12/20/04
Dear Friends & Family,
I'm passing on an update Lori sent last week, and just want to add a note to say that our weekend visit with Gerry for Christmas went very well. Lori and the girls, myself, my parents, my sister Carla, nephew Tony and brother Steve were all there, so it was great to be all together. Sunday Lori and the girls, myself and my parents arrived early to take Gerry to church, and the service was excellent! It was also wonderful to meet the good people of this church who have so welcomed Gerry, Lori and the girls.
Sunday was a very full day for Gerry, complete with the whole Marinucci clan...noise and all! After church, we took him out to lunch, and then went back to his apartment where we met the rest of the clan. Gerry opened up several of his presents for Christmas, and he played his guitar while we sang Christmas carols. At this point we realized Gerry had much too much stimulation, and needed a break. We are learning that we can enjoy times together like old times, but we need to allow breaks inbetween for Gerry. Today Gerry was very alert, and Lori reported that he went to pick out his new glasses which will greatly help his vision. When we left, Gerry was quite emotional while saying goodbye, especially to Dad & Mom. It's good that he is aware of his feelings, and able to express them. Please keep him in your prayers over the holidays while he is away from family, as we will not be able to visit him until after the 1st.
Lori met with Gerry's case manager who said that they would not be able to fully evaluate Gerry's prognosis until sometime in January, however, at this time Gerry does still require one-on-one supervision (not for medical needs, but for safety reasons and to be cued for basic tasks and self care). She strongly recommended that Lori start to look now for someone to supervise Gerry after he returns home...to prepare for the worst case scenario. We ask for your prayers specifically that in the next few months as Gerry continues his treatment at CNS that he would surpass expectations and not need constant supervision. I know this is a great concern because the ramifications are great. However, we trust that God is in control, and that His will be done.
Your prayers are also appreciated for Lori and the girls as they move to Aguanga the week after Christmas. I will be sending out our holiday greeting after New Years, so I want to say now that we wish you all a Blessed holiday with your family! You are all in our hearts this Christmas season as we celebrate Jesus birth!
Love,
Gina
----- Original Message -----
From: Jonathan Hoos
To: Marinucci -Lori's email list
Sent: Tuesday, December 14, 2004 10:15 PM
Subject: Marinucci No. 69
Dec 14, 2004
I had my monthly conference with CNS and the insurance company today and I
thought I'd pass along some of the good news. As a result of his visit with
the neuro-ophthalmologist, Gerry has been prescribed glasses with a prism to
assist with the double vision. Continue to pray that Aetna would reconsider
their position of "experimental treatment" and agree to pay for further necessary
treatment.
Ger's meds have been adjusted and he is sleeping better, but more
importantly, he has not had any incidents of hearing auditory voices. Gerry
has expressed to me "it is good to be back in the land of the living" and seems
more coherent. He saw a ENT physician who confirmed no damage to his vocal cords
or ear drums. Gerry's voice is still hypo-nasal and he doesn't sound like his old
self which bothers him a lot. I'm told they will work with his soft pallet,
breathing and relaxation exercises during speech therapy. Pray that his
memory will allow him to get the most of this treatment. Gerry seems enthusiastic
about working on his voice and is very cooperative, especially when they sing.
He continues to have orientation problems and confusion, but we are seeing
progress in this area. As he begins to verbalize his adjustment to his
disability and has more understanding, it is difficult to accept. He is
very concerned about how he is perceived by others and they are working with him to admit his deficits and accept help. The counselors don't see Gerry evidencing the
normal expected depression as they tend to see in others during this stage.
His counselor attributes this to Gerry's faith. Gerry has told him, "it is God
who gives me my lot, so you get what you get, I'm going to deal with it in
grace." When asked if this trial is a challenge to his faith, he responds
"no, no, it has made it stronger." I am grateful for this fact! May God
continue to encourage him in his position in Christ.
Gerry's physical and verbal aggression has increased, however this is to be
expected because they are "challenging" him in his deficits. He has had a
few outbursts, and twice refused to board the bus from the clinic to return home. He has thankfully calmed down rather quickly. They consider these outbursts relatively minor with 94% compliance. The goal is no outbursts at all.
At the apartments he is making cold meals, beginning to cook on the stovetop
with verbal instruction and prompts. While friendly, he is not initiating
interaction with other clients. He does initiate a lot of his self-care but
needs to work on planning ahead and expecting what activity will come next.
Because of his vision problems, the check list system is not working well.
We are hoping the glasses will assist him in following a written schedule. He
enjoys receiving e-mail, which are read to him and he orally responds while his
aides type out his messages. He is playing his guitar and electric piano
and can pick-out a song when requested to do so. He generally is eager to go on
outings and has only refused a few activities.
On another note, Gerry's primary care physician terminated his care of
Gerry. I sought to select another physician within the same group, who I was
informed had room in his practice, and now I'm being told his practice is
closed. I will attempt to get a physician within the same group to accept him as I
want his current treatment plan to continue as promised. If I were to go with
another group, I would need to re-qualify his current placement at CNS all
over again. Please pray that Gerry will not be "blackballed." I realize the Hemet
Group wants Gerry off their dime, however, they are obligated to provide him
a physician. With everything going on, I would rather not fight this battle
right now.
Gina, Carla, Ger's parents, the girls and I intend to visit Gerry this weekend
for our Christmas celebration. Lord willing we will be able to go to church
together Sunday morning. I must get home for a midweek work commitment,
then Christmas and then we are planning on moving the Monday following Christmas.
It will be a whirlwind! I'm thankful for all of those who are helping to make
this move happen. I couldn't do it without loving friends and family.
Merry Christmas to all my family and friends! May Christ be glorified in
all things.
Love, Lori
Tuesday, December 21, 2004
Sunday, December 05, 2004
Update 12/5/04
12/5/04 9:32pm
Dear Family & Friends,
Passing on an update from Lori. I just spoke with her to see how the weekend visit went with Gerry, and she gave good reports. She said the CNS notes showed that Gerry has been getting a bit feisty at times...probably tired of being constantly watched & told what to do. We thank you for your continued prayers for his spirit, as he likely has several more months there (God willing, with his continued improvement).
Lori also said he did wonderfully when they took him out to dinner, even when he had another episode of his jaw locking open. He did not get agitated, and after some time was able to fix it himself. On Sunday, they took him to church, and Lori said once again the pastor's teaching was phenomenal, and their new church friends very kind and welcoming. What a blessing to have Gerry able to receive such wonderful teaching when he needs it the most. She said he was so jubilated by the sermon, listening very intently and commenting appropriately. Lori spoke of how incredibly encouraging this sermon was, and afterwards she asked Gerry what he thought about the pastor's teaching, and he said "He smoked' it!", and "It was so good for my soul!" Praise God! As always, we thank you for your prayers!
Love,
Gina
--------------
Subject: Marinucci No. 68
Dec. 3, 2004
Gerard is making slow, but steady progress in his therapies. I have been
somewhat removed from the day to day events because of the distance and also
because there is no need to "micro-manage" every detail! It has been
refreshing to have Gerard in a facility that knows brain injury and this time has been a respite for me.
He has been participating in all the events at the apartments and it is
reported that he is very "social" (surprise, surprise!) Four-five times a week he goes out on evening activities such as the movies, hockey games, library, church, etc. He seems to enjoy these events and travels well. He has had a few "flare ups."
Monday, after a good day of therapy, when he went to board the bus, he
stated, "The bus is not safe, I'm not going on it." He was agitated when the RA
attempted to direct him, but stayed on the bus.
I plan to take the girls, along with my brothers' family for a visit this weekend.
I am thankful for the PCA church and those, new friends (friends of friends) that I have met in Bakersfield that have offered to come and pray, read scripture and sing
hymns with Gerard. God's family truly is loving!
On another note, Gina & Steve have offered to co-purchase a home in Aguanga
(30 min east of Temecula) out in the country. It is twice the size of my
current home, on 3 1/2 acres, in a gated community, with a completely fenced
yard, nearby fire station with a 24 hour paramedic, and a community pool. God's
timing is always surprising! (Should you know someone who is looking to purchase
a two bedroom home in Murrieta, let me know!)
I have consulted with family, my elders, Gerry and the counselors at CNS, and
they all believe this would be a good move for us. I am trusting God for
his guidance and covet your prayers for all the details a move requires, with
Christmas and visiting Gerry, it seems overwhelming. But what I have
learned this past year is - one day at a time and step back and watch God work in the
seemingly impossible.
Please pray I will keep my eyes fixed on Jesus and not miss the opportunity
for my girls to understand the beauty of His incarnation and the peace for today
as He still dwells with us by His Spirit.
Love, Lori
Dear Family & Friends,
Passing on an update from Lori. I just spoke with her to see how the weekend visit went with Gerry, and she gave good reports. She said the CNS notes showed that Gerry has been getting a bit feisty at times...probably tired of being constantly watched & told what to do. We thank you for your continued prayers for his spirit, as he likely has several more months there (God willing, with his continued improvement).
Lori also said he did wonderfully when they took him out to dinner, even when he had another episode of his jaw locking open. He did not get agitated, and after some time was able to fix it himself. On Sunday, they took him to church, and Lori said once again the pastor's teaching was phenomenal, and their new church friends very kind and welcoming. What a blessing to have Gerry able to receive such wonderful teaching when he needs it the most. She said he was so jubilated by the sermon, listening very intently and commenting appropriately. Lori spoke of how incredibly encouraging this sermon was, and afterwards she asked Gerry what he thought about the pastor's teaching, and he said "He smoked' it!", and "It was so good for my soul!" Praise God! As always, we thank you for your prayers!
Love,
Gina
--------------
Subject: Marinucci No. 68
Dec. 3, 2004
Gerard is making slow, but steady progress in his therapies. I have been
somewhat removed from the day to day events because of the distance and also
because there is no need to "micro-manage" every detail! It has been
refreshing to have Gerard in a facility that knows brain injury and this time has been a respite for me.
He has been participating in all the events at the apartments and it is
reported that he is very "social" (surprise, surprise!) Four-five times a week he goes out on evening activities such as the movies, hockey games, library, church, etc. He seems to enjoy these events and travels well. He has had a few "flare ups."
Monday, after a good day of therapy, when he went to board the bus, he
stated, "The bus is not safe, I'm not going on it." He was agitated when the RA
attempted to direct him, but stayed on the bus.
I plan to take the girls, along with my brothers' family for a visit this weekend.
I am thankful for the PCA church and those, new friends (friends of friends) that I have met in Bakersfield that have offered to come and pray, read scripture and sing
hymns with Gerard. God's family truly is loving!
On another note, Gina & Steve have offered to co-purchase a home in Aguanga
(30 min east of Temecula) out in the country. It is twice the size of my
current home, on 3 1/2 acres, in a gated community, with a completely fenced
yard, nearby fire station with a 24 hour paramedic, and a community pool. God's
timing is always surprising! (Should you know someone who is looking to purchase
a two bedroom home in Murrieta, let me know!)
I have consulted with family, my elders, Gerry and the counselors at CNS, and
they all believe this would be a good move for us. I am trusting God for
his guidance and covet your prayers for all the details a move requires, with
Christmas and visiting Gerry, it seems overwhelming. But what I have
learned this past year is - one day at a time and step back and watch God work in the
seemingly impossible.
Please pray I will keep my eyes fixed on Jesus and not miss the opportunity
for my girls to understand the beauty of His incarnation and the peace for today
as He still dwells with us by His Spirit.
Love, Lori
Monday, November 08, 2004
11/8/04 update from Lori
11/8/04
Dear Family & Friends,
Passing on an important update from Lori. As always, thank you for your continued prayers & support!
Blessings,
Gina
------------------------------------
Thanks for your prayers and concerns. Last week was a whirlwind... fighting
the insurance company and then an immediate turnaround. God is faithful.
I got word of the insurance company's approval about 3:00 Wed that they wanted
Gerard midmorning on Thursday.
Gerry traveled well to Bakersfield and the transition went smoothly. He
expressed concerns about being an embarrassment and being sent away; pray
for his understanding and fortitude for his own rehabilitation. He is disoriented
and doesn't realize he is in Bakersfield, far from home. He continues to
"wait" for us to "swing by for a visit when we get a minute or to take him to
church." He refused to get in the van to take him to church Sunday because
"his wife was coming to get him any minute." Pray for his orientation.
Centre for Neuro Skills has a different concept than any hospital or rehab
program that I have experienced. They believe in the concept of a "rhythm
of living" where therapy programs and residential care closely simulate
real-life situations Gerry will face on discharge. The goals stress independence,
self-reliance, and social control. The founder's brother and our case
manager have family that experienced brain injury.
Gerry will reside at the apartments, about 30 minutes away from the clinic.
This is a regular apartment complex that the Centre owns and is not a
locked-in facility. However, they have a security system similar to stores
with someone monitoring a bank of cameras and staff with walkie-talkies that are
continually monitoring the grounds.
At the apartments, there is a very detailed program on a point basis that
breaks down all the tasks of daily living to multiple steps. Gerry will be
graded on his initiation of task, and proper completion, of each step. He
has an RA who stays with him at all times, recording all behaviors, providing first
a verbal cue if necessary, physical/verbal cue or doing the step for them if
he can't complete same. This information will be input into a computer program
to prepare his own individualized treatment program. The RA also helps with
continuous and immediate feedback. His deficits will also be incorporated
into treatment tasks at the clinic.
Gerry is given a certain amount of money weekly for groceries and
activities. He is expected to prepare his own meals, plan a menu, shop for groceries,
budget monies, do his laundry, self care, cleaning, time management, etc.
Gerry packs his own lunch and takes a Centre bus and "commutes to work" at the
clinic. At the clinic he has 4 therapy sessions and one hour of counseling a
day. He then commutes back "home", has an hour of rest/recreation of his choice
and then preps his evening meal, does laundry, chores and then several times
a week goes out for a community outing, i.e. movie, hockey game, haircuts,
bowling, church.
Gerry will not have a lot of down-time, however, daily he is to check his
mail box and e-mail. It is always more encouraging when there is mail in the
box.
Please e-mail him. Include in your note,
how you know Gerry and pictures are also welcome. They recommended a few weeks
of transition before he can accept telephone calls from friends.
I am also encouraged that they strongly consider family participation
important and strive to keep the family educated in the treatment program,
working with expectations, fears, etc. We can all participate in counseling and
perhaps even have family sessions via video-teleconferencing. Pray that we will all
get the help we need to make the long term transition to Gerry's disability.
Pray that the children and I can adjust and have peace during this "new"
stage with Gerry so far from home as we entrust Gerry to this program for
the next 4 months. I am further encouraged that a follow-up survey with all CNS
clients, 6 months after discharge, showed 94% of clients maintained or
improved discharge levels. Continued long-term discharge services are also available
to us.
Lori
"Peace I leave with you, my peace I give unto you; not as the world giveth,
give I unto you. Let not your heart be troubled, neither let it be afraid."
John 14:27.
Dear Family & Friends,
Passing on an important update from Lori. As always, thank you for your continued prayers & support!
Blessings,
Gina
------------------------------------
Thanks for your prayers and concerns. Last week was a whirlwind... fighting
the insurance company and then an immediate turnaround. God is faithful.
I got word of the insurance company's approval about 3:00 Wed that they wanted
Gerard midmorning on Thursday.
Gerry traveled well to Bakersfield and the transition went smoothly. He
expressed concerns about being an embarrassment and being sent away; pray
for his understanding and fortitude for his own rehabilitation. He is disoriented
and doesn't realize he is in Bakersfield, far from home. He continues to
"wait" for us to "swing by for a visit when we get a minute or to take him to
church." He refused to get in the van to take him to church Sunday because
"his wife was coming to get him any minute." Pray for his orientation.
Centre for Neuro Skills has a different concept than any hospital or rehab
program that I have experienced. They believe in the concept of a "rhythm
of living" where therapy programs and residential care closely simulate
real-life situations Gerry will face on discharge. The goals stress independence,
self-reliance, and social control. The founder's brother and our case
manager have family that experienced brain injury.
Gerry will reside at the apartments, about 30 minutes away from the clinic.
This is a regular apartment complex that the Centre owns and is not a
locked-in facility. However, they have a security system similar to stores
with someone monitoring a bank of cameras and staff with walkie-talkies that are
continually monitoring the grounds.
At the apartments, there is a very detailed program on a point basis that
breaks down all the tasks of daily living to multiple steps. Gerry will be
graded on his initiation of task, and proper completion, of each step. He
has an RA who stays with him at all times, recording all behaviors, providing first
a verbal cue if necessary, physical/verbal cue or doing the step for them if
he can't complete same. This information will be input into a computer program
to prepare his own individualized treatment program. The RA also helps with
continuous and immediate feedback. His deficits will also be incorporated
into treatment tasks at the clinic.
Gerry is given a certain amount of money weekly for groceries and
activities. He is expected to prepare his own meals, plan a menu, shop for groceries,
budget monies, do his laundry, self care, cleaning, time management, etc.
Gerry packs his own lunch and takes a Centre bus and "commutes to work" at the
clinic. At the clinic he has 4 therapy sessions and one hour of counseling a
day. He then commutes back "home", has an hour of rest/recreation of his choice
and then preps his evening meal, does laundry, chores and then several times
a week goes out for a community outing, i.e. movie, hockey game, haircuts,
bowling, church.
Gerry will not have a lot of down-time, however, daily he is to check his
mail box and e-mail. It is always more encouraging when there is mail in the
box.
Please e-mail him. Include in your note,
how you know Gerry and pictures are also welcome. They recommended a few weeks
of transition before he can accept telephone calls from friends.
I am also encouraged that they strongly consider family participation
important and strive to keep the family educated in the treatment program,
working with expectations, fears, etc. We can all participate in counseling and
perhaps even have family sessions via video-teleconferencing. Pray that we will all
get the help we need to make the long term transition to Gerry's disability.
Pray that the children and I can adjust and have peace during this "new"
stage with Gerry so far from home as we entrust Gerry to this program for
the next 4 months. I am further encouraged that a follow-up survey with all CNS
clients, 6 months after discharge, showed 94% of clients maintained or
improved discharge levels. Continued long-term discharge services are also available
to us.
Lori
"Peace I leave with you, my peace I give unto you; not as the world giveth,
give I unto you. Let not your heart be troubled, neither let it be afraid."
John 14:27.
Wednesday, November 03, 2004
Update 11/3 from Gina
Dear Family & Friends,
We are so happy to pass on this incredible praise report, and thank you for praying with us!
God Bless,
Gina
----- Original Message -----
From: AGA News
To: AGA Group 04-05
Sent: Wednesday, November 03, 2004 9:09 PM
Subject: Marinucci No. 64
Nov 3, 2004
Lori has great, Great, GREAT news!
Gerry has been approved by Aetna insurance to go to Bakersfield for additional rehabilitation for the next four months. Lori praises God for this development. Lori is very happy with this outcome and gives the glory to God. Thank you for your prayers and thank God for His kindness in this situation.
Gerry will be transferred tomorrow, Thursday, and Lori and Gina will be driving. Her prayer request is for traveling mercies and the transition. Please pray that Gerry will adjust well to his new surroundings and understand that this is for his benefit immediately and for the family in the long run.
Lori is grateful for all of you that visited Gerry in Escondido and as of early Thursday morning there is no longer any need for you to stop by.
Lori and the family thank you for all your care and all your prayers.
---------------------------
A note from Steve: I talked with Gina and Lori recently and both were really hoping that Gerry would be sent here because the evaluation the facility did with him showed he'd gain much from being treated there. So this is very good news.
We are so happy to pass on this incredible praise report, and thank you for praying with us!
God Bless,
Gina
----- Original Message -----
From: AGA News
To: AGA Group 04-05
Sent: Wednesday, November 03, 2004 9:09 PM
Subject: Marinucci No. 64
Nov 3, 2004
Lori has great, Great, GREAT news!
Gerry has been approved by Aetna insurance to go to Bakersfield for additional rehabilitation for the next four months. Lori praises God for this development. Lori is very happy with this outcome and gives the glory to God. Thank you for your prayers and thank God for His kindness in this situation.
Gerry will be transferred tomorrow, Thursday, and Lori and Gina will be driving. Her prayer request is for traveling mercies and the transition. Please pray that Gerry will adjust well to his new surroundings and understand that this is for his benefit immediately and for the family in the long run.
Lori is grateful for all of you that visited Gerry in Escondido and as of early Thursday morning there is no longer any need for you to stop by.
Lori and the family thank you for all your care and all your prayers.
---------------------------
A note from Steve: I talked with Gina and Lori recently and both were really hoping that Gerry would be sent here because the evaluation the facility did with him showed he'd gain much from being treated there. So this is very good news.
Monday, November 01, 2004
Update from Gina 11/1/04
11/1/04
Dear Family & Friends,
Last week Gerry came home again for the weekend from Escondido. The Bakersfield Centre for Neuro Skills came out to evaluate Gerry for their renowned program. The evaluation was close to 4 hours, and Gerry stayed alert and focused for the whole thing. We learned more in this one evaluation than we have in the last 8 months! We believe that the Centre for Neuro Skills is where Gerry will get the treatment that he needs with the professionals who specialize in brain injury. Their recommendation is for Gerry to stay inpatient at the Centre for 4-6 months. They stated that Gerry is an ideal candidate for the treatment they provide, and they are hopeful that upon completion, Gerry could stay by himself, and possibly handle the tasks & responsibility of employment.
This weekend was again a difficult one with unfounded agitation, aggression and outbursts. The girls were hardly at home, and Gerry still lacked patience and understanding about his inappropriate reactions. This weekend was an experiment in our minds to see if his behavior from last week would be repeated.
The fact that it was confirms without a doubt that Gerry is not ready to be in his home environment until he receives the treatment he needs. Also, Gerry has been talking about hearing voices, and we ask for your prayer as we don't know if this is from his brain injury, or a psychotic result from his new medication. We pray for answers and the right treatment, and for Gerry's peace as he struggles through this difficulty.
God is working through these difficulties...a higher-up supervisor at the insurance company verbalized to Lori that they have not handled Gerry's claim properly, and have given verbal assurance to see what they could do to convert the 'skilled nursing home benefit' to pay for therapy for Gerry. Lori has gotten verbal assurances before that have not gone through. Bakersfield is submitting their evaluation to Aetna, and said that Aetna seems to be trying to work with them. Bakersfield also noticed that Lori and Gerry's insurance possibly allows for 60 days of treatment per calendar year, which means if Aetna approves Gerry to go to Bakersfield asap, Gerry can benefit from close to 60 days of treatment before the end of the year, and hopefully get another 60 days of treatment in 2005. Again, we see God working greatly as the insurance previously would not even consider Bakersfield, and your prayers for this miracle are much needed and so appreciated.
Lori stated tonight that she believes it was necessary to go through the many difficulties to get to this point where the insurance realizes this treatment in Bakersfield is necessary for Gerry. We know God has used all the circumstances for His purpose and pray for His continuing provision. We ask you to pray along with us for the door to open for this treatment as soon as possible (hopefully this week), as the outcome would dramatically change for the better the future for this family.
Thank you to all for your prayers, to those who have graciously committed to visiting Gerry in Escondido, to all of you for your endless support and encouragement.
God Bless you all!
Gina
Dear Family & Friends,
Last week Gerry came home again for the weekend from Escondido. The Bakersfield Centre for Neuro Skills came out to evaluate Gerry for their renowned program. The evaluation was close to 4 hours, and Gerry stayed alert and focused for the whole thing. We learned more in this one evaluation than we have in the last 8 months! We believe that the Centre for Neuro Skills is where Gerry will get the treatment that he needs with the professionals who specialize in brain injury. Their recommendation is for Gerry to stay inpatient at the Centre for 4-6 months. They stated that Gerry is an ideal candidate for the treatment they provide, and they are hopeful that upon completion, Gerry could stay by himself, and possibly handle the tasks & responsibility of employment.
This weekend was again a difficult one with unfounded agitation, aggression and outbursts. The girls were hardly at home, and Gerry still lacked patience and understanding about his inappropriate reactions. This weekend was an experiment in our minds to see if his behavior from last week would be repeated.
The fact that it was confirms without a doubt that Gerry is not ready to be in his home environment until he receives the treatment he needs. Also, Gerry has been talking about hearing voices, and we ask for your prayer as we don't know if this is from his brain injury, or a psychotic result from his new medication. We pray for answers and the right treatment, and for Gerry's peace as he struggles through this difficulty.
God is working through these difficulties...a higher-up supervisor at the insurance company verbalized to Lori that they have not handled Gerry's claim properly, and have given verbal assurance to see what they could do to convert the 'skilled nursing home benefit' to pay for therapy for Gerry. Lori has gotten verbal assurances before that have not gone through. Bakersfield is submitting their evaluation to Aetna, and said that Aetna seems to be trying to work with them. Bakersfield also noticed that Lori and Gerry's insurance possibly allows for 60 days of treatment per calendar year, which means if Aetna approves Gerry to go to Bakersfield asap, Gerry can benefit from close to 60 days of treatment before the end of the year, and hopefully get another 60 days of treatment in 2005. Again, we see God working greatly as the insurance previously would not even consider Bakersfield, and your prayers for this miracle are much needed and so appreciated.
Lori stated tonight that she believes it was necessary to go through the many difficulties to get to this point where the insurance realizes this treatment in Bakersfield is necessary for Gerry. We know God has used all the circumstances for His purpose and pray for His continuing provision. We ask you to pray along with us for the door to open for this treatment as soon as possible (hopefully this week), as the outcome would dramatically change for the better the future for this family.
Thank you to all for your prayers, to those who have graciously committed to visiting Gerry in Escondido, to all of you for your endless support and encouragement.
God Bless you all!
Gina
Sunday, October 31, 2004
A new news story on Gerry (with picture)
The Riverside News-Enterprise ran a follow-up story on Gerry Saturday. Gina tells me they came out and interviewed him and Lori and they took many pics of Gerry, one of which is online. It's a very dark, moody picture, but he looks quite good in it. The story can be found here. (You may need to register to read it, but registration is free.)
Sunday, October 24, 2004
Update from Gina 10/24/04
Dear Family & Friends,
As Gerry's week at home progressed, the difficulties increased, and the Marinucci family is in urgent need of prayer.
First let me say that Gerry did so well for the first half of the week or so. He has been so alert at times, and we have been amazed at how well he sometimes communicates with his unique sense of humor. He truly has come such a long way, but we realize that sometimes setbacks do occur.
I mentioned in my last update that he was not taking the rest periods that he now needs due to his injury. This lack of rest only increased his agitation in several ways as the days went on. Any suggestions or direction from his wife to rest or relax, no matter how gentle, were not received well. The same resulted when Lori or the girls made a gentle mention of "lunch will be ready in a few minutes" in order to get him to wait because he has the most unusual ravenous appetite. (We don't know if this is a side effect from a prescription or a problem discerning real hunger because of his brain injury). This week and a half at home has confirmed our beliefs that Gerry needs much more therapy, more advanced than he has had thus far.
Last night, Gerry even refused to go to bed at night and stayed on the recliner in the living room. Lori checked on him several times, but he still would not come to bed. She waited in the bedroom with the T.V. on to keep herself awake so that she could check on him again. But she was so exhausted, she fell asleep. At two o'clock in the morning, the doorbell rang, and it was the police with Gerry. He had walked probably a half mile in his pajama bottoms and t-shirt and bare feet. He was disoriented, and only knew his and Lori's first names, and thought he lived in Santa Clara. If it weren't for a teenage neighbor coming home who spotted Gerry on the side of the road with the policeman, who knows what would have happened to him. After the policeman left, and Lori asked Gerry what he was doing, he said he was going to work on his bicycle. The next morning when she questioned him again, he said he just wanted to go for a walk to watch the traffic. (Lori said when Anessa was little, he used to take her for walks and they would count the different color cars) He did not understand the unappropriateness of leaving the house in the middle of the night and not telling anyone, or the fact that he is not safe by himself yet. This experience has been very scary for Lori and the girls, and probably for Gerry, too.
Today we took Gerry to his new rehab living center, which is in Escondido. The plan was to have Gerry stay from Sunday dinner time through Wednesday early evening. This way, Lori could work her 3 ten hour days while the girls are also graciously cared for and homeschooled by dear friends of theirs. Then the girls and Gerry would be home from Wednesday evening through Sunday evening.
May we ask you to join us in prayer to lift up this dear family for the following needs:
***Lori's greatest need and request is for those of you who know Gerry and live in the area to please help out by visiting Gerry. This is the only way she will be able to concentrate on getting her hours in at work, so that we the family can be fully available to be there for her and Gerry and the girls on the weekends. We hope and pray that maybe a rotating visiting schedule can be set up for visitors (Sunday eve , Monday, Tuesday & Wednesday afternoon.) so that hopefully visitors can go once a month or once every two months. Mon,Tues, & Wed. are the most important days.
***Please lift Lori up in prayer for strength and wisdom as she faces so much. She will be on the phone all week battling with the insurance company to get the right treatment for Gerry. The insurance co. discharged Gerry without a further plan for treatment, which almost turned out to be disastrous this week. Lori is paying for Learning Services in-patient care herself at this time because the insurance will not. We believe Gerry needs to see a Neuropsychologist, and pray that we will be able to arrange that this week before he is set to come home Wednesday so that we can have some important answers. Are Gerry's episodes of disorientation simply due to exhaustion (because he did not have this experience before)? Or maybe he needs to have another CT-Scan to see if there are any changes in the brain? And how can Gerry's agitation be dealt with? Through therapy, medication, etc.? We also know that we will need to get their home alarmed this week before he comes home again. The answers to these questions, and much more needs to be considered before we can continue with the plan to bring him back home for the weekend, or we may have to realize that he is not ready to be home yet. If that is the case, then we will need to arrange for full-time in-patient care without the help of insurance.
We believe that with the right answers from the right professionals, we can set up the treatment plan that Gerry needs to work through these very common symptoms of traumatic brain injury (TBI). We know that we are very blessed, as we've heard that agitation from TBI can be much worse than what Gerry has exhibited this week. We see how Gerry's fighting spirit has brought him back to us this far, and we'll keep pursuing the right help for him so that he can come home to his family for good. I know this was a long message, and thank you for your time and willingness to pray for Gerry, Lori and the girls. Your faithful prayers mean so much to us and we are so very grateful.
God Bless,
Gina
As Gerry's week at home progressed, the difficulties increased, and the Marinucci family is in urgent need of prayer.
First let me say that Gerry did so well for the first half of the week or so. He has been so alert at times, and we have been amazed at how well he sometimes communicates with his unique sense of humor. He truly has come such a long way, but we realize that sometimes setbacks do occur.
I mentioned in my last update that he was not taking the rest periods that he now needs due to his injury. This lack of rest only increased his agitation in several ways as the days went on. Any suggestions or direction from his wife to rest or relax, no matter how gentle, were not received well. The same resulted when Lori or the girls made a gentle mention of "lunch will be ready in a few minutes" in order to get him to wait because he has the most unusual ravenous appetite. (We don't know if this is a side effect from a prescription or a problem discerning real hunger because of his brain injury). This week and a half at home has confirmed our beliefs that Gerry needs much more therapy, more advanced than he has had thus far.
Last night, Gerry even refused to go to bed at night and stayed on the recliner in the living room. Lori checked on him several times, but he still would not come to bed. She waited in the bedroom with the T.V. on to keep herself awake so that she could check on him again. But she was so exhausted, she fell asleep. At two o'clock in the morning, the doorbell rang, and it was the police with Gerry. He had walked probably a half mile in his pajama bottoms and t-shirt and bare feet. He was disoriented, and only knew his and Lori's first names, and thought he lived in Santa Clara. If it weren't for a teenage neighbor coming home who spotted Gerry on the side of the road with the policeman, who knows what would have happened to him. After the policeman left, and Lori asked Gerry what he was doing, he said he was going to work on his bicycle. The next morning when she questioned him again, he said he just wanted to go for a walk to watch the traffic. (Lori said when Anessa was little, he used to take her for walks and they would count the different color cars) He did not understand the unappropriateness of leaving the house in the middle of the night and not telling anyone, or the fact that he is not safe by himself yet. This experience has been very scary for Lori and the girls, and probably for Gerry, too.
Today we took Gerry to his new rehab living center, which is in Escondido. The plan was to have Gerry stay from Sunday dinner time through Wednesday early evening. This way, Lori could work her 3 ten hour days while the girls are also graciously cared for and homeschooled by dear friends of theirs. Then the girls and Gerry would be home from Wednesday evening through Sunday evening.
May we ask you to join us in prayer to lift up this dear family for the following needs:
***Lori's greatest need and request is for those of you who know Gerry and live in the area to please help out by visiting Gerry. This is the only way she will be able to concentrate on getting her hours in at work, so that we the family can be fully available to be there for her and Gerry and the girls on the weekends. We hope and pray that maybe a rotating visiting schedule can be set up for visitors (Sunday eve , Monday, Tuesday & Wednesday afternoon.) so that hopefully visitors can go once a month or once every two months. Mon,Tues, & Wed. are the most important days.
***Please lift Lori up in prayer for strength and wisdom as she faces so much. She will be on the phone all week battling with the insurance company to get the right treatment for Gerry. The insurance co. discharged Gerry without a further plan for treatment, which almost turned out to be disastrous this week. Lori is paying for Learning Services in-patient care herself at this time because the insurance will not. We believe Gerry needs to see a Neuropsychologist, and pray that we will be able to arrange that this week before he is set to come home Wednesday so that we can have some important answers. Are Gerry's episodes of disorientation simply due to exhaustion (because he did not have this experience before)? Or maybe he needs to have another CT-Scan to see if there are any changes in the brain? And how can Gerry's agitation be dealt with? Through therapy, medication, etc.? We also know that we will need to get their home alarmed this week before he comes home again. The answers to these questions, and much more needs to be considered before we can continue with the plan to bring him back home for the weekend, or we may have to realize that he is not ready to be home yet. If that is the case, then we will need to arrange for full-time in-patient care without the help of insurance.
We believe that with the right answers from the right professionals, we can set up the treatment plan that Gerry needs to work through these very common symptoms of traumatic brain injury (TBI). We know that we are very blessed, as we've heard that agitation from TBI can be much worse than what Gerry has exhibited this week. We see how Gerry's fighting spirit has brought him back to us this far, and we'll keep pursuing the right help for him so that he can come home to his family for good. I know this was a long message, and thank you for your time and willingness to pray for Gerry, Lori and the girls. Your faithful prayers mean so much to us and we are so very grateful.
God Bless,
Gina
Thursday, October 21, 2004
A new newspaper story about Gerry
It's a touching column by North County Times/Riverside Californian columnist John Hunneman that ran in Tuesday's paper. You can find the story at this link. (Note: Registration may be required. Thanks to Gina for letting us know about the article.)
Tuesday, October 19, 2004
Update 10/19/04 from Gina
Dear Friends & Family,
As I told you in our last update, Gerry was discharged from Ballard Rehab last Thursday. He was so thrilled to come home! He has been very alert, and basically doing very well, enjoying every moment of "freedom", and certainly enjoying "freedom" in the kitchen...the taste of real food! Lori has been trying to limit his "grazing" to keep him from gaining back the weight he has lost. We know gaining more weight would inhibit his mobility even more. Who can blame him after 6+ months of hospital food...God love him! I think after getting used to being at home, he will realize the need for moderation. Also, before his accident, he never was one to rest or nap. He was always "going" then, too. Well, things haven't changed! Gerry constantly wants to be on the go. But the challenge is that his body now NEEDS to rest here and there in order to keep functioning. Especially by the early afternoon, he gets quite tired. If he keeps going and refuses to rest (which is a daily struggle), he then gets grumpy and agitated, and can unnecessarily lash out at family members.
I also think that he probably feels that he has missed out on life these past months, and doesn't want a moment to pass him by. But we pray that he will soon understand that he will function better and enjoy life more if he allows himself the short rests that he needs. He still struggles to find the right words and in his communication. We pray that in time, and through the right therapy, that God will increase his abilities in this area.
Lori has also been allowing Gerry to do what he can for himself to see what he can do while also giving him the dignity of doing his own self-care. He is doing so much better with things like showering, etc.
Of course, Lori carefully watches him because he still struggles with his balance at times. He has that Italian stubborn streak in him, and won't accept help with his shaving. Once again, Lori graciously allows him the dignity to do it himself even though the job is not done evenly. Her loving support, patience, and advocation for Gerry to the insurance companies has been a tremendous example of selflessness and true commitment in marriage. What an inspiration she and Gerry are as they work together in the true meaning of teamwork!
Gerry's sense of humor is strongly in tact, as he jokes around in Italian or Spanish, with the perfect accents! He comes up with the funniest one-liners at times. Driving over to our house, he noticed the brand new Krispy Kreme Donut Shop, as he said "Oh, a new donut shop...I think I feel an addiction coming on!" Or, one day as he was struggling with his thoughts, he said something like "Oh, this brain of mine, I don't know apples from oranges!". I could go on and on with these....I told Lori she should keep a notepad with her and write a book someday!
Friends, the insurance company is still pulling last minute delays. We discharged Gerry last Thursday with no clear plan for his further treatment. Friday Lori took him to his local doctor, where we heard some positive news that Aetna wanted to recommend a two week trial for therapy only at Learning Services at Escondido. They had to work it out with the medical group and would let us know by today. Well, today, they got back to Lori and they are somehow conviced that Learning Services is "unsafe". We have no idea what they mean by this.
Lori has scheduled an evaluation tomorrow afternoon with 'Rehab without Walls', and will also be having the Centre for Neuro Skills of Bakersfield evaluate Gerry also. She only has this week off of work, and no set plan yet for Gerry's therapy because of the insurance rigamorole. Please continue in urgent prayer for God's clear provision and direction in this area. We know that the answer will be made clear at the right time, and trust in His plan.
Also pray for the remainder of Gerry's week at home with his family. He is so much enjoying his time with his family, and we want to carefully and prayerfully make decisions for his next step while getting him the treatment that he needs.
God Bless you all for your love and support, and for your faithful prayers!!!
Love,
Gina
As I told you in our last update, Gerry was discharged from Ballard Rehab last Thursday. He was so thrilled to come home! He has been very alert, and basically doing very well, enjoying every moment of "freedom", and certainly enjoying "freedom" in the kitchen...the taste of real food! Lori has been trying to limit his "grazing" to keep him from gaining back the weight he has lost. We know gaining more weight would inhibit his mobility even more. Who can blame him after 6+ months of hospital food...God love him! I think after getting used to being at home, he will realize the need for moderation. Also, before his accident, he never was one to rest or nap. He was always "going" then, too. Well, things haven't changed! Gerry constantly wants to be on the go. But the challenge is that his body now NEEDS to rest here and there in order to keep functioning. Especially by the early afternoon, he gets quite tired. If he keeps going and refuses to rest (which is a daily struggle), he then gets grumpy and agitated, and can unnecessarily lash out at family members.
I also think that he probably feels that he has missed out on life these past months, and doesn't want a moment to pass him by. But we pray that he will soon understand that he will function better and enjoy life more if he allows himself the short rests that he needs. He still struggles to find the right words and in his communication. We pray that in time, and through the right therapy, that God will increase his abilities in this area.
Lori has also been allowing Gerry to do what he can for himself to see what he can do while also giving him the dignity of doing his own self-care. He is doing so much better with things like showering, etc.
Of course, Lori carefully watches him because he still struggles with his balance at times. He has that Italian stubborn streak in him, and won't accept help with his shaving. Once again, Lori graciously allows him the dignity to do it himself even though the job is not done evenly. Her loving support, patience, and advocation for Gerry to the insurance companies has been a tremendous example of selflessness and true commitment in marriage. What an inspiration she and Gerry are as they work together in the true meaning of teamwork!
Gerry's sense of humor is strongly in tact, as he jokes around in Italian or Spanish, with the perfect accents! He comes up with the funniest one-liners at times. Driving over to our house, he noticed the brand new Krispy Kreme Donut Shop, as he said "Oh, a new donut shop...I think I feel an addiction coming on!" Or, one day as he was struggling with his thoughts, he said something like "Oh, this brain of mine, I don't know apples from oranges!". I could go on and on with these....I told Lori she should keep a notepad with her and write a book someday!
Friends, the insurance company is still pulling last minute delays. We discharged Gerry last Thursday with no clear plan for his further treatment. Friday Lori took him to his local doctor, where we heard some positive news that Aetna wanted to recommend a two week trial for therapy only at Learning Services at Escondido. They had to work it out with the medical group and would let us know by today. Well, today, they got back to Lori and they are somehow conviced that Learning Services is "unsafe". We have no idea what they mean by this.
Lori has scheduled an evaluation tomorrow afternoon with 'Rehab without Walls', and will also be having the Centre for Neuro Skills of Bakersfield evaluate Gerry also. She only has this week off of work, and no set plan yet for Gerry's therapy because of the insurance rigamorole. Please continue in urgent prayer for God's clear provision and direction in this area. We know that the answer will be made clear at the right time, and trust in His plan.
Also pray for the remainder of Gerry's week at home with his family. He is so much enjoying his time with his family, and we want to carefully and prayerfully make decisions for his next step while getting him the treatment that he needs.
God Bless you all for your love and support, and for your faithful prayers!!!
Love,
Gina
Thursday, October 14, 2004
Marinucci No. 59, urgent prayer
Tuesday Oct. 12, 2004
Crunch time!
The insurance denied the referral to Escondido Learning Services at the last
minute. I have made a 72 hour appeal of their decision and await an answer
on Wed pm. Gerry is set to be discharge from Ballard on Thursday. His nurses
report "he is climbing the walls." Gerry is becoming more agitated as the
days go on as he verbalizes his desire to go home. He is trying to break out and
I receive regular calls from him as to when I am coming to take him home?
Pray his stay will not be prolonged as this will not help him.
I have modified the request for Escondido Learning Services, and now seek
treatment for physical, speech (cognitive), occupational therapy and
nero-phsyc appointments only. These are all benefited services to which Gerry is
entitled. The HMO requires the services be done within the network.
(Learning Services is out of network.) However, the current discharge plan is not
acceptable in that the two facilities they recommend in their network, don't take
outpatients and don't deal with brain injury patients respectively. Pray
they will reconsider and make a referral for out-of-network services to provide
for a workable plan to meet Gerry's needs.
Praise God that Aetna's subrogation department verbally indicated they will
not pursue the monies I received on my own un-insured's auto policy which
leaves me some money in order to private pay for in-care treatment at
Learning Services. Continue to pray I will in fact receive this decision in writing
soon from their legal department so I can be certain I can utilize these monies.
My desire is to have Aetna pay for the therapies and I would pay for the day
and overnight care at Escondido. Gerry would stay Sunday pm until Thursday
for his treatment and then come home for the weekends. Hopefully this time
at home will motivate him.
Please continue with me before the throne! May God be Praised. Love, Lori
Crunch time!
The insurance denied the referral to Escondido Learning Services at the last
minute. I have made a 72 hour appeal of their decision and await an answer
on Wed pm. Gerry is set to be discharge from Ballard on Thursday. His nurses
report "he is climbing the walls." Gerry is becoming more agitated as the
days go on as he verbalizes his desire to go home. He is trying to break out and
I receive regular calls from him as to when I am coming to take him home?
Pray his stay will not be prolonged as this will not help him.
I have modified the request for Escondido Learning Services, and now seek
treatment for physical, speech (cognitive), occupational therapy and
nero-phsyc appointments only. These are all benefited services to which Gerry is
entitled. The HMO requires the services be done within the network.
(Learning Services is out of network.) However, the current discharge plan is not
acceptable in that the two facilities they recommend in their network, don't take
outpatients and don't deal with brain injury patients respectively. Pray
they will reconsider and make a referral for out-of-network services to provide
for a workable plan to meet Gerry's needs.
Praise God that Aetna's subrogation department verbally indicated they will
not pursue the monies I received on my own un-insured's auto policy which
leaves me some money in order to private pay for in-care treatment at
Learning Services. Continue to pray I will in fact receive this decision in writing
soon from their legal department so I can be certain I can utilize these monies.
My desire is to have Aetna pay for the therapies and I would pay for the day
and overnight care at Escondido. Gerry would stay Sunday pm until Thursday
for his treatment and then come home for the weekends. Hopefully this time
at home will motivate him.
Please continue with me before the throne! May God be Praised. Love, Lori
Saturday, October 09, 2004
Update (10/8/04) from Gina
Alayna and Mom, Lori, the girls and I went to see Gerry yesterday (Thursday), and had a great visit. On a whim, we decided to ask the nurses if we could take Gerr out for dinner. It was fine, so it was a nice surprise for Gerr and all of us. We asked him what he wanted to eat, and he said PIZZA! We asked one of the nurses to recommend a good pizza place. Good recommendation....we went to Alfredo's Pizza & Pasta, and it was equipped with the checked tableclothes, the fake grapes all over the place, and gum stuck to the bottom of the tables & chairs! We were cracking up.
The funny thing was, that as we were joking around, Gerry started joking around in his Italian accent, and it was great! Things like this are coming back to him as sure as day, and he sounded like a true Italian! He loved the pizza, it was really great! O.k., it was not a great night for the diet, but we really had a great time with him. He is truly ready to move on, because when he's out of the hospital, he is in rare form, as happy as a clam, and it is great to see. Anyway, the whole way back to the hospital, he talked in combination of Italian and Spanish with the Italian accent! We couldn't always figure out what he was saying, but like Lori said, a couple of weeks ago, she asked Gerry to say a few words in Spanish, and he couldn't say any. So, it was great!
Of course, when we got back to the hospital, he didn't wanna go back in, and took a few minutes to sit in the van while Lori talked to him. He finally came back in. Lori told him we wouldn't be able to see him Fri. or Sat. (because we're all going on a two night camping weekend down near San Diego...I don't think she told him that, though), but that she'd be up to see him on Sunday. He was kind of down at that point and told her "You're never coming back to see me." He's just ready to be out of there. We all reassured him, and told him he'll be out of there next week.
The funny thing was, that as we were joking around, Gerry started joking around in his Italian accent, and it was great! Things like this are coming back to him as sure as day, and he sounded like a true Italian! He loved the pizza, it was really great! O.k., it was not a great night for the diet, but we really had a great time with him. He is truly ready to move on, because when he's out of the hospital, he is in rare form, as happy as a clam, and it is great to see. Anyway, the whole way back to the hospital, he talked in combination of Italian and Spanish with the Italian accent! We couldn't always figure out what he was saying, but like Lori said, a couple of weeks ago, she asked Gerry to say a few words in Spanish, and he couldn't say any. So, it was great!
Of course, when we got back to the hospital, he didn't wanna go back in, and took a few minutes to sit in the van while Lori talked to him. He finally came back in. Lori told him we wouldn't be able to see him Fri. or Sat. (because we're all going on a two night camping weekend down near San Diego...I don't think she told him that, though), but that she'd be up to see him on Sunday. He was kind of down at that point and told her "You're never coming back to see me." He's just ready to be out of there. We all reassured him, and told him he'll be out of there next week.
Wednesday, October 06, 2004
Update (10/5/04) from Gina
10/5/04
Dear Family & Friends,
Just a quick update to let you know that Gerry's weekend at home was a resounding success! Gerry did wonderfully at home on Saturday, and was able to go to church with his family on Sunday. Lori said he so much enjoyed greeting everyone, and enjoying the sermon and service at their church. Afterward, we met for lunch, which we all enjoyed...especially Gerry! By that time, Gerry was getting tired, so he and Lori were able to enjoy some time back at their house before we had to take him back to Ballard. He gave us no problems whatsoever in returning to the hospital, and his mood was so elevated from his time at home that even the hospital staff noticed his uplifted mood on Monday.
Lori confirmed that Learning Services from Escondido came to evaluate Gerry today, and he definitely qualifies for their program. They reported that Gerry was able to answer certain questions about his background, which was encouraging. They will be contacting Aetna to see what, if anything, can be worked out. There is still no official denial from Aetna, which we were told to expect weeks ago, and Lori's phone calls are not being returned. Ballard has tentatively set Gerry's discharge date for next Thursday, so we ask for your urgent prayers for God to provide answers and clear direction on what to do next. With no decision from the insurance company, Gerry will either come home with no plan for further treatment, or we may have to work something out with Learning Services without any assistance from insurance. Needless to say, these upcoming decisions are overwhelming for Lori, and we pray for clear direction and guidance.
We have seen God's provision in so many ways, and trust in His perfect plan! Thank you all for your faithful prayers!
God Bless,
Gina
Dear Family & Friends,
Just a quick update to let you know that Gerry's weekend at home was a resounding success! Gerry did wonderfully at home on Saturday, and was able to go to church with his family on Sunday. Lori said he so much enjoyed greeting everyone, and enjoying the sermon and service at their church. Afterward, we met for lunch, which we all enjoyed...especially Gerry! By that time, Gerry was getting tired, so he and Lori were able to enjoy some time back at their house before we had to take him back to Ballard. He gave us no problems whatsoever in returning to the hospital, and his mood was so elevated from his time at home that even the hospital staff noticed his uplifted mood on Monday.
Lori confirmed that Learning Services from Escondido came to evaluate Gerry today, and he definitely qualifies for their program. They reported that Gerry was able to answer certain questions about his background, which was encouraging. They will be contacting Aetna to see what, if anything, can be worked out. There is still no official denial from Aetna, which we were told to expect weeks ago, and Lori's phone calls are not being returned. Ballard has tentatively set Gerry's discharge date for next Thursday, so we ask for your urgent prayers for God to provide answers and clear direction on what to do next. With no decision from the insurance company, Gerry will either come home with no plan for further treatment, or we may have to work something out with Learning Services without any assistance from insurance. Needless to say, these upcoming decisions are overwhelming for Lori, and we pray for clear direction and guidance.
We have seen God's provision in so many ways, and trust in His perfect plan! Thank you all for your faithful prayers!
God Bless,
Gina
Monday, October 04, 2004
A phone call from Gerry (10/3/04) from steve
As Gina reported in her last update, Gerry was allowed to go home for a day Sunday. Lori told me he attended church, was introduced to the congregation (something I would have loved to see!!) and sang hymns during the service.
A little later in the day, Gerry called me after taking a nap. I'd been told that he'd been making more progress and sounded even better than he did when we saw him in August. When he came on the phone, I was surprised and amazed how much of the old Gerry was on the other end. He's still not all the way back yet, but his progress continues. We talked for a few minutes and he asked me how I was doing. He told me he loved going to church again. I told him he sounded great, better than he did when we'd seen him. It'll be a while before we visit him again, but it was great to talk to him even for a few minutes. I'm pulling for ya, Gerry.
A little later in the day, Gerry called me after taking a nap. I'd been told that he'd been making more progress and sounded even better than he did when we saw him in August. When he came on the phone, I was surprised and amazed how much of the old Gerry was on the other end. He's still not all the way back yet, but his progress continues. We talked for a few minutes and he asked me how I was doing. He told me he loved going to church again. I told him he sounded great, better than he did when we'd seen him. It'll be a while before we visit him again, but it was great to talk to him even for a few minutes. I'm pulling for ya, Gerry.
Thursday, September 30, 2004
Update on Gerry 9/29/04
Dear Family & Friends,
I'm happy to be sending an update with quite a bit of news to report. We see God's hand at work in many ways, and we are so grateful for your faithful prayers.
On Monday we took Gerry back to Riverside County Regional Medical Center, where he was first admitted after his accident, to finally remove the braces from his teeth. As Lori mentioned in her last update, we went a couple of weeks before, but Gerry had an incident of low blood pressure and collapse. So, we were very happy that this time it was "Mission Accomplished"! The braces were removed, and although it was a very painful procedure for Gerry, and a long day, he did remarkably well.
Because of the low blood pressure incident, the doctor removed Gerry from all medications that can cause low blood pressure. So far, he has not had any further problems. Gerry has been having periods of frustration or agitation, which is a result of his brain injury. The hospital was putting him on a strong prescription, Adavan, when they felt it was necessary. We noticed that this medication made Gerry very "loopy". It would bring him up, and then later he would drop way down, with his coherency being greatly affected, and even his physical balance and stamina.
We talked about it and both agreed that Gerry is not going to be able to learn to deal with those feelings and cope if he is just medicated through those episodes. This will be especially important once he returns home and is out and about. Lori talked to the medical team, and this week they agreed to take him off of the Adavan. They will now use other measures to help him cope, like getting Lori on the phone, or putting on the music that he loves, or watching a family or church video that we have at the hospital for him. Gerry was thrilled to hear that they will not be giving him the Adavan anymore!
Another praise report is that Lori felt Gerry was ready for an overnight pass, and she was able to arrange that for this Saturday night. She will pick him up in he afternoon, and bring him back by Sunday evening. Lord willing, Gerry will be able to worship with his family at their own church on Sunday! When Lori told Gerry he was coming home for one night, he was overjoyed! This may be a lot of stimulation for Gerry, so for those of you at their church, the only thing we want to mention is to keep conversations with Gerry short. We pray for a successful, enjoyable home and church visit for Gerry and pray that he will return to Ballard willingly. Lori has been talking to him about his remaining time in the hospital as "his job" to learn the skills he needs to come home soon.
These past couple of weeks we are seeing an increase in Gerry's understanding, and also his emotions, which is all good! He has been able to communicate his feelings. At times, he has confided to Lori about how difficult things have been. He has explained his frustration, and when she questioned him further about how he feels, he said, "I feel like a black in the South". Lori said, "How does that make you feel?" And Gerry replied, "It's hard because people think I'm stupid." It is so good that he is able to communicate these feelings! In our family visits, as we joke back and forth with Gerry, we often see great clarity and alertness. He loves to lead in prayer, and we see great clarity there as well. He is now communicating that he wants to come home. He calls Lori on the phone and says "When are you coming, at 2 or 3?" or "When are you coming to take me home?" Another time on the phone he said to her "Hi Doll, love ya', babe!" When we were at his appointment, he went up to the desk and asked why they hadn't called his name yet. Seeing these totally appropriate responses has been very encouraging to us. When we take him out for any reason, like out for the appointment this week, or for ice cream on other occasions, etc., he doesn't want to get out of the van when returning to Ballard. We do believe that his level of understanding is greater than he is able to articulate with words. We know that he is there, and we pray that in time, through therapy, or after returning to his normal surroundings at home, that he will be able to communicate better with words. At times, you can clearly understand his words (generally shorter statements). Other times, he can babble on and you will not be able to understand, partially because of the sound of his voice, and also because his of his inability to find the right words. He may not look quite normal or act quite like the old Gerry, but he is in there, and for those of you that will be able to see him, we know that you will treat him normally and embrace him with joy for the miracle that he is!
Gerry can also receive phone calls now, and he really enjoys hearing from family & friends.
He has improved at Ballard in many ways, and believe he is now ready for the next step. We are still on target for release in mid-October. There is still no official written denial from the insurance co. for further treatment at a transitional living center, and we are not sure why. The Escondido Learning Services where we would like him to go next is coming out on Tuesday to evaluate Gerry. Please pray for this and for acceptance into this program. If acceptance is denied, and our appeals are also denied, we pray that some creative financing can be arranged so that we can get Gerry the further treatment he needs. If all doors close for a transitional living center, then Gerry will likely be coming home, so we ask your prayers for the many upcoming decisions. Lori asks for prayer as she questions short term vs. long term decisions regarding Gerry's care, financial issues, job issues, and all the possibilities of Gerry's inpatient and/or outpatient care, their home life, and for God's continued miracle of healing for Gerry.
God's faithfulness is great! We have been amazed and encouraged by your faithful prayers!
'The Lord also will be a stronghold for the oppressed, a stronghold in times of trouble, And those who know Thy name will put thy trust in Thee; For Thou, O Lord, has not forsaken those who seek Thee.' Psalm 9:9-10
God bless you all!
Gina
I'm happy to be sending an update with quite a bit of news to report. We see God's hand at work in many ways, and we are so grateful for your faithful prayers.
On Monday we took Gerry back to Riverside County Regional Medical Center, where he was first admitted after his accident, to finally remove the braces from his teeth. As Lori mentioned in her last update, we went a couple of weeks before, but Gerry had an incident of low blood pressure and collapse. So, we were very happy that this time it was "Mission Accomplished"! The braces were removed, and although it was a very painful procedure for Gerry, and a long day, he did remarkably well.
Because of the low blood pressure incident, the doctor removed Gerry from all medications that can cause low blood pressure. So far, he has not had any further problems. Gerry has been having periods of frustration or agitation, which is a result of his brain injury. The hospital was putting him on a strong prescription, Adavan, when they felt it was necessary. We noticed that this medication made Gerry very "loopy". It would bring him up, and then later he would drop way down, with his coherency being greatly affected, and even his physical balance and stamina.
We talked about it and both agreed that Gerry is not going to be able to learn to deal with those feelings and cope if he is just medicated through those episodes. This will be especially important once he returns home and is out and about. Lori talked to the medical team, and this week they agreed to take him off of the Adavan. They will now use other measures to help him cope, like getting Lori on the phone, or putting on the music that he loves, or watching a family or church video that we have at the hospital for him. Gerry was thrilled to hear that they will not be giving him the Adavan anymore!
Another praise report is that Lori felt Gerry was ready for an overnight pass, and she was able to arrange that for this Saturday night. She will pick him up in he afternoon, and bring him back by Sunday evening. Lord willing, Gerry will be able to worship with his family at their own church on Sunday! When Lori told Gerry he was coming home for one night, he was overjoyed! This may be a lot of stimulation for Gerry, so for those of you at their church, the only thing we want to mention is to keep conversations with Gerry short. We pray for a successful, enjoyable home and church visit for Gerry and pray that he will return to Ballard willingly. Lori has been talking to him about his remaining time in the hospital as "his job" to learn the skills he needs to come home soon.
These past couple of weeks we are seeing an increase in Gerry's understanding, and also his emotions, which is all good! He has been able to communicate his feelings. At times, he has confided to Lori about how difficult things have been. He has explained his frustration, and when she questioned him further about how he feels, he said, "I feel like a black in the South". Lori said, "How does that make you feel?" And Gerry replied, "It's hard because people think I'm stupid." It is so good that he is able to communicate these feelings! In our family visits, as we joke back and forth with Gerry, we often see great clarity and alertness. He loves to lead in prayer, and we see great clarity there as well. He is now communicating that he wants to come home. He calls Lori on the phone and says "When are you coming, at 2 or 3?" or "When are you coming to take me home?" Another time on the phone he said to her "Hi Doll, love ya', babe!" When we were at his appointment, he went up to the desk and asked why they hadn't called his name yet. Seeing these totally appropriate responses has been very encouraging to us. When we take him out for any reason, like out for the appointment this week, or for ice cream on other occasions, etc., he doesn't want to get out of the van when returning to Ballard. We do believe that his level of understanding is greater than he is able to articulate with words. We know that he is there, and we pray that in time, through therapy, or after returning to his normal surroundings at home, that he will be able to communicate better with words. At times, you can clearly understand his words (generally shorter statements). Other times, he can babble on and you will not be able to understand, partially because of the sound of his voice, and also because his of his inability to find the right words. He may not look quite normal or act quite like the old Gerry, but he is in there, and for those of you that will be able to see him, we know that you will treat him normally and embrace him with joy for the miracle that he is!
Gerry can also receive phone calls now, and he really enjoys hearing from family & friends.
He has improved at Ballard in many ways, and believe he is now ready for the next step. We are still on target for release in mid-October. There is still no official written denial from the insurance co. for further treatment at a transitional living center, and we are not sure why. The Escondido Learning Services where we would like him to go next is coming out on Tuesday to evaluate Gerry. Please pray for this and for acceptance into this program. If acceptance is denied, and our appeals are also denied, we pray that some creative financing can be arranged so that we can get Gerry the further treatment he needs. If all doors close for a transitional living center, then Gerry will likely be coming home, so we ask your prayers for the many upcoming decisions. Lori asks for prayer as she questions short term vs. long term decisions regarding Gerry's care, financial issues, job issues, and all the possibilities of Gerry's inpatient and/or outpatient care, their home life, and for God's continued miracle of healing for Gerry.
God's faithfulness is great! We have been amazed and encouraged by your faithful prayers!
'The Lord also will be a stronghold for the oppressed, a stronghold in times of trouble, And those who know Thy name will put thy trust in Thee; For Thou, O Lord, has not forsaken those who seek Thee.' Psalm 9:9-10
God bless you all!
Gina
Thursday, September 16, 2004
Subject: Marinucci No. 56 (from Lori)
Subject: Marinucci No. 56
Just a minute for a quick update. The Team/Family Conference went well.
The Ballard Team made presentation that Gerry is progressing well. They are
optimistic that he can improve with continued existing therapy and requested
a 1 month extension until Oct 14th which most likely will be approved.
There is still much negotiation, research and clarification needed for the
"next step" by all parties to determine if the insurance company is
responsible. Ballard will recommend the facility in Escondido, whereby I expect Hemet to do a formal denial and then I will start the appeals process. We will see
who pays for the next step-- insurance, Victims of Crime or private pay.
Today (Wed, 9/15/04) we took Gerard to his facial maxial surgeon appointment at
9:00 a.m. in anticipation of removing his braces. The surgeon was located in the
basement of the hospital where Gerry was in intensive care for 6+ weeks and
we're were excited about the prospect of him walking in to thank his devoted
doctors and nurses. We had some glitches regarding the referral
process, lack of payment by insurance so they were reluctant to do
further work, etc. Finally they were able to get us in and just prior
to any treatment, Gerry either had a seizure or an episode of very
low blood pressure and a spasm. At either rate, he ended up in the
Emergency Room. He resolved and following blood work, CT Scans
and IV's he was released. We were then able to go upstairs to say "Hi" to
the IC staff and then transported him back to Ballard about 5:00 p.m. I need
to make another appointment for the teeth/face for another day.
God is answering prayer in an interesting fashion according to my
perspective, but who am I the "pot" to question the "Potter"?
Continue to pray God's Will! So let it be.
Love, Lori
Just a minute for a quick update. The Team/Family Conference went well.
The Ballard Team made presentation that Gerry is progressing well. They are
optimistic that he can improve with continued existing therapy and requested
a 1 month extension until Oct 14th which most likely will be approved.
There is still much negotiation, research and clarification needed for the
"next step" by all parties to determine if the insurance company is
responsible. Ballard will recommend the facility in Escondido, whereby I expect Hemet to do a formal denial and then I will start the appeals process. We will see
who pays for the next step-- insurance, Victims of Crime or private pay.
Today (Wed, 9/15/04) we took Gerard to his facial maxial surgeon appointment at
9:00 a.m. in anticipation of removing his braces. The surgeon was located in the
basement of the hospital where Gerry was in intensive care for 6+ weeks and
we're were excited about the prospect of him walking in to thank his devoted
doctors and nurses. We had some glitches regarding the referral
process, lack of payment by insurance so they were reluctant to do
further work, etc. Finally they were able to get us in and just prior
to any treatment, Gerry either had a seizure or an episode of very
low blood pressure and a spasm. At either rate, he ended up in the
Emergency Room. He resolved and following blood work, CT Scans
and IV's he was released. We were then able to go upstairs to say "Hi" to
the IC staff and then transported him back to Ballard about 5:00 p.m. I need
to make another appointment for the teeth/face for another day.
God is answering prayer in an interesting fashion according to my
perspective, but who am I the "pot" to question the "Potter"?
Continue to pray God's Will! So let it be.
Love, Lori
Monday, September 13, 2004
Update: Marinucci No. 55 from Lori
This is an important week for prayer. I am grateful for my elders and family who have given good counsel and support. Specifically pray for:
1) The insurance company has given me a verbal denial for the next step of rehabilitation. It is Hemet Community Medical Group's intent to release Gerry home with limited outpatient therapy here in Temecula. However, when I telephoned the outpatient facility Hemet recommends, they don't handle speech/cognition and more importantly, don't even accept my insurance!!!! I will need to
file an appeal once I receive the written denial.
2) Interestingly, his treating doctors don't agree with the Hemet. Ballard believes Gerry should continue at an inpatient rehabilitation facility and one with an emphasis on cognition. They have recommended, and we have toured a facility in Escondido (30 miles south) that seems favorable.
3) Tuesday at 3:30 p.m. the Case Manager for Hemet is coming to Ballard for the team/family meeting with the purpose of encouraging them to educate/train me to have Gerry home right away. Ballard on the other hand intends to educate Hemet regarding brain injury and that further rehabilitation treatment is needed. Clarity and direction as a result of this meeting.
4) Gerry finally has an appointment with the facial surgeon on Wed morning. I am hoping they remove the braces but more importantly, for wisdom regarding the "lock jaw" episodes and a final determination, if further treatment is necessary.
5) Hemet Medical Group (making the denial) believes they can't convert the nursing home benefit in my contract to services for rehab because Aetna won't allow it. While Aetna (who only exists in a supervising capacity because of the contract they have with Hemet) claims Hemet has full authority to make such a compromise provision should they desire to do so. That Hemet will
reconsider, once the appeal is filed.
6) Guidance for whenever Gerry does come home. Should I continue to attempt to work, do rehab myself, bring in help, seek adult day care, take a leave from work, file for medical and/or other government programs etc.? For someone who has an expertise in the legal/financial aspects of spend down for medical benefits.
7) I am advised that both Hemet and Aetna may still have legal requirements they are not fulfilling, such as an ongoing obligation to provide rehabilitation as long as Gerry continues to progress (which Gerry has). Again, Ger's primary injury is his brain. Cognitive training is difficult to get on an outpatient basis. I have several potential contacts with attorneys regarding their
assistance in this regard.
8) If in fact Gerry comes home in the near future, that Gerry's primary care physician will effectively manage Gerry's care. There has been difficulty, tension and significant delays with the referral process between the doctor's office and Hemet. Communication has been a problem. That an acceptable rehab
treatment plan is immediately put in place and no lapse in treatment will occur because of these problems. That I can get an appointment to meet with Gerry's primary doctor prior to the first date available on November 9th.
9) Prayer for the girls and their adjustment to the next phase and for endurance, peace and good judgment for me. May God's will be done!
Thank you for your willingness to be faithful in prayer! Both Gerry and I can testify that our Living and True God hears and answers prayer. He does not turn a deaf ear to the cries of his children. We'll soon see what His great and good plan is for us!
Lovingly, Lori
1) The insurance company has given me a verbal denial for the next step of rehabilitation. It is Hemet Community Medical Group's intent to release Gerry home with limited outpatient therapy here in Temecula. However, when I telephoned the outpatient facility Hemet recommends, they don't handle speech/cognition and more importantly, don't even accept my insurance!!!! I will need to
file an appeal once I receive the written denial.
2) Interestingly, his treating doctors don't agree with the Hemet. Ballard believes Gerry should continue at an inpatient rehabilitation facility and one with an emphasis on cognition. They have recommended, and we have toured a facility in Escondido (30 miles south) that seems favorable.
3) Tuesday at 3:30 p.m. the Case Manager for Hemet is coming to Ballard for the team/family meeting with the purpose of encouraging them to educate/train me to have Gerry home right away. Ballard on the other hand intends to educate Hemet regarding brain injury and that further rehabilitation treatment is needed. Clarity and direction as a result of this meeting.
4) Gerry finally has an appointment with the facial surgeon on Wed morning. I am hoping they remove the braces but more importantly, for wisdom regarding the "lock jaw" episodes and a final determination, if further treatment is necessary.
5) Hemet Medical Group (making the denial) believes they can't convert the nursing home benefit in my contract to services for rehab because Aetna won't allow it. While Aetna (who only exists in a supervising capacity because of the contract they have with Hemet) claims Hemet has full authority to make such a compromise provision should they desire to do so. That Hemet will
reconsider, once the appeal is filed.
6) Guidance for whenever Gerry does come home. Should I continue to attempt to work, do rehab myself, bring in help, seek adult day care, take a leave from work, file for medical and/or other government programs etc.? For someone who has an expertise in the legal/financial aspects of spend down for medical benefits.
7) I am advised that both Hemet and Aetna may still have legal requirements they are not fulfilling, such as an ongoing obligation to provide rehabilitation as long as Gerry continues to progress (which Gerry has). Again, Ger's primary injury is his brain. Cognitive training is difficult to get on an outpatient basis. I have several potential contacts with attorneys regarding their
assistance in this regard.
8) If in fact Gerry comes home in the near future, that Gerry's primary care physician will effectively manage Gerry's care. There has been difficulty, tension and significant delays with the referral process between the doctor's office and Hemet. Communication has been a problem. That an acceptable rehab
treatment plan is immediately put in place and no lapse in treatment will occur because of these problems. That I can get an appointment to meet with Gerry's primary doctor prior to the first date available on November 9th.
9) Prayer for the girls and their adjustment to the next phase and for endurance, peace and good judgment for me. May God's will be done!
Thank you for your willingness to be faithful in prayer! Both Gerry and I can testify that our Living and True God hears and answers prayer. He does not turn a deaf ear to the cries of his children. We'll soon see what His great and good plan is for us!
Lovingly, Lori
Monday, September 06, 2004
Mon 9/6/04 from Gina
Yesterday we took Gerry out to lunch for his birthday, which we all enjoyed very much. He has now been at Ballard Rehabilitation in San Bernardino for about 1 & 1/2 weeks. Lori and Mom met with his new doctor last week, who said that Gerry is doing very well. A few main points they discussed were as follows: What they need to focus on medically for Gerry is his memory and regaining physical strength and balance. The doctor felt that Gerry would benefit from a transitional living center upon leaving Ballard. The insurance company could try to release Gerry from Ballard at any time, but will hopefully keep him there for another 2-3 weeks as he continues to get stronger.
They have removed the "peg tube" from Gerry's stomach. My Mom asked if Gerry's voice will return to normal. The doctor explained that his vocal chords have come apart, which has allowed air to escape between them. This why his voice sounds very nasally and gravelly. In time, this problem could correct itself. If it does not, there is a simple procedure that can be done to correct it. The doctor, of course, cannot give us a prediction of how much better Gerry will get cognitively, stating that it was not good that Gerry remained in a coma for so long. However, he was very encouraged to see how far Gerry has come. In another 6 months or so, we will have a better idea about Gerry's prognosis.
Gerry continues to get agitated at times, which is a result of the brain injury. We seem to notice that he can get agitated when he is overstimulated or understimulated. Lori has noticed a recent increase in his agitation, and we ask for your prayers. She is struggling to decide whether it is time to take him home permanently or continue to push the insurance company to allow Gerry to go to a transitional living center for a couple of months. She is concerned that Gerry has gotten more depressed since his one day visit at home a month or so ago. He did so well that day, and she feels that if she takes a couple months of leave from work to help him re-adjust, this may help him more than his extended stay at rehab would. However, we are concerned about his agitation becoming a problem at times. Specifically, when out and about, he has refused to get back in the van more than once. This could make running necessary errands a problem, and add a great deal of stress to Lori and the family.
Lori went to look at another transitional living center in Escondido last week, and really liked it. Mom and I are going to go check it out tomorrow. We will be asking them what would be the benefits of inpatient care vs. outpatient care, etc. because once Gerry comes home to live, we know we will only have access to outpatient therapy from that point on. We thank you for keeping this in prayer, as Lori will need to be making this important decision right away. In addition, we sincerely hope and pray that after a few months at home, Gerry will be able to not only stay by himself, but also watch the girls. We know there is a possibility that may not be so. If that is the reality, Lori would need to hire a caregiver to help watch Gerry and the girls while she is at work. We are very mindful of all of these important concerns as we pray for God's direction at this critical time. We thank you for praying along with us, as you have so graciously done all along!
Blessings,
Gina
They have removed the "peg tube" from Gerry's stomach. My Mom asked if Gerry's voice will return to normal. The doctor explained that his vocal chords have come apart, which has allowed air to escape between them. This why his voice sounds very nasally and gravelly. In time, this problem could correct itself. If it does not, there is a simple procedure that can be done to correct it. The doctor, of course, cannot give us a prediction of how much better Gerry will get cognitively, stating that it was not good that Gerry remained in a coma for so long. However, he was very encouraged to see how far Gerry has come. In another 6 months or so, we will have a better idea about Gerry's prognosis.
Gerry continues to get agitated at times, which is a result of the brain injury. We seem to notice that he can get agitated when he is overstimulated or understimulated. Lori has noticed a recent increase in his agitation, and we ask for your prayers. She is struggling to decide whether it is time to take him home permanently or continue to push the insurance company to allow Gerry to go to a transitional living center for a couple of months. She is concerned that Gerry has gotten more depressed since his one day visit at home a month or so ago. He did so well that day, and she feels that if she takes a couple months of leave from work to help him re-adjust, this may help him more than his extended stay at rehab would. However, we are concerned about his agitation becoming a problem at times. Specifically, when out and about, he has refused to get back in the van more than once. This could make running necessary errands a problem, and add a great deal of stress to Lori and the family.
Lori went to look at another transitional living center in Escondido last week, and really liked it. Mom and I are going to go check it out tomorrow. We will be asking them what would be the benefits of inpatient care vs. outpatient care, etc. because once Gerry comes home to live, we know we will only have access to outpatient therapy from that point on. We thank you for keeping this in prayer, as Lori will need to be making this important decision right away. In addition, we sincerely hope and pray that after a few months at home, Gerry will be able to not only stay by himself, but also watch the girls. We know there is a possibility that may not be so. If that is the reality, Lori would need to hire a caregiver to help watch Gerry and the girls while she is at work. We are very mindful of all of these important concerns as we pray for God's direction at this critical time. We thank you for praying along with us, as you have so graciously done all along!
Blessings,
Gina
Saturday, September 04, 2004
Happy birthday, Gerry! (from Steve)
Nothing really to report, but we just want to say happy birthday to Gerry. His birthday is Sept. 5. Gina told us plans are to take him out to a restaurant for dinner. Hope it's a great day for you, bro!
Monday, August 30, 2004
Thursday, August 26, 2004
8/26: Gerry's move to a new hospital (from Gina)
As you know, Lori has been working through the insurance company's red-tape to get Gerry accepted to the Transitional Living Center (TLC) at Casa Colina. After much struggle with them these past two weeks, they (Aetna's mgmt. co.) wanted to send Gerry to Ballard Rehab. Hospital in San Bernardino. This was a rehab that was already considered prior to Gerry's move to Casa Colina. We never considered Ballard a valid option because they do not have a separate unit for the cognitive therapy that Gerry needs. Plus, we had heard that it wasn't the place for Gerry from several nurses and therapists. So, when the insurance company again wanted to consider Ballard, we couldn't understand it. However, through this process, we found that Ballard actually seems to be a better option for Gerry at this phase of his recovery.
We went to look at it today, and found that they have a no-restraint policy. We feel that this is very important. At Casa Colina, Gerry gets his three hours of therapy a day, and the rest of the day, he has been restrained into his wheelchair, and we have found him several times in this manner just staring off into space. He was not getting the stimulation that he needs, and he is at the point where he wants to get up and explore or walk, etc. He will not improve if he is not allowed to move. Because of Ballard's no-restraint policy, they will have a "sitter" with Gerry to assist him one-on-one. We also liked the fact that Ballard offers therapeutic recreation in addition to his three hours of daily therapy. This is hobby-time with music or reading, or organized games that they offer for the patients, movie nights, community outings, etc. Just knowing there are things to do to stimulate Gerry's interests in his spare time will make a huge difference to him and us! They do not have a separate TLC like Casa Colina does, but they do have some of the benefits of a TLC. They have a training area with a kitchen, a home-like bathroom and tub, and bedroom area for the patients to familiarize themselves with to make the transition to home easier. And they do have a transitional apartment where the patient stays for a few days before going home.
All-in-all, we were quite impressed with Ballard once we saw it for ourselves, and we all (Lori, myself and my Mom) felt that Gerry would do better here than at Casa Colina for the next 3-4 weeks. During this time, we hope he will get physically stronger and more stable since he will be able to move about, and will then be better prepared for a possible stay at Casa Colina's TLC. We believe that God was not opening the door for Gerry's immediate move to TLC for a reason, and that is that he is not physically stable enough yet. His physical improvement had hit a plateau at Casa, and because of the lengthy restraints, his emotional state was suffering also.
We have been told that the insurance mgmt. company is working out a contract with TLC for Gerry's possible move there when he leaves Ballard. Please continue to pray for God's direction and provision for Gerry to receive the treatment he needs cognitively and physically so that he can return home with confidence to his family.
So, we returned to Casa Colina, and picked Gerry up ourselves, took him out to lunch (which he enjoyed immensely!), and brought him to Ballard. Gerry was absolutely jubilant to leave Casa and he was so lighthearted and happy at lunch and in the car. Although we had told him we were taking him to a new and better hospital, one step closer to home, he still had to adjust and to realize himself that he is not ready to go home yet. He did, and before we left, he was greeting everyone that came his way.
Sun 8/22: Gerry goes home (for a few hours)
From Gina:
I think it went really well today for Gerry. He did get tired and moody at times, but we've got to expect that. It was a lot of stimulation, and he's just not used to it yet. I brought Mexican food over, which he loved, and then when we brought him back we went out to dinner at Farmer Boys across from Casa Colina. He loved that, too.
Lori and I talked about how just being at home was probably a motivating factor. He didn't want to use the walker at home, but the house is small enough to where he can grab on from thing to thing. Lori let him get up as he pleased to explore or whatever. He looked in the bathroom mirror at his teeth and braces and said "that's ugly". Lori explained we're working on getting insurance to o.k. taking them off. He got very emotional when we left the house, crying a lot, and said "I miss this house". He saw his neighbor for the first time, and recognized him and waved "Hi, Tim", while crying and waving goodbye. On the way back to the hospital, Lori played a gospel CD of Alison Krauss that he really loves, and the songs really touched him as he cried some more. Lori and he were talking back and forth about how he'll probably be able to come home once a week, and it won't be long before he's home for good, and also about how far he's come and that he's not gonna give up and to keep on fightin'.
All this emotion is really good, showing that he remembers his home and understands what he's missing and possibly what has happened to him as well. Lori was encouraged because other than the moments when he got moody, in general he remained very alert until we brought him back, which was after 7pm. It was a long day for him, so to stay that alert was great.
I think it went really well today for Gerry. He did get tired and moody at times, but we've got to expect that. It was a lot of stimulation, and he's just not used to it yet. I brought Mexican food over, which he loved, and then when we brought him back we went out to dinner at Farmer Boys across from Casa Colina. He loved that, too.
Lori and I talked about how just being at home was probably a motivating factor. He didn't want to use the walker at home, but the house is small enough to where he can grab on from thing to thing. Lori let him get up as he pleased to explore or whatever. He looked in the bathroom mirror at his teeth and braces and said "that's ugly". Lori explained we're working on getting insurance to o.k. taking them off. He got very emotional when we left the house, crying a lot, and said "I miss this house". He saw his neighbor for the first time, and recognized him and waved "Hi, Tim", while crying and waving goodbye. On the way back to the hospital, Lori played a gospel CD of Alison Krauss that he really loves, and the songs really touched him as he cried some more. Lori and he were talking back and forth about how he'll probably be able to come home once a week, and it won't be long before he's home for good, and also about how far he's come and that he's not gonna give up and to keep on fightin'.
All this emotion is really good, showing that he remembers his home and understands what he's missing and possibly what has happened to him as well. Lori was encouraged because other than the moments when he got moody, in general he remained very alert until we brought him back, which was after 7pm. It was a long day for him, so to stay that alert was great.
Monday, August 23, 2004
8/16: Another visit with Gerry (from Steve)
While we were on vacation, we visited with Gerry ... we, meaning myself, my wife Sue and my son Phil. They hadn't seen him since he'd emerged from the coma, so it was something we were all looking forward to. As is the custom, he was introduced to all of us, though he remembered me without prompting and seemed very glad to see me. He recognized Sue and Phil when told who they were, and later remembered (without prompting) that he used to call Sue "Susan". We watched him go through his therapy and later, we moved to a piano where we tried to get him to play so I could sing "Bring It On Home to Me," a song he, I, Carla and Gina would sing whenever we could find an excuse to. It became obvious, though, after a bit, that therapy had worn Gerry out and he was having trouble concentrating. So we moved to another room, talked to him for a bit, then left.
It was obvious that Gerry had indeed progressed since I'd seen him a month earlier. It was a positive note to leave on...
It was obvious that Gerry had indeed progressed since I'd seen him a month earlier. It was a positive note to leave on...
Saturday, August 21, 2004
Fri 8/20: Update: More prayers, please!
Fri. 8/20/04 9:30pm , from Gina:
Dear Friends & Family,
There is still no decision by the
insurance company, so the good news is that there is no denial yet in
regards to Gerry moving over to the TLC at Casa Colina. But the new
management company of the insurance company is truly giving the
run-a-round in many ways, and much prayer is needed. They now
want Ballard Rehab. to come out and evaluate Gerry, even though Ballard was
ruled out before Gerry even went to Casa Colina because Ballard does not
have the cognitive specialization that Gerry needs. They have
also put off a necessary follow-up cat-scan, an evaluation by a
neuro-psychologist, and the removal of the braces Gerry had when
his jaw was wired shut even though all of these things were
requested by Gerry's doctors.
Casa Colina has requested that Lori take Gerry home for a day visit this weekend, yet
would not approve for Lori and the girls to take Gerry out for just a couple of
hours near the hospital (like out to dinner) for a trial run to see how
things went.
We know that God is in control, and that there is a reason for the delays and uncertainties. We ask for your
continued faithful prayers for approval for Gerry to go to TLC this coming
week so that he may receive the treatment that he needs at this time.
We ask for your prayers for Lori and the stress that she is under as she
deals with the insurance/management company to get the best care for
Gerry. Thank you all and God Bless you!
Dear Friends & Family,
There is still no decision by the
insurance company, so the good news is that there is no denial yet in
regards to Gerry moving over to the TLC at Casa Colina. But the new
management company of the insurance company is truly giving the
run-a-round in many ways, and much prayer is needed. They now
want Ballard Rehab. to come out and evaluate Gerry, even though Ballard was
ruled out before Gerry even went to Casa Colina because Ballard does not
have the cognitive specialization that Gerry needs. They have
also put off a necessary follow-up cat-scan, an evaluation by a
neuro-psychologist, and the removal of the braces Gerry had when
his jaw was wired shut even though all of these things were
requested by Gerry's doctors.
Casa Colina has requested that Lori take Gerry home for a day visit this weekend, yet
would not approve for Lori and the girls to take Gerry out for just a couple of
hours near the hospital (like out to dinner) for a trial run to see how
things went.
We know that God is in control, and that there is a reason for the delays and uncertainties. We ask for your
continued faithful prayers for approval for Gerry to go to TLC this coming
week so that he may receive the treatment that he needs at this time.
We ask for your prayers for Lori and the stress that she is under as she
deals with the insurance/management company to get the best care for
Gerry. Thank you all and God Bless you!
Monday, August 09, 2004
8/9/04 , Update no. 2: Urgent prayer request from Gina
Mon 8/09/04 11:35 a.m.
Dear Friends & Family,
We ask for your prayer intervention today as Lori is having much difficulty with the insurance company today in trying to get Gerry accepted to the Transitional Living Center at Casa Colina. This benefit is not in her plan, and so the insurance company is taking it a step further and saying that if Gerry is well enough to go to the TLC, that it sounds like he is well enough to go home. Obviously, he is not ready to return home, and cannot be left unsupervised as of yet. There is much work to be done. Gerry needs the treatment that TLC will provide for 60 days to help him to regain his self-care skills, his independence, and his ability to go back home to his family. We ask for your urgent and faithful prayers today for God's intervention, and we thank you with all our hearts!
God Bless you all!
Gina
Dear Friends & Family,
We ask for your prayer intervention today as Lori is having much difficulty with the insurance company today in trying to get Gerry accepted to the Transitional Living Center at Casa Colina. This benefit is not in her plan, and so the insurance company is taking it a step further and saying that if Gerry is well enough to go to the TLC, that it sounds like he is well enough to go home. Obviously, he is not ready to return home, and cannot be left unsupervised as of yet. There is much work to be done. Gerry needs the treatment that TLC will provide for 60 days to help him to regain his self-care skills, his independence, and his ability to go back home to his family. We ask for your urgent and faithful prayers today for God's intervention, and we thank you with all our hearts!
God Bless you all!
Gina
Marinucci No. 48 ... Aug. 9, 2004...from Lori
Our meeting with the doctors went well on Friday and they are very encouraged by Gerry’s progress. They anticipate he will continue to improve with therapy. We see evidence that more and more memory and understanding are coming back. The entire team is in agreement that he would benefit from the Transitional Living Center facility at Casa Colina. Gerry would continue with the core 3-types of therapy but therapy is integrated around daily living skills that would benefit his transition to home. Again this is a much more regimented cognitive program involving scheduling and self-care tasks. All of the information has been sent to the insurance company and they are expected to make a decision early next week; PLEASE PRAY! It is a much more expensive program, but exactly what he needs.
His speech is becoming more understandable as he is working on strengthening his tongue muscles to force air through his mouth when he speaks and eliminating the "nasal" tone of his voice. Yes, the tongue is a muscle and must be worked after many months of no usage while in the coma. Memory is steadily coming back as well as emotions and reasoning. He is beginning to understand how many are faithfully praying for him and tears come to his eyes. Physically he is walking well with a walker, good gait and posture, and climbing stairs. He can now walk with family members during our visits. It is hopeful that soon he will not require a walker at all.
I am informed that the rehabilitation insurance benefit is for 2 months and then he would come directly home. Subsequently the out-patient benefit is for 60 consecutive days of out-pat therapy; (including weekends) and not days of treatment. The number of actual treatment days would depend on how many sessions you could arrange in that 2 month time period. I would request prayer that the insurance company re-consider and allow 60 visits for out-patient; not consecutive days. God had been faithful to this point, and again I seek His holy will.
For those who are visiting, he has now been moved to Room 6A. I will let you know if the insurance company agrees to the transfer to TLC located to the back of the campus.
Finally, pray for my coordination of an out-patient appointment with the facial maxial surgeon to remove Gerry’s braces from his teeth (the result of having his jaw wired shut) and the transportation to and from Dr. Tanaka’s office at Loma Linda.
God Bless you all!
Love, Lori
His speech is becoming more understandable as he is working on strengthening his tongue muscles to force air through his mouth when he speaks and eliminating the "nasal" tone of his voice. Yes, the tongue is a muscle and must be worked after many months of no usage while in the coma. Memory is steadily coming back as well as emotions and reasoning. He is beginning to understand how many are faithfully praying for him and tears come to his eyes. Physically he is walking well with a walker, good gait and posture, and climbing stairs. He can now walk with family members during our visits. It is hopeful that soon he will not require a walker at all.
I am informed that the rehabilitation insurance benefit is for 2 months and then he would come directly home. Subsequently the out-patient benefit is for 60 consecutive days of out-pat therapy; (including weekends) and not days of treatment. The number of actual treatment days would depend on how many sessions you could arrange in that 2 month time period. I would request prayer that the insurance company re-consider and allow 60 visits for out-patient; not consecutive days. God had been faithful to this point, and again I seek His holy will.
For those who are visiting, he has now been moved to Room 6A. I will let you know if the insurance company agrees to the transfer to TLC located to the back of the campus.
Finally, pray for my coordination of an out-patient appointment with the facial maxial surgeon to remove Gerry’s braces from his teeth (the result of having his jaw wired shut) and the transportation to and from Dr. Tanaka’s office at Loma Linda.
God Bless you all!
Love, Lori
Saturday, July 24, 2004
Marinucci No. 47: Gerry moved to a new facility
From Lori:
I just wanted to update everyone that the move to Casa Colina went well.
On Thursday morning, Gerry had been told he was being transferred and was very
feisty. He was extremely alert, verbally expressive, and a little agitated.
His aggressiveness was a little alarming at first, but also welcome in the
fact it shows his determination and ability to express himself. When told he
couldn't walk, and a struggle to coax him back into the wheel chair, in a
huff, he wheeled his wheel chair right down the corridor and around the
corner all by himself and then fell asleep in the middle of the hallway
exhausted. I think he was trying to break out!
Friday, was his first day of evaluation for therapy at Casa Colina. He was
restless during the night, and the opposite of the day before, very groggy
almost not able to keep his eyes open. He went through his sessions, but it
was not a good indicator of his capabilities. They will re-evaluate next
week. Fortunately, his rehabilitation doctor is also on staff at Casa Colina
and can follow him. The doctors are adjusting his medications and this
might explain some of the drastic mood changes in addition to the stress of
the move itself.
Today Gina and Edie visited and he was very alert, but not aggressive or
agitated. Pray the doctors find the proper balance in medications.
So far, we are impressed by Casa Colina. The staff has been helpful, friendly and
concerned. Although it looks like a hospital, it has the feeling of
boot-camp and getting down to business. The patients are all up every
morning at 7:00 a.m., dressed, cleaned, breakfast (all as much as they can
do by themselves) and then off to various therapy sessions. Gerry's therapy
will most likely be in the mornings so it is best to visit in the afternoon
or early evening hours during the weekdays and anytime on weekends.
Directions to Casa Colina: Hwy 15 North to Hwy 10 West for 11 1/2
miles; Exit Towne Avenue and turn right onto Towne; Left onto Bonita Avenue
which is the 1st light past the rail road tracks; Go 3 blocks to 255 Bonita
Avenue. Casa Colina is on your right; second driveway. He is in the one
story building closest to the street; Room 15A. Visitors are encouraged,
just sign in and get a visitor pass at the front desk.
Gerry will be sitting in the open "day room" near the nurses station while
not in therapy sessions. Visitors are encouraged as the stimulation, while
not in therapy sessions, is good for him. Thanks to all who have been
visiting, his doctors commend you as being a positive factor in why Gerry is
doing so well.
We have been told by several of his doctors that he may soon qualify for the
Transitional Living Center. Please continue to pray for this next important
step and funding by the insurance company. It would require a move to
another building on the same campus. In addition to the three hours of Rehab he
is now receiving, the Transitional Living Center concentrates on a daily
living schedule where he will have much more structure, routine and
retraining in skills with the goal of returning him to home.
I'll keep you posted following the "family meeting" with the rehab team next
week.
Love,
Lori
One more thought... To those that do go to visit, please note that Gerry now has what they call
a "canopy bed" and an alarm on his wheel chair for safety precautions. The
bed has netting on the sides and top and looks somewhat like a cage. I
admit it is rather alarming to see at first, but beats the alternative of
physically restraining his arms and legs while he sleeps. He is not stable
enough yet on his feet and is at high risk for falls.
I just wanted to update everyone that the move to Casa Colina went well.
On Thursday morning, Gerry had been told he was being transferred and was very
feisty. He was extremely alert, verbally expressive, and a little agitated.
His aggressiveness was a little alarming at first, but also welcome in the
fact it shows his determination and ability to express himself. When told he
couldn't walk, and a struggle to coax him back into the wheel chair, in a
huff, he wheeled his wheel chair right down the corridor and around the
corner all by himself and then fell asleep in the middle of the hallway
exhausted. I think he was trying to break out!
Friday, was his first day of evaluation for therapy at Casa Colina. He was
restless during the night, and the opposite of the day before, very groggy
almost not able to keep his eyes open. He went through his sessions, but it
was not a good indicator of his capabilities. They will re-evaluate next
week. Fortunately, his rehabilitation doctor is also on staff at Casa Colina
and can follow him. The doctors are adjusting his medications and this
might explain some of the drastic mood changes in addition to the stress of
the move itself.
Today Gina and Edie visited and he was very alert, but not aggressive or
agitated. Pray the doctors find the proper balance in medications.
So far, we are impressed by Casa Colina. The staff has been helpful, friendly and
concerned. Although it looks like a hospital, it has the feeling of
boot-camp and getting down to business. The patients are all up every
morning at 7:00 a.m., dressed, cleaned, breakfast (all as much as they can
do by themselves) and then off to various therapy sessions. Gerry's therapy
will most likely be in the mornings so it is best to visit in the afternoon
or early evening hours during the weekdays and anytime on weekends.
Directions to Casa Colina: Hwy 15 North to Hwy 10 West for 11 1/2
miles; Exit Towne Avenue and turn right onto Towne; Left onto Bonita Avenue
which is the 1st light past the rail road tracks; Go 3 blocks to 255 Bonita
Avenue. Casa Colina is on your right; second driveway. He is in the one
story building closest to the street; Room 15A. Visitors are encouraged,
just sign in and get a visitor pass at the front desk.
Gerry will be sitting in the open "day room" near the nurses station while
not in therapy sessions. Visitors are encouraged as the stimulation, while
not in therapy sessions, is good for him. Thanks to all who have been
visiting, his doctors commend you as being a positive factor in why Gerry is
doing so well.
We have been told by several of his doctors that he may soon qualify for the
Transitional Living Center. Please continue to pray for this next important
step and funding by the insurance company. It would require a move to
another building on the same campus. In addition to the three hours of Rehab he
is now receiving, the Transitional Living Center concentrates on a daily
living schedule where he will have much more structure, routine and
retraining in skills with the goal of returning him to home.
I'll keep you posted following the "family meeting" with the rehab team next
week.
Love,
Lori
One more thought... To those that do go to visit, please note that Gerry now has what they call
a "canopy bed" and an alarm on his wheel chair for safety precautions. The
bed has netting on the sides and top and looks somewhat like a cage. I
admit it is rather alarming to see at first, but beats the alternative of
physically restraining his arms and legs while he sleeps. He is not stable
enough yet on his feet and is at high risk for falls.
Friday, July 23, 2004
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Wednesday, July 21, 2004
Update: Marinucci No. 46: From Lori
Marinucci No. 46
Dear Friends & Family,
Passing on this update from Lori. Just noting that I believe she wrote this Wed. evening, and she mentioned that Gerry could be transferred as early as tomorrow (Fri) afternoon. Any local visitors planning to visit on Friday will want to call Kindred (909) 391-0333 to see if Gerry will still be there. Lori or I will be sure to send another update to confirm Gerry’s move. Thank you all for your faithful prayers.
Gina
----Original Message -----
(A letter from Lori, Thursday, July 22):
God had graciously answered our prayers! The insurance company has consented to write a special contract with Casa Colina which specializes in brain trauma patients. They were not obligated to do so, and once again I am thankful for God’s goodness to us. There is no other explanation for this than God’s intervention.
I will meet Casa Colina’s evaluation nurse tomorrow morning. They are confident Gerard will qualify for their facility based upon the medical records they have reviewed, but they must verify via an evaluation. Once he has officially been accepted, then ambulance transportation will be arranged. He could be at the new facility as early as tomorrow afternoon.
Their objective is to help each patient reach their maximum potential with the goal of returning home. At a later date, Gerry may qualify for their Transitional Living Center (this is still a matter of prayer that the insurance company will pay for this service.) I have heard wonderful things about this aspect of the rehab. There is a new center being built next door and it will be opening sometime this fall. I don’t know yet how this may impact Gerry.
Gerry’s trachea plug is out, he pulled it out himself and his neck healed before the doctor could reinsert it. Gerry is getting feisty. He told me recently, "I can walk, don’t tell me ‘no’, you are frustrating me, I want to walk." This is exactly the attitude he will need during the next phase.
He continues to eat a mechanical soft diet, now 3 meals a day. Soon the feeding tube can be removed. Cognitively, he is having difficulty capturing words and will often use "filler phrases to allow him time to think of the word he is looking for but can’t come up with. His phrase of the week continues to be "it’s just a matter of time." We do see improvement every day.
Specific Prayer Requests:
1) Physically for his shoulders as they are very weak and he has difficulty lifting his hands up past his shoulders
2) Removal of the braces are still on his teeth as these facilities don’t
have a maxo-facial surgeon on staff to remove them. He will either need to be able to go to a surgeons office as an out patient or special visiting privileges must be granted by the hospital for the surgeon to remove them. He is experiencing decay and we need God’s intervention.
3) Smooth transition and open communication with his new physicians and therapists.
4) Wisdom for the doctors the first week as they conduct a detailed
evaluation and prognosis followed by a family meeting.
5) Cognitively, that his memory will improve, he can capture the correct word, begin to process a daily routine schedule and automatically begin to do daily routines without being cued.
5) God will continue to spiritually bless and encourage Gerry. He
continues to enjoy singing the hymns, praying and listening/watching the sermons.
Gerry is the most focused, understandable and coherent when he prays.
Thanks for faithfully praying.
Love, Lori
"Let the people praise Thee, Oh God; let all the people praise Thee. Then
shall the earth yield her increase; and God, even our own God, shall bless
us. God shall bless us; and all the ends of the earth shall fear him. " Psalm 67:5-7
----------------------------
A note from Steve:
I'll confirm Gerry is indeed getting feisty. I saw this myself on Sunday when he kept insisting on getting out of his wheelchair. Lori finally had to firmly tell him no. That -- and the fact he keeps saying, "It's all a matter of time" -- are signs that Gerry wants to progress. Go get 'em, Ger!
P.S. Feel free to click on the comments link and add your own ...
Dear Friends & Family,
Passing on this update from Lori. Just noting that I believe she wrote this Wed. evening, and she mentioned that Gerry could be transferred as early as tomorrow (Fri) afternoon. Any local visitors planning to visit on Friday will want to call Kindred (909) 391-0333 to see if Gerry will still be there. Lori or I will be sure to send another update to confirm Gerry’s move. Thank you all for your faithful prayers.
Gina
----Original Message -----
(A letter from Lori, Thursday, July 22):
God had graciously answered our prayers! The insurance company has consented to write a special contract with Casa Colina which specializes in brain trauma patients. They were not obligated to do so, and once again I am thankful for God’s goodness to us. There is no other explanation for this than God’s intervention.
I will meet Casa Colina’s evaluation nurse tomorrow morning. They are confident Gerard will qualify for their facility based upon the medical records they have reviewed, but they must verify via an evaluation. Once he has officially been accepted, then ambulance transportation will be arranged. He could be at the new facility as early as tomorrow afternoon.
Their objective is to help each patient reach their maximum potential with the goal of returning home. At a later date, Gerry may qualify for their Transitional Living Center (this is still a matter of prayer that the insurance company will pay for this service.) I have heard wonderful things about this aspect of the rehab. There is a new center being built next door and it will be opening sometime this fall. I don’t know yet how this may impact Gerry.
Gerry’s trachea plug is out, he pulled it out himself and his neck healed before the doctor could reinsert it. Gerry is getting feisty. He told me recently, "I can walk, don’t tell me ‘no’, you are frustrating me, I want to walk." This is exactly the attitude he will need during the next phase.
He continues to eat a mechanical soft diet, now 3 meals a day. Soon the feeding tube can be removed. Cognitively, he is having difficulty capturing words and will often use "filler phrases to allow him time to think of the word he is looking for but can’t come up with. His phrase of the week continues to be "it’s just a matter of time." We do see improvement every day.
Specific Prayer Requests:
1) Physically for his shoulders as they are very weak and he has difficulty lifting his hands up past his shoulders
2) Removal of the braces are still on his teeth as these facilities don’t
have a maxo-facial surgeon on staff to remove them. He will either need to be able to go to a surgeons office as an out patient or special visiting privileges must be granted by the hospital for the surgeon to remove them. He is experiencing decay and we need God’s intervention.
3) Smooth transition and open communication with his new physicians and therapists.
4) Wisdom for the doctors the first week as they conduct a detailed
evaluation and prognosis followed by a family meeting.
5) Cognitively, that his memory will improve, he can capture the correct word, begin to process a daily routine schedule and automatically begin to do daily routines without being cued.
5) God will continue to spiritually bless and encourage Gerry. He
continues to enjoy singing the hymns, praying and listening/watching the sermons.
Gerry is the most focused, understandable and coherent when he prays.
Thanks for faithfully praying.
Love, Lori
"Let the people praise Thee, Oh God; let all the people praise Thee. Then
shall the earth yield her increase; and God, even our own God, shall bless
us. God shall bless us; and all the ends of the earth shall fear him. " Psalm 67:5-7
----------------------------
A note from Steve:
I'll confirm Gerry is indeed getting feisty. I saw this myself on Sunday when he kept insisting on getting out of his wheelchair. Lori finally had to firmly tell him no. That -- and the fact he keeps saying, "It's all a matter of time" -- are signs that Gerry wants to progress. Go get 'em, Ger!
P.S. Feel free to click on the comments link and add your own ...
Monday, July 19, 2004
Update No. 45 -- from Lori
Dear Friends & Family,
I'm passing on the last update from Lori, and apologize for the delay. We were out of town. Thank you all for your continued prayers. We hope and pray you all are doing well. God Bless!
Gina
----- Original Message -----
Sent: Tuesday, July 13, 2004 8:26 AM
Subject: Marinucci No. 45
(Another update from Lori.)
We continue to be amazed that Gerry can sing the hymns, recite scripture and pray (sometimes coherently.) Repeated themes arise and his face lights upwhen he discusses (sometimes rambling) about the importance of the "image of God" and understanding "His name." It appears as if God is strengthening Gerry in his faith for which I am thankful. He told me that "the angels are putting him back together."Ger is physically doing well and is getting stronger everyday. He is beginning to eat lunches, soft diet, by himself and loved the chocolate shake yesterday. His mechanics in walking are getting better. His therapists believe he will continue to get stronger physically. However, he needs to be cued andreminded of the mechanics. He struggles with short term memory. He has some long term memory but must relearn some things. He does not recall the accident and doesn't consistently know where he is or why. It is the specialized cognitive training that he needs. He still has trouble with word finding and his responses consistently trigger on the first option given. As expected, when he tires, his accuracy goes down. The next major step is to acclimate him to self-start daily living tasks and restructure a daily routine with the eventual goal of coming home. God has faithfully brought Gerry this far and it is with anticipation that I await what He will continue to do.
It has been stressy the last few days. The insurance company is getting a management company as of August 1st; their job to oversee the big $ cases (keep costs down). Gerry will need to go to another facility as part of his rehabilitation.The insurance/management company has weighed in that they want Ballard which is in their network. I have not heard great things about Ballard and I am attempting toget more accurate information. At this point I would like Ger to go to Casa Colina. I believe the hospital and doctors will advocate for Casa Colina because it specializes in head trauma and has a transitional living center. While most facilities offer programs for head trauma, stroke and spinal injurycollectively; some have separate programs and are better than others in acertain disciplines. Also, often the insurance companies won't pay for the transitional living phase, but perhaps the victims of crime fund might be willing and then another move would not be required. Many doctors, case managers, etc., are on vacation so timing is important as the rehab facility is selected. Please pray God's will be done.
Love, Lori
I'm passing on the last update from Lori, and apologize for the delay. We were out of town. Thank you all for your continued prayers. We hope and pray you all are doing well. God Bless!
Gina
----- Original Message -----
Sent: Tuesday, July 13, 2004 8:26 AM
Subject: Marinucci No. 45
(Another update from Lori.)
We continue to be amazed that Gerry can sing the hymns, recite scripture and pray (sometimes coherently.) Repeated themes arise and his face lights upwhen he discusses (sometimes rambling) about the importance of the "image of God" and understanding "His name." It appears as if God is strengthening Gerry in his faith for which I am thankful. He told me that "the angels are putting him back together."Ger is physically doing well and is getting stronger everyday. He is beginning to eat lunches, soft diet, by himself and loved the chocolate shake yesterday. His mechanics in walking are getting better. His therapists believe he will continue to get stronger physically. However, he needs to be cued andreminded of the mechanics. He struggles with short term memory. He has some long term memory but must relearn some things. He does not recall the accident and doesn't consistently know where he is or why. It is the specialized cognitive training that he needs. He still has trouble with word finding and his responses consistently trigger on the first option given. As expected, when he tires, his accuracy goes down. The next major step is to acclimate him to self-start daily living tasks and restructure a daily routine with the eventual goal of coming home. God has faithfully brought Gerry this far and it is with anticipation that I await what He will continue to do.
It has been stressy the last few days. The insurance company is getting a management company as of August 1st; their job to oversee the big $ cases (keep costs down). Gerry will need to go to another facility as part of his rehabilitation.The insurance/management company has weighed in that they want Ballard which is in their network. I have not heard great things about Ballard and I am attempting toget more accurate information. At this point I would like Ger to go to Casa Colina. I believe the hospital and doctors will advocate for Casa Colina because it specializes in head trauma and has a transitional living center. While most facilities offer programs for head trauma, stroke and spinal injurycollectively; some have separate programs and are better than others in acertain disciplines. Also, often the insurance companies won't pay for the transitional living phase, but perhaps the victims of crime fund might be willing and then another move would not be required. Many doctors, case managers, etc., are on vacation so timing is important as the rehab facility is selected. Please pray God's will be done.
Love, Lori
Steve (Gerry's brother) visits
From Steve Marinucci (Gerry's brother):
July 18 was a day I'd been looking forward to for some time. I'd wanted to come down to Southern California and see Gerry since he'd come out of the coma, but it was tough arranging time between work and all my other commitments.
But the weekend of July 18 turned out to be good. It originally was going to be part of a vacation, but the vacation was pushed back. But I'd decided to go to San Diego to be a part of a Beatle convention on that Saturday (I was a speaker), and decided to stay there through the afternoon, then head up north to Temecula and see Gina and Steve, then visit Gerry on Sunday before flying home.
When Sunday afternoon rolled around, I was a bit nervous, but excited. The last time I'd seen Gerry was in April. The only activity I'd seen was some very minimal eye movement. Many of the reports by Lori and Gina made me gasp as I read them. I was astonished he'd come so far so quickly.
Even more amazing was when I was told that Gerry had been informed "Steve" was coming to visit. He said, "My brother?" It was a good sign that he could remember this detail. (For those unaware, Gina's husband is also named Steve.)
The drive to the hospital was almost an hour, but it went quickly. Kindred Hospital is a small facility in Ontario. As we entered, I got more nervous.
Finally, we got to his room. There he was. Yes, he looked different ... thinner and without the beard he'd had for so long, but it was definitely Gerry. Gina walked in and is the custom with patients with brain trauma, he was introduced to all of us, including me. I said hello to him and his look showed he recognized me. We hugged and I felt and a strong feeling between us.
I was glad to see him moving again. His voice wasn't the old Gerry voice. It was gravelly, but it was definitely him. He seemed to be locked into the phrase, "It's only a matter of time," which indicated to me he has hope for the future. During our visit, which lasted about 1 1/2 hours, we talked, he sang hymns (and yes, he does remember the words!), and Lori did some mental exercises with him. In addition to his physical therapy, he has to do mental therapy and re-learn many of the things we take for granted. It's going to be a long road and he's going to need a lot of prayer and positive thoughts headed his way.
My plane would be departing from Ontario Airport in a couple of hours, so we had to leave. But seeing Gerry was quite an experience. I'll be seeing him again in a few weeks with Sue and Phil. I can't wait to see how much he'll have progressed.
And I know he will.
Monday, July 05, 2004
July 5: New link
We've added a new to a story about Gerry that ran in the North County Times on June 24. See the link at the right.
Thursday, July 01, 2004
Update No. 44 -- July 1 -- from Lori
God is faithfully answering your prayers.
The first thing Gerry said to Sandi Churchill when they put in his talking valve is "I want to see the sermon." He clarified "it is important to me to see and hear." Tonight while watching the video of last Sunday's worship service that Eric taped, Gerry sang the chorus, every word, to "Praise the Lord" and lipped the words to the stanzas. He was smiling at the end. Mom asked if
he enjoyed that and he replied "yes, I am celebrating the depth of the hymns!"
He has offered "it is very humbling." When Sandi Churchill clarified, "to have people come and visit?" He stated "yes, yes." He is truly touched by the out pouring of love by our family and friends. His memory is returning and needs to be refreshed as to the context of how, and when he knows you. Like
a computer, his brain seems to be loading up.
He was being encouraged that he was getting better and soon "he would be able to walk right out of here." Last night on three occasions he sat up in bed, swung his legs over and tried to get up. When the nurses questioned where he was going, he stated "I'm going to walk right out of here."
This week he was able to stand from the wheel chair, walk 100+ feet with the walker and sit back down in the wheel chair. He rode the stationary bike, used the hand bike, took a shower, ate some bites of lasagna and the list goes on.
Praise that my dear, dear friend Julie Hamel could come from Wisconsin and stay for a week with me and my girls. I'm able to catch-up on a little work time and she has generously been tackling my to do list and cleaning,cleaning!
Prayer requests: that the braces be removed, the trachea be removed, continued physical strengthening, the insurance authorizes the best rehabilitation facility, God continues to be glorified in all things.
Please continue to pray!
Love, Lori
The first thing Gerry said to Sandi Churchill when they put in his talking valve is "I want to see the sermon." He clarified "it is important to me to see and hear." Tonight while watching the video of last Sunday's worship service that Eric taped, Gerry sang the chorus, every word, to "Praise the Lord" and lipped the words to the stanzas. He was smiling at the end. Mom asked if
he enjoyed that and he replied "yes, I am celebrating the depth of the hymns!"
He has offered "it is very humbling." When Sandi Churchill clarified, "to have people come and visit?" He stated "yes, yes." He is truly touched by the out pouring of love by our family and friends. His memory is returning and needs to be refreshed as to the context of how, and when he knows you. Like
a computer, his brain seems to be loading up.
He was being encouraged that he was getting better and soon "he would be able to walk right out of here." Last night on three occasions he sat up in bed, swung his legs over and tried to get up. When the nurses questioned where he was going, he stated "I'm going to walk right out of here."
This week he was able to stand from the wheel chair, walk 100+ feet with the walker and sit back down in the wheel chair. He rode the stationary bike, used the hand bike, took a shower, ate some bites of lasagna and the list goes on.
Praise that my dear, dear friend Julie Hamel could come from Wisconsin and stay for a week with me and my girls. I'm able to catch-up on a little work time and she has generously been tackling my to do list and cleaning,cleaning!
Prayer requests: that the braces be removed, the trachea be removed, continued physical strengthening, the insurance authorizes the best rehabilitation facility, God continues to be glorified in all things.
Please continue to pray!
Love, Lori
June 30 update
Dear Friends & Family,
I'm passing on this wonderful email from some dear friends of Gerry and Lori. I know that you will be encouraged by their email and to hear some details of his progress from another's view. Thank you for your continued prayers!
God Bless,
Gina
------------------------------
Richard, Kathleen, and I had a very encouraging visit with Gerry last Sunday night. It was one of the most wonderful visits we have had with Gerry so far. He has come a long way. This was the first visit where Gerry was trying hard to have a conversation with us. He can get out about 75% of what he is thinking about and then he loses his ability to find the right words. He gets excited and frustrated with himself. He was making good eye contact with each person in the room. Also, this was the first time that Gerry was using his hands when he speaks. Gerry was always a very dramatic kind of person, so it was so pleasing to see his personality coming back.
Before our visit ended, we reminded Gerry that there are people around the world that are praying for him. With great excitement, Gerry told Richard that he wants a copy of all the e-mails with all the responses. We are going to put together a book which will hold all the e-mails requesting information on Gerry. We are asking that you send us some words of encouragement that you would like to tell Gerry. Describe yourself and your family. Gerry has been so encouraged that so many people he has never met have been continually praying for him since his accident. Thank you for being so faithful in praying for the brethren.
If you are in the area, please stop and visit with Gerry. Read stories that are full of word pictures. Kathleen started reading a book written by Rose Wilder (the daughter of Laura Ingles Wilder author of the "Little House on the Prairie" books). Gerry so enjoyed listening and talking to Kathleen. He kept on saying that Kathleen reminded him of his oldest daughter Annesa. If you can read Spanish, Gerry understands and was correcting Richard with some of his diction when reading the Bible in Spanish. Come pray with him. While you are visiting, turn off the TV. Gerry will tend to focus on the television because it is easier for his mind than trying to follow a conversation. When he gets frustrated because he is having difficulty completing a thought, reassure him that you know that he is working hard and it is OK to rest. Start reading again so that he can see pictures in his mind through language.
Each time we have visited with him, we have been so blessed to see the work God in doing in this dear brother's life. If you have never met Gerry, just tell him that you are one of the many people who have been praying for him. His face will lighten up and he will want to take a good look at you. His vision is coming back but he has difficulty focusing on objects close to him. That is one reason why he is not reading on his own. If your story has a picture, show the picture to him. Gerry will hold the book about an arm's length away and stare while he focus his eyes on the object. Then he will start relating something of his past or start talking about what he remembers about the story. All of these things are so good in healing the brain damage he has suffered. Hope these thoughts will encourage you in how we can continue to minister to the Marinucci family.
In His Joy!
Laurell and Richard Dowling
Email your responses to ......
dowlingmom@earthlink.net
I'm passing on this wonderful email from some dear friends of Gerry and Lori. I know that you will be encouraged by their email and to hear some details of his progress from another's view. Thank you for your continued prayers!
God Bless,
Gina
------------------------------
Richard, Kathleen, and I had a very encouraging visit with Gerry last Sunday night. It was one of the most wonderful visits we have had with Gerry so far. He has come a long way. This was the first visit where Gerry was trying hard to have a conversation with us. He can get out about 75% of what he is thinking about and then he loses his ability to find the right words. He gets excited and frustrated with himself. He was making good eye contact with each person in the room. Also, this was the first time that Gerry was using his hands when he speaks. Gerry was always a very dramatic kind of person, so it was so pleasing to see his personality coming back.
Before our visit ended, we reminded Gerry that there are people around the world that are praying for him. With great excitement, Gerry told Richard that he wants a copy of all the e-mails with all the responses. We are going to put together a book which will hold all the e-mails requesting information on Gerry. We are asking that you send us some words of encouragement that you would like to tell Gerry. Describe yourself and your family. Gerry has been so encouraged that so many people he has never met have been continually praying for him since his accident. Thank you for being so faithful in praying for the brethren.
If you are in the area, please stop and visit with Gerry. Read stories that are full of word pictures. Kathleen started reading a book written by Rose Wilder (the daughter of Laura Ingles Wilder author of the "Little House on the Prairie" books). Gerry so enjoyed listening and talking to Kathleen. He kept on saying that Kathleen reminded him of his oldest daughter Annesa. If you can read Spanish, Gerry understands and was correcting Richard with some of his diction when reading the Bible in Spanish. Come pray with him. While you are visiting, turn off the TV. Gerry will tend to focus on the television because it is easier for his mind than trying to follow a conversation. When he gets frustrated because he is having difficulty completing a thought, reassure him that you know that he is working hard and it is OK to rest. Start reading again so that he can see pictures in his mind through language.
Each time we have visited with him, we have been so blessed to see the work God in doing in this dear brother's life. If you have never met Gerry, just tell him that you are one of the many people who have been praying for him. His face will lighten up and he will want to take a good look at you. His vision is coming back but he has difficulty focusing on objects close to him. That is one reason why he is not reading on his own. If your story has a picture, show the picture to him. Gerry will hold the book about an arm's length away and stare while he focus his eyes on the object. Then he will start relating something of his past or start talking about what he remembers about the story. All of these things are so good in healing the brain damage he has suffered. Hope these thoughts will encourage you in how we can continue to minister to the Marinucci family.
In His Joy!
Laurell and Richard Dowling
Email your responses to ......
dowlingmom@earthlink.net
Thursday, June 24, 2004
June 24 update...from Gina
6/24/04
Dear Family & Friends,
This week we have been amazed by Gerry's progress! His stamina improved greatly as he walked 100ft. around the nurses station 3 days in a row without his blood pressure dropping as it previously did. In addition, yesterday he stood in the standing frame for 15 minutes, also with no blood pressure problems. The past couple of days, he did not even need the 'abdominal binder' to keep his BP stable. Yesterday, Lea, his speech therapist also did a swallow test to see if he was ready to begin eating. He did very well in that all of the juices and applesauce they tested him with went into his stomach, and none into his lungs or trach. His swallowing is delayed a few seconds, which they will continue working on with him. He was unable to chew food as of yet, but Lea will be working with him daily now by spending half of her therapy time working on his swallowing, and the other half she will continue to work on his speech, memory and understanding. She said that we could bring him smooth textured puddings or ice creams if we wish and have the nurses put it in the kitchen to be used for her therapy sessions with him.
Lori has been talking to Gerry's doctor, who is very encouraged by his progress also. His doctor and therapists feel that in another month or so Gerry may be strong enough to move to an acute rehab. So, we are continuing to investigate facilities and pray for direction in moving him to the right one with cooperation from the insurance company. The neuro doctor, who sees Gerry weekly, also noted great encouragement by Gerry's progress.
Gerry is talking, sometimes clearly with simple statements or words, and other times he's trying to converse and talk in length, but his voice is quiet and it is difficult to understand his words. This can be frustrating for him, so for those friends who are close by and come to visit, just listen closely as best you can, encourage Gerry to speak louder if he is able, and ask him to repeat if necessary. In the end, if you can't understand him, just let him know and reassure him. A week or so ago, he wasn't even trying to talk in length. This may be an area in which he'll need more therapy to learn to talk and communicate again. But the important thing is that we can see that he has the understanding as we talk and joke with him about recent and past events. The rest can be worked through with therapy. Visitors, remember to introduce yourselves when visiting because with some brain injury patients, these simple reminders are very helpful.
As of last night, Gerry did develop a low-grade fever and increased heart rate. The heart rate has stabilized, and they are doing lab work and cultures to determine if Gerry has an infection. He has been started on antibiotics also. His therapies are on hold until he is better. He was having some irritation and/or pain in his jaw last night when he was talking with us which may or may not be related. They are also watching how he does with his trach this week in the hopes that they can move to the next step, which is putting a red cap on it. We know he is in good care, and the staff is watching him closely in all areas. We pray that he will soon be better, and that this may be just a slight bump in the road, and not a setback. Thank you all for your continued prayers!
The LORD is close to all who call on him, yes, to all who call on him sincerely. Psalm 145:18
God Bless!
Gina
Dear Family & Friends,
This week we have been amazed by Gerry's progress! His stamina improved greatly as he walked 100ft. around the nurses station 3 days in a row without his blood pressure dropping as it previously did. In addition, yesterday he stood in the standing frame for 15 minutes, also with no blood pressure problems. The past couple of days, he did not even need the 'abdominal binder' to keep his BP stable. Yesterday, Lea, his speech therapist also did a swallow test to see if he was ready to begin eating. He did very well in that all of the juices and applesauce they tested him with went into his stomach, and none into his lungs or trach. His swallowing is delayed a few seconds, which they will continue working on with him. He was unable to chew food as of yet, but Lea will be working with him daily now by spending half of her therapy time working on his swallowing, and the other half she will continue to work on his speech, memory and understanding. She said that we could bring him smooth textured puddings or ice creams if we wish and have the nurses put it in the kitchen to be used for her therapy sessions with him.
Lori has been talking to Gerry's doctor, who is very encouraged by his progress also. His doctor and therapists feel that in another month or so Gerry may be strong enough to move to an acute rehab. So, we are continuing to investigate facilities and pray for direction in moving him to the right one with cooperation from the insurance company. The neuro doctor, who sees Gerry weekly, also noted great encouragement by Gerry's progress.
Gerry is talking, sometimes clearly with simple statements or words, and other times he's trying to converse and talk in length, but his voice is quiet and it is difficult to understand his words. This can be frustrating for him, so for those friends who are close by and come to visit, just listen closely as best you can, encourage Gerry to speak louder if he is able, and ask him to repeat if necessary. In the end, if you can't understand him, just let him know and reassure him. A week or so ago, he wasn't even trying to talk in length. This may be an area in which he'll need more therapy to learn to talk and communicate again. But the important thing is that we can see that he has the understanding as we talk and joke with him about recent and past events. The rest can be worked through with therapy. Visitors, remember to introduce yourselves when visiting because with some brain injury patients, these simple reminders are very helpful.
As of last night, Gerry did develop a low-grade fever and increased heart rate. The heart rate has stabilized, and they are doing lab work and cultures to determine if Gerry has an infection. He has been started on antibiotics also. His therapies are on hold until he is better. He was having some irritation and/or pain in his jaw last night when he was talking with us which may or may not be related. They are also watching how he does with his trach this week in the hopes that they can move to the next step, which is putting a red cap on it. We know he is in good care, and the staff is watching him closely in all areas. We pray that he will soon be better, and that this may be just a slight bump in the road, and not a setback. Thank you all for your continued prayers!
The LORD is close to all who call on him, yes, to all who call on him sincerely. Psalm 145:18
God Bless!
Gina
Sunday, June 20, 2004
From Lori....June 17 ...Marinucci No. 43
From Lori:
I have been tardy in updating my faithful prayer warriors. Forgive me. Be assured that your prayers are appreciated.
Gerard is awake and more alert for a longer periods each day. There are documented stages that a traumatic brain injury (tbi) patient goes through. Please pray that Gerry skips the agitation stage, as some do. Recently, we have observed slight grumpiness or what appears as depression, but nothing serious so far. Don't let this alarm you during visits, it is very normal at this
stage.
He has walked with assistance, rather sloppily, 60+ feet. They will work on his form over time. He does well with active movement. When they have him in a static standing position, after 5-10 minutes his blood pressure drops drastically. However, his recovery time following such an incident lessens each time and doesn't wipe him out like it did initially.
The x-ray of his shoulder came back negative. He is guarding his right shoulder and most likely it is because of continued pain from the severe soft tissue injury following the dislocation. This is to be expected. He tends to hold his hands with fingers straight. Those visiting, please encourage him to flex his fingers and straighten his arms along his side. Therapy has been wrapping his hands and putting him in braces for several hours each day.
He has been following commands about 80% of the time. He doesn't verbally recognize us by name yet. He independently reaches out his hand to shake and says "hi" to his doctors when they come in the room. He responds "I'm doing well" or "pretty good" to the question "how are you doing?" He counted to 10 without prompts. Short and long term memory appear to be coming. He has been singing simple songs with prompts. He told Leah today that she didn't sing well and then began laughing. His humor continues to pop out.
They have begun the swallow tests with the hope of eating soon. The pulmanologist is very cautious regarding removal of the trachea but this should not preventing him from eating when the time comes.
We are ambivalent regarding timing to the next facility for rehab. We continue to receive conflicting opinions. Some desire that he stay put and slowly get stronger thereby not impeding his progress with a move. They argue he will be stronger and further along thereby able to benefit more from the next stage of therapy. Some believe there is a "window of opportunity" and
timing is important. This is a real concern and a big decision requiring prayer. We continue to research facilities looking to San Diego next.
Pray that a referral will come through for a dentist to visit the hospital. Gerry appears to have a cavity in his front tooth. Also the braces need to be removed prior to eating.
Pray for his therapists Roslyn, Mitch and Leah. They are wonderful and very patient. I have appreciated their attempts to keep the family posted of his daily progress.
Love, Lori
"If any of you lacks wisdom, let him ask of God, that giveth to all men liberally, and unbraided not; and it shall be given to him." Job 28:12
I have been tardy in updating my faithful prayer warriors. Forgive me. Be assured that your prayers are appreciated.
Gerard is awake and more alert for a longer periods each day. There are documented stages that a traumatic brain injury (tbi) patient goes through. Please pray that Gerry skips the agitation stage, as some do. Recently, we have observed slight grumpiness or what appears as depression, but nothing serious so far. Don't let this alarm you during visits, it is very normal at this
stage.
He has walked with assistance, rather sloppily, 60+ feet. They will work on his form over time. He does well with active movement. When they have him in a static standing position, after 5-10 minutes his blood pressure drops drastically. However, his recovery time following such an incident lessens each time and doesn't wipe him out like it did initially.
The x-ray of his shoulder came back negative. He is guarding his right shoulder and most likely it is because of continued pain from the severe soft tissue injury following the dislocation. This is to be expected. He tends to hold his hands with fingers straight. Those visiting, please encourage him to flex his fingers and straighten his arms along his side. Therapy has been wrapping his hands and putting him in braces for several hours each day.
He has been following commands about 80% of the time. He doesn't verbally recognize us by name yet. He independently reaches out his hand to shake and says "hi" to his doctors when they come in the room. He responds "I'm doing well" or "pretty good" to the question "how are you doing?" He counted to 10 without prompts. Short and long term memory appear to be coming. He has been singing simple songs with prompts. He told Leah today that she didn't sing well and then began laughing. His humor continues to pop out.
They have begun the swallow tests with the hope of eating soon. The pulmanologist is very cautious regarding removal of the trachea but this should not preventing him from eating when the time comes.
We are ambivalent regarding timing to the next facility for rehab. We continue to receive conflicting opinions. Some desire that he stay put and slowly get stronger thereby not impeding his progress with a move. They argue he will be stronger and further along thereby able to benefit more from the next stage of therapy. Some believe there is a "window of opportunity" and
timing is important. This is a real concern and a big decision requiring prayer. We continue to research facilities looking to San Diego next.
Pray that a referral will come through for a dentist to visit the hospital. Gerry appears to have a cavity in his front tooth. Also the braces need to be removed prior to eating.
Pray for his therapists Roslyn, Mitch and Leah. They are wonderful and very patient. I have appreciated their attempts to keep the family posted of his daily progress.
Love, Lori
"If any of you lacks wisdom, let him ask of God, that giveth to all men liberally, and unbraided not; and it shall be given to him." Job 28:12
Friday, June 11, 2004
Marinucci No. 42 6/11/04: Gerry takes his first steps!
Marinucci No. 42 6/11/04
From Gina:
Dear Friends & Family,
I’m passing on an update from Lori below, and adding some additional details that have happened since her writing.
Gerry has taken his first steps with a walker! With his therapists assisting him under the arms, the first day he walked about 5 feet, and the next day I was there to see him take 5 steps. The staff is so excited by his progress, that they all gather around to cheer him on.
His speech therapist continues to report improvement, and this week said that when she cued Gerry with the days of the week ‘Monday’ and ‘Tuesday’, he continued on with the remaining days! When she touches parts of his body and asks him where she is touching, he responds appropriately with ‘leg’, ‘knee’, etc. When she showed him a large family picture with Gerry, Lori and Anessa and pointed to each one, asking who they were, he appropriately said ‘me’, ‘my wife’, and ‘my daughter’. When she asked him the names of each one, he could not respond. But when she then pointed to each and said “Is this Lori?” “Anessa”, etc., he said yes to each. The therapist said it is especially important when coming to visit Gerry that you tell him your name, like “Hi Gerry, it’s me, Gina”, and tell him again a couple or few times during the visit and when you leave. We are not concerned as to whether it is a memory problem or whether he just needs to retrain his brain in this area. He is doing so well putting the pieces of the puzzle together, and this is an area in which our cues will help him greatly.
Lori has also reported some wonderful visits with friends in which Gerry hummed along while they sang hymns! Family friends continue to bring laughter with each visit, joking about ‘breaking Gerry out’ of the hospital, and Gerry chuckled and said “Get me out of here”. Of course, we all typically joke around with Gerry about food and what types he would like, and he said “chicken”.
Lori brought home videos to show Gerry, and he was especially touched with tears when viewing the video of Polina & Tatiana’s baptism. Lori mentions below that Dad was in the hospital. I’d like to update and say he is now out of the hospital as of Tuesday, and doing much better. We are keeping a close eye on him, and thank you for your concern and prayers.
We are so inspired and awed by Gerry’s daily fighting through this great challenge. Each step and each word takes tremendous effort, and we ask your continued prayers for the strength for his therapy and for God’s continued healing and restoration. Also prayers for x-rays that are to be done on his right hand, wrist and arm, and for the results and the therapy they are doing to help keep the range of motion.
Thank you also for your continued prayers for Lori and the girls. We are so grateful to all of you who are helping them in so many ways through this time, it has been an incredible testimony to all of us!
God Bless!
Gina
From Lori:
From: Jonathan Hoos
To: Marinucci -Lori’s email list
Sent: Thursday, June 10, 2004 7:54 PM
Subject: Marinucci No. 42
Gerard continues to progress on a daily basis. He is more alert every day and is following both simple and more complicated commands. He is receiving
3 hours of therapy a day; speech, physical and occupational. Of course he is responding to music... singing out “merrily, merrily, merrily, merrily” to Row-row-row Your Boat. He can tolerate standing and lifting his feet. They had him on all fours with an exercise ball under his stomach and he said “this is crazy.” He is able to assist in bed to chair transfers with only minor assistance and sits up in a chair, adjusting himself with head up for over
an hour. He gets very tired following therapy and sleeps heavily. We are thrilled by the daily notes the therapists leave for us. He now shakes your hand or says “time for bed” when he has had enough. He more frequently responds to
questions by nodding or shaking his head.
We are told soon they will install the red button on his trachea forcing him to breath through his nose and mouth. They suspect he will tolerate this
well. Soon thereafter, they will begin swallow tests and then dye his food to ensure none goes into his lungs. When this is accomplished, they will close
the trachea. Tonight, I asked him if it hurt to talk, and he nodded “yes.”
They explain that talking will be more natural when the trachea is removed.
Please pray for his left hand, wrist and arm which appear to be tightening up. We see some resistance to moving his left arm and hand as well. We
need those guitar picking fingers to stay nimble!
A few nights ago, the doctor reminded me to speak slow and clear. But I believe Gerry hears everything and responds with facial expressions, laughs
or smirks to my regular chatter, teasing and bantering back and forth with family and friends. The doctor observed his reaction tonight and said “keep doing what your are doing, all this stimulation seems to be what he needs.” A continued thanks to all the visitors! By the way they have moved him to room 108, just next door.
In addition to visiting Gerry, Gina, Edie and I visited two rehab hospitals today. St. Jude’s in Fullerton and Casa Colina in Pomona. They both
appeared to be fine facilities, about equal distance in different directions from home (Fullerton will probably be more traffic, however). It was exciting to see and hear about potential therapy plans. Continue to pray for guidance, timing and insurance cooperation. More research is necessary about potential rehab facilities in San Diego. We don’t know exactly when the transfer will take place but are instructed it is imminent.
Finally, Gerard’s father Frank is in the hospital in Murrieta. His Cumadin mediation he takes for his heart condition was seriously elevated. They
have given him transfusions and are observing him closely. It is a lot for Gina and Edie now to have two patients! Pray for them as well.
“Since I am afflicted and needy, Let the Lord be mindful of me; Thou art my help and my deliverer; Do not delay, O my God.” Ps 40:17
Lori
From Gina:
Dear Friends & Family,
I’m passing on an update from Lori below, and adding some additional details that have happened since her writing.
Gerry has taken his first steps with a walker! With his therapists assisting him under the arms, the first day he walked about 5 feet, and the next day I was there to see him take 5 steps. The staff is so excited by his progress, that they all gather around to cheer him on.
His speech therapist continues to report improvement, and this week said that when she cued Gerry with the days of the week ‘Monday’ and ‘Tuesday’, he continued on with the remaining days! When she touches parts of his body and asks him where she is touching, he responds appropriately with ‘leg’, ‘knee’, etc. When she showed him a large family picture with Gerry, Lori and Anessa and pointed to each one, asking who they were, he appropriately said ‘me’, ‘my wife’, and ‘my daughter’. When she asked him the names of each one, he could not respond. But when she then pointed to each and said “Is this Lori?” “Anessa”, etc., he said yes to each. The therapist said it is especially important when coming to visit Gerry that you tell him your name, like “Hi Gerry, it’s me, Gina”, and tell him again a couple or few times during the visit and when you leave. We are not concerned as to whether it is a memory problem or whether he just needs to retrain his brain in this area. He is doing so well putting the pieces of the puzzle together, and this is an area in which our cues will help him greatly.
Lori has also reported some wonderful visits with friends in which Gerry hummed along while they sang hymns! Family friends continue to bring laughter with each visit, joking about ‘breaking Gerry out’ of the hospital, and Gerry chuckled and said “Get me out of here”. Of course, we all typically joke around with Gerry about food and what types he would like, and he said “chicken”.
Lori brought home videos to show Gerry, and he was especially touched with tears when viewing the video of Polina & Tatiana’s baptism. Lori mentions below that Dad was in the hospital. I’d like to update and say he is now out of the hospital as of Tuesday, and doing much better. We are keeping a close eye on him, and thank you for your concern and prayers.
We are so inspired and awed by Gerry’s daily fighting through this great challenge. Each step and each word takes tremendous effort, and we ask your continued prayers for the strength for his therapy and for God’s continued healing and restoration. Also prayers for x-rays that are to be done on his right hand, wrist and arm, and for the results and the therapy they are doing to help keep the range of motion.
Thank you also for your continued prayers for Lori and the girls. We are so grateful to all of you who are helping them in so many ways through this time, it has been an incredible testimony to all of us!
God Bless!
Gina
From Lori:
From: Jonathan Hoos
To: Marinucci -Lori’s email list
Sent: Thursday, June 10, 2004 7:54 PM
Subject: Marinucci No. 42
Gerard continues to progress on a daily basis. He is more alert every day and is following both simple and more complicated commands. He is receiving
3 hours of therapy a day; speech, physical and occupational. Of course he is responding to music... singing out “merrily, merrily, merrily, merrily” to Row-row-row Your Boat. He can tolerate standing and lifting his feet. They had him on all fours with an exercise ball under his stomach and he said “this is crazy.” He is able to assist in bed to chair transfers with only minor assistance and sits up in a chair, adjusting himself with head up for over
an hour. He gets very tired following therapy and sleeps heavily. We are thrilled by the daily notes the therapists leave for us. He now shakes your hand or says “time for bed” when he has had enough. He more frequently responds to
questions by nodding or shaking his head.
We are told soon they will install the red button on his trachea forcing him to breath through his nose and mouth. They suspect he will tolerate this
well. Soon thereafter, they will begin swallow tests and then dye his food to ensure none goes into his lungs. When this is accomplished, they will close
the trachea. Tonight, I asked him if it hurt to talk, and he nodded “yes.”
They explain that talking will be more natural when the trachea is removed.
Please pray for his left hand, wrist and arm which appear to be tightening up. We see some resistance to moving his left arm and hand as well. We
need those guitar picking fingers to stay nimble!
A few nights ago, the doctor reminded me to speak slow and clear. But I believe Gerry hears everything and responds with facial expressions, laughs
or smirks to my regular chatter, teasing and bantering back and forth with family and friends. The doctor observed his reaction tonight and said “keep doing what your are doing, all this stimulation seems to be what he needs.” A continued thanks to all the visitors! By the way they have moved him to room 108, just next door.
In addition to visiting Gerry, Gina, Edie and I visited two rehab hospitals today. St. Jude’s in Fullerton and Casa Colina in Pomona. They both
appeared to be fine facilities, about equal distance in different directions from home (Fullerton will probably be more traffic, however). It was exciting to see and hear about potential therapy plans. Continue to pray for guidance, timing and insurance cooperation. More research is necessary about potential rehab facilities in San Diego. We don’t know exactly when the transfer will take place but are instructed it is imminent.
Finally, Gerard’s father Frank is in the hospital in Murrieta. His Cumadin mediation he takes for his heart condition was seriously elevated. They
have given him transfusions and are observing him closely. It is a lot for Gina and Edie now to have two patients! Pray for them as well.
“Since I am afflicted and needy, Let the Lord be mindful of me; Thou art my help and my deliverer; Do not delay, O my God.” Ps 40:17
Lori
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