everything give thanks."

Lovingly, Lori
4/29/04, 7:00AM

From Gina:

Dear Family & Friends,

Mom & I visited Gerry today and were greatly encouraged also! In addition to Gerry moving his legs, he also moved his arms and hands from the elbows down. He squeezed and held onto our hands as we talked to him and was trying to move his head in our direction. We were told that the physical therapist had him up in a chair this morning and he tolerated this well for 30-40 minutes. She said that he responds to her commands at times (e.g. to hold his head up, etc.), but not every time. We are very encouraged to see the daily progress that Gerry has shown this past week. The doctor agrees that after only a week or so of the coma stimulation therapy that this is good! We are still waiting to talk to the neurologist about the possibility of an EEG, but are so grateful that the staff is now communicating very well with us in all areas. This is another answer to prayer, as we ourselves had to learn how to ask for the information, and who to ask.

As Lori said, our hearts are full of gratitude for your continued prayers and support!

Gina

Gina's latest -- April 27

2004-04-28T23:27:00.000-07:00

Dear Family & Friends,

Many of you have emailed to ask how Gerry is doing. I'm finally getting to this next update! Thank you for your thoughts & prayers! It has been such an encouragement! I think it's been close to a couple of weeks since Gerry's move to Kindred Hospital in Ontario. He was initially placed in ICU, and was just moved to the Direct Observation Unit (DOU). This is a unit with several beds in a row and a nurses station directly in front for continual observation.

We have been very pleased with Kindred's treatment in several areas. First, they are working consistently to wean Gerry off the vent. Several days ago, Gerr was entirely off the vent from about noon on. Other days, he needs more assistance from the vent in varying degrees. At the maximum the vent will "breathe" 10 times per min. for Gerr, and now that he is being weaned, it varies down to 2 like it was yesterday and today, and completely off at times as he is able. As you can see, they are continually challenging him as much as possible, always keeping Gerry's stability as a priority. This is a process as he gets stronger. He has had some wonderful progress, and the pulmonologist is pleased.

They do rigorous physical therapy six days a week. We were taught basic range of motion exercises when he was at Riverside, which we continue to do during our visits. But here they take it further, seeing what Gerry can handle. The other day they sat him up in bed with his legs dangling over the side, and he tolerated this well. Again, this is a process as he gets stronger and hopefully emerges from the coma, they will continue to do more.

They've been able to get Gerry's blood pressure under control with the right medication, and have since started the coma stimulation therapy. This is where they try to stimulate the five senses with different means. The other day they used ice on Gerry's face, and he moved his head from side to side. They are doing this therapy 3 to 5 times a week, and we're looking forward to hearing more details on this amazing therapy.

We've noticed quite a bit more movement in Gerry's body, especially his legs which he moves from side to side. Today he seemed to pull one leg up a little bit. He moves his feet and toes. We've seen him move his upper body a few times. His eyes continue to open at times, and we look for those short periods of alert times when he will connect with one of us. We've observed his pupils moving around more when he is "awake". The nurses in ICU did not observe him "tracking", but we hope to see that as the nurses in the DOU observe him and as he continues to progress. Lori said during her visit last week with the girls that Gerry's pupils did move toward sound! He's also begun to lightly move his fingers and thumb as we hold his hand and talk to him. At times, this has been in response to our command. We have a guest book for visitors, and a friend visiting yesterday noted that while reading to Gerry for an hour that Gerry squeezed his hand seven times! Today, Mom and I talked to Gerry's primary care doctor, and they have started Gerry on a medication to stimulate him. He is off of all sedatives. We continue to look and pray for purposeful movement and for Gerry to wake up. We are very hopeful about this new activity in Gerry and pray that these are the early signs of his emerging from the coma.

Early last week they did another CT scan on Gerry. The doctor said the results only noted minor swelling in the ventricles. He was looking for more detailed information and is going to talk to the neuro. I asked (upon the advice of our cousin who is a RN) about doing Evoke Potential Testing to see the extent of the brain damage, and the doctor said he would talk to the neuro about that also. Please keep this in your prayers also!

Please continue to pray as we are finding some difficulty getting communication regarding Gerry's progress, test results, etc. from the doctors, nurses and staff. We know that each hospital operates differently, and an adjustment period is normal.

We're all working together to get into a routine for visiting Gerry, and for our lives as we help and support each other and things are coming together well. God continues to show us amazing blessings and support at this difficult time. We are so grateful for your continued prayers for Gerry's healing and recovery, and for emerging from the coma. We ask your continued prayers for Lori and the girls. They are doing well, but they face new challenges every day. Lori continues to work through many decisions, currently about the girls schooling, and I know she appreciates your prayers.

God Bless!

Gina

From Lori -- April 25

2004-04-28T23:12:00.000-07:00

Marinucci No. 32

The girls and I had a good visit today. The new medication is controlling
Ger's blood pressure. He is back on the vent... this is an on again, off
again situation they call weaning. He is actually doing very well and the
Respiratory Therapist was pleased.

He has orders to be moved out of ICU as soon as there is a bed in the Direct
Observation Unit (DOU) available. They began
the coma stimulation therapy by putting ice cubes on his face and he did respond by
turning his head from side to side. Gerry is increasing in his movements
every day - Praise God. For physical therapy, they put him in a sitting
position today with his legs dangling over the bed and he tolerated this well.

I need to remind everyone that visitors are always welcome. Familiar voices, singing, reading Scripture are all very valuable for
stimulation, of course as well as prayer. Here are some helpful reminders:
Only one person should talk at a time; turn off the TV or music, if it is on
during your visit. Speak slowly and calmly. Remember, that most people believe that a person in
a coma can hear everything you say. He is not really reacting purposefully
yet, but you may give simple verbal commands such as: "open your eyes", "squeeze
my hand", "wiggle your foot." Who knows, you might be the person he responds
to. Just remember to keep it simple and don't change commands. Also give him
time to respond. Often there may be a very delayed reaction as it takes him
time to process. You may turn the CD player on when you leave.

I encourage everyone to use the guest book as a journal to record your
observations. This is helpful and encouraging to the family and me. It
helps me to know others are visiting and curtails the urge I have to camp out at the
hospital all the time and allows me to attend to my other responsibilities.
Also, please don't hesitate to let me know your impressions or if something is not
right. I will not be offended and it will help me to address any problems.

Thanks to all who are "walking this walk" with me. I am confident God is
doing His good work in me, Ger and the girls. I continue to covet your
prayers and am thankful for all the support I have received.

Lovingly, Lori

4/24/04, 7:30AM

What we want to do here:

2004-04-28T13:27:00.000-07:00

This will be an area for Gerry's family to update you on his condition, plus add their own comments and maybe a few pics. Sort of like a family album for Gerry.

steve